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https://twitter.com/hildabast/status/1262140974995628032 To Hilda Bastian: Hm, isn't the exercise review so bad in part because the Cochrane methodology has its shortcomings that are particularly relevant for assessing the quality of evidence of therapist-delivered treatments, e.g. exercise ...

Thank you for your persistence in pursuing this and all kinds of related issues, Caroline. I think it could be a bit misleading to quote that statement from the previous Editor-in-Chief. Apparently, he accepted some amendments after the review authors had repeatedly protested and eventually...

There are too many good reasons to list them here why some of us have lost any hope that Cochrane could achieve anything good for people with ME. So thank you all who, despite these reasons, and thank you all who, despite struggling with the additional burden that the pandemic means for people...

https://twitter.com/hildabast/status/1261207728929689600

Ragarding problems with gait / motor fatiguability: https://www.s4me.info/threads/objective-assessment-of-diverse-types-of-ms-related-fatigue-and-fatiguability-lurija-institute.4241/page-2#post-184216

DrPH David Tuller, Senior Fellow in Public Health and Journalism, University of California, Berkeley: "I appealed to Godlee in an open letter of concern in August 2019, signed by 55 scientists, academics, and other experts from Harvard, Columbia, Stanford, University College London, UC...

"an update of the study [...] where these questions were addressed" -- but the underlying issues weren't resolved.

If I understood past forum discussions properly, another way to put it is that a RCT in order to be 'gold standard' not only needs a control group but an adequate control group. In a trial where blinding is not possible, I think that would mean, in addition to applying objective endpoints, that...

Agree with both. I was coming from an other perspective. There seems to be a consensus that in trials on therapist-delivered treatments where blinding is not possible, objecive measures are needed. There also seems to be a certain consensus that for trials on certain illnesses like ME...

Thank you @PhysiosforME. I second other forum people's applause. Have you thought about including a quick cognitive test? Maybe something like @Graham is working on? And/ or any idea to protocol cognitive activity as well, maybe only over some days (so that just protocolling cognitive...

Apologies if this was already mentioned -- regarding testimonies of adverse effects: https://www.s4me.info/threads/trial-by-error-the-lightning-process-is-“effective”-really.9586/#post-169564 And regarding scientific proof of the premises of LP -- he tried...

Only able to skim and not able to write anything coherent at the moment, so just dropping some lines here I drafted for another purpose a while ago -- in case there is something useful in it for you, @Marky -- and thanks for your work on this! "Previously, Parker advertised that LP could...

Looking at the abstract and table 2, the first part of your sentence seems to be both correct and relevant, but did W. really state that the treatment was effective? Perhaps I missed something in the translation of the reply or was it in the paper (only skimmed)? In the reply I only find -...

"All in all, this study is a small but important contribution in trying to improve the treatment options for patients with long-term fatigue." A remarkable self-rating, especially in combination with the reply's closing sentence: "No conflicts of interest stated."

Only skimmed the thread & the paper. It's hidden in the full text: https://bmjpaedsopen.bmj.com/content/bmjpo/4/1/e000620/DC1/embed/inline-supplementary-material-1.pdf?download=true Edit: cross-posted with @Theresa Also found a related paper in a journal called 'Music and Medicine' ...

Haven't read the PACE trial paper on adverse events, so just drop the link in case it's useful for this thread: Adverse events and deterioration reported by participants in the PACE trial of therapies for chronic fatigue syndrome. Dougall D, Johnson A, Goldsmith K, Sharpe M, Angus B, Chalder T...

However, allegedly "supported by recent research with the University of Bristol" -- from Phil Parkers' LP site: Are there any unpleasant side-effects or downsides? In our 21 years of experience, and supported by recent research with the University of Bristol, applying these compassionate and...

I'm not on Twitter but.... how about reminding people of David Tuller's piece about the SMILE (Lightning Process) study on stat news: https://www.statnews.com/2019/12/13/bmj-should-retract-flawed-chronic-fatigue-syndrome-research-paper/ edited to add link to forum thread...

The PRG's Fatigue "Guide" is Guides are still up at the Worcestershire health and care site (under Mental Health).(*) In the same rubric there are three additional 'guides' authored by other groups or individuals, i.e.: - Coronavirus and CBT by Kelly Watkins - Living with worry and anxiety...

Couldn't resist skimming the vanguard's text - so, another quote: Consultation-liaison psychiatrists will also continue to lead in many areas. These include emerging areas of medical genomics in psychiatry, the monitoring of drug-drug interactions, and the management of behavioral and cognitive...