The allocation to another Cochrane review group seems to me to be a big challenge.
Hope it's OK to copy this from the current review thread:
Might be an idea to propse him as a member of the advisory group?
(I see the group is not confined to patients but an "independent advisory group".)...
From: Hilda Bastian, It’s a Start: The Amended Version of the Cochrane Review on Exercise and CFS, 3.10.2019,
https://blogs.plos.org/absolutely-maybe/2019/10/03/its-a-start-the-amended-version-of-the-cochrane-review-on-exercise-and-cfs/ :
"The previous editor-in-chief, David Tovey, had...
Not about ME but I think many pwME can relate to that:
"Living with MS is painful but I've never felt indignity like a PIP assessment | inews"
https://inews.co.uk/opinion/living-with-ms-is-painful-but-ive-never-felt-indignity-like-a-pip-assessment-1374404
Nevertheless, sometimes encouraging...
Again was reminded of this other perspective with regard to 'MUS' and thought it could be interesting to know this team's stances not only on equating 'unexplained' long term conditions with 'psychosomatic'/ 'psychogenic' but also on 'positive signs' of functional neurological disorders and the...
This thread could provide some hints:
https://www.s4me.info/threads/is-cognitive-behavioral-therapy-the-gold-standard-for-psychotherapy.379/
(I haven't read it yet.)
I think the NICE terms are "supportive" vs "directive" CBT.
But even if supportive CBT were offered and even if it were provided in home visits or or by phone or e-mail, if you aren't able to talk much or talk at all, it's understandable to prefer spending the scarce time you're able to...
Yes, thanks.
After also reading Michael Scott's article and the trial paper on CBT for people with depression and advanced cancer I think this is a trial that is specific for the situation in England, but it also raises highly relevant general questions regarding treatment of mental illness in...
Thanks for your reply, @dave30th .
My confusion might be due more to some premises of the three concepts of MUS, CBT and IAPT, all of which I have no real knowledge and have read only few of your previous articles dealing with those issues.
I'll try to explain my confusion in portions when I...
Hm, I think it should be emphasized that the quoted study is only about advanced cancer and depression:
From the quoted paper's abstract:
"Although cognitive-behavioural therapy (CBT) has been shown to be effective for depression in people with cancer, it is unclear whether this is the case...
Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds
By David Tuller, DrPH
http://www.virology.ws/2020/01/15/trial-by-error-cbt-provides-no-benefits-to-advanced-cancer-patients-study-finds/
The DSQ-SF is freely available at REDCap's (34) shared library: https://redcap.is.depaul.edu/surveys/?s=HCT7J8EWPC
Seems to me still far from ideal. I like however that it's really short and simple.
Another point I'm wondering about is what reasons people could have to assume the study couldn't be helpful.
What are the benefits or possible harms if no clear genetic associations were found?
Or if the findings showed genetic associations with mental illnesses, how could such findings be...
I think it could be very helpful if someone were able to answer the concerns expressed in the comments on the Virology Blog article, in particular provide more details about the diagnostic / selection criteria.
If these details aren't clear yet (according to the FAQ IOM or CCC or Fukuda (*)...
Great to have this on Virology Blog to reach a larger audience and get feedback from those who are skeptic or hesitant.
Thank you @dave30th , @Simon M and all involved.
Might also be helpful if someone had the capacities to respond to the comments.
In the SMC Factsheets and Briefing Notes section they tell me:
"Please note that our Factsheets and Briefing Notes have now been retired and are no longer available for viewing or download."
Perhaps they have been retired together with Prof Wessely (who isn't on the Board of Trustees anymore)...
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