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  1. MSEsperanza

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    The allocation to another Cochrane review group seems to me to be a big challenge. Hope it's OK to copy this from the current review thread: Might be an idea to propse him as a member of the advisory group? (I see the group is not confined to patients but an "independent advisory group".)...
  2. MSEsperanza

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    From: Hilda Bastian, It’s a Start: The Amended Version of the Cochrane Review on Exercise and CFS, 3.10.2019, https://blogs.plos.org/absolutely-maybe/2019/10/03/its-a-start-the-amended-version-of-the-cochrane-review-on-exercise-and-cfs/ : "The previous editor-in-chief, David Tovey, had...
  3. MSEsperanza

    Bias due to a lack of blinding: a discussion

    eta: the discussion seems to have split:
  4. MSEsperanza

    Bias due to a lack of blinding: a discussion

    Might also be mixed with this line of thinking: https://twitter.com/Chrissox/status/1222062872785801216
  5. MSEsperanza

    PIP appeals: 'I've been treated like a liar and a fake'

    Not about ME but I think many pwME can relate to that: "Living with MS is painful but I've never felt indignity like a PIP assessment | inews" https://inews.co.uk/opinion/living-with-ms-is-painful-but-ive-never-felt-indignity-like-a-pip-assessment-1374404 Nevertheless, sometimes encouraging...
  6. MSEsperanza

    MUS services in UK and other MUS related issues

    Again was reminded of this other perspective with regard to 'MUS' and thought it could be interesting to know this team's stances not only on equating 'unexplained' long term conditions with 'psychosomatic'/ 'psychogenic' but also on 'positive signs' of functional neurological disorders and the...
  7. MSEsperanza

    David Tuller - Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds

    This thread could provide some hints: https://www.s4me.info/threads/is-cognitive-behavioral-therapy-the-gold-standard-for-psychotherapy.379/ (I haven't read it yet.)
  8. MSEsperanza

    David Tuller - Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds

    I think the NICE terms are "supportive" vs "directive" CBT. But even if supportive CBT were offered and even if it were provided in home visits or or by phone or e-mail, if you aren't able to talk much or talk at all, it's understandable to prefer spending the scarce time you're able to...
  9. MSEsperanza

    David Tuller - Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds

    Yes, thanks. After also reading Michael Scott's article and the trial paper on CBT for people with depression and advanced cancer I think this is a trial that is specific for the situation in England, but it also raises highly relevant general questions regarding treatment of mental illness in...
  10. MSEsperanza

    Is Cognitive Behavioral Therapy the Gold Standard for Psychotherapy?

    Full text paywalled, but this sci-hub link currently is working for me: https://sci-hub.se/https://doi.org/10.1001/jama.2017.13737
  11. MSEsperanza

    David Tuller - Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds

    Thanks for your reply, @dave30th . My confusion might be due more to some premises of the three concepts of MUS, CBT and IAPT, all of which I have no real knowledge and have read only few of your previous articles dealing with those issues. I'll try to explain my confusion in portions when I...
  12. MSEsperanza

    David Tuller - Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds

    Hm, I think it should be emphasized that the quoted study is only about advanced cancer and depression: From the quoted paper's abstract: "Although cognitive-behavioural therapy (CBT) has been shown to be effective for depression in people with cancer, it is unclear whether this is the case...
  13. MSEsperanza

    David Tuller - Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds

    Trial By Error: CBT Provides No Benefits to Advanced Cancer Patients, Study Finds By David Tuller, DrPH http://www.virology.ws/2020/01/15/trial-by-error-cbt-provides-no-benefits-to-advanced-cancer-patients-study-finds/
  14. MSEsperanza

    The Development of the DePaul Symptom Questionnaire: Original, Expanded, Brief, and Pediatric Versions, 2018, Jason

    The DSQ-SF is freely available at REDCap's (34) shared library: https://redcap.is.depaul.edu/surveys/?s=HCT7J8EWPC Seems to me still far from ideal. I like however that it's really short and simple.
  15. MSEsperanza

    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    Another point I'm wondering about is what reasons people could have to assume the study couldn't be helpful. What are the benefits or possible harms if no clear genetic associations were found? Or if the findings showed genetic associations with mental illnesses, how could such findings be...
  16. MSEsperanza

    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    I think it could be very helpful if someone were able to answer the concerns expressed in the comments on the Virology Blog article, in particular provide more details about the diagnostic / selection criteria. If these details aren't clear yet (according to the FAQ IOM or CCC or Fukuda (*)...
  17. MSEsperanza

    UK Genome Wide Association Study (GWAS) project: indicate your support and/or willingness to take part and/or join the mailing list

    Great to have this on Virology Blog to reach a larger audience and get feedback from those who are skeptic or hesitant. Thank you @dave30th , @Simon M and all involved. Might also be helpful if someone had the capacities to respond to the comments.
  18. MSEsperanza

    United Kingdom: Science Media Centre (including Fiona Fox)

    Where / how did you find it?
  19. MSEsperanza

    United Kingdom: Science Media Centre (including Fiona Fox)

    In the SMC Factsheets and Briefing Notes section they tell me: "Please note that our Factsheets and Briefing Notes have now been retired and are no longer available for viewing or download." Perhaps they have been retired together with Prof Wessely (who isn't on the Board of Trustees anymore)...
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