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Don't know where to put this so just leave it here: Cochrane seeks - Research Integrity Editor https://www.cochrane.org/news/cochrane-seeks-research-integrity-editor

"We are pleased to announce the re-schedule of the 2019 Methods Symposium, which was postponed due to the cancelled 2019 Cochrane Colloquium" Date: Wednesday 5 February 2020 https://methods.cochrane.org/2019-cochrane-methods-symposium Type: Interactive webinar Co-chairs: Professor Julian...

To facilitate retrieving @dave30th 's excellent STAT article on SMILE (I think it's the best and most succinct account of what happened so far) : BMJ should retract flawed research paper on chronic fatigue syndrome by David Tuller, Statnews, Dec 2019...

I think this is a worthwhile discussion. If someone wants to play devil's advocate: Are there reasonable arguments to not fund the study? (Except cost which is a bad argument for PACE defenders.) In which way could the findings be misinterpreted? Of course, the SMC's history shows how...

In skimming-only mode so don't know whether this has been suggested: Will participants be offered support with mailing the samples? Could be relevant for pwME that have no carers or only tiny support. Perhaps local support groups could organize collection of samples. I think it could...

Just saw this thread about the protocol's never ending amendments and thought I'd link here:

It seems that Karla Soares Weiser will speak at the UK CFS/ME Research Collaborative (CMRC) Conference in March: https://www.eventbee.com/v/uk-cfsme-research-collaborative-6th-annual-science-conference/event?eid=105083142&fbclid=IwAR3MOQhE0TjDljSZMVDLKwfN5k102Sf_zzYEsf9n1TANoU_sJ4_wsavZHo8#/tickets

I think it's helpful to be aware that many pwME don't seem to experience PEM (only) as worsening of daily symptoms, but (also) as another category of symptoms. Also, I think, if differentiated from general fatigue, specific fatiguability can be a useful term for some symptoms occuring before...

Only skimmed all this and first thought the Bero reference could still be a misleading one, only quoted by the autors because the paper's title fitted. Still not sure about this, not able to read it all. Didn't read the following either, but saw the diagram and thought it could be helpful to...

I hope it's OK to post here again a preliminary list of achievements in ME research from another thread, written by @Jonathan Edwardsin response to @DokaGirl : 1. Epidemiological studies have shown that there is a consistent cohort of people, independent of geography, who suffer from a well...

The reference given in the last of the above quoted paragraphs is: Bero LA, Grundy Q. Why having a (non-financial) interest Is not a conflict of interest. PLoS Biol. 2016;14(12):e2001221, https://journals.plos.org/plosbiology/article?id=10.1371/journal.pbio.2001221

Karla Soares-Weiser: Cochrane announces a new, more rigorous “conflict of interest” policy The BMJ Opinion, 03.12.2019...

From the review: "Non-equivalent control groups, lack of blinding and adjustment of assessment criteria revealed that the effectiveness of the intervention for treating Chronic Fatigue Syndrome was exaggerated" Unfortunately that seems to be the case for the review. In Brian Hughes' book the...

Both the opening post and the "slightly different perspective" posted by @JenB seem a bit confusing to me. I don't understand Swedish but from having a look at the document it seems this correction is right and Bragée isn't the principal investigator, but Bo Bertilson (without ("h) @Anna H...

It seems a number of references have been added in an again misleading manner, in particular on 'Outcomes, risks & complications' from fusion surgery. (Edited to add: on the 'Craniocervical instability" page.)

For those who prefer reading to listening: I was happy to read on the podcast webiste:

Stewart, L.G. (2019). Psychology in Crisis.[Review of the book]. International Journal of Educational Psychology, 8(1),105-107, http://dx.doi.org/10.17583/ijep.2019.4065 http://hipatiapress.com/hpjournals/index.php/ijep/article/view/4065/Stewart

From the article that includes the interview (from 2016): Also, from the interview: (My bolding added). Chou's claims quoted in this and the previous post seem to me to be overgeneralizing (at least)? Apologies for repeated editing for clarity.

This one appears particularly strange to me: Children’s experiences of living with CFS/ME: a systematic review and synthesis of qualitative studies https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=9896

Found this in my drafts folder and thought it didn't warrant an own thread so just leave it here. (From July, didn't check for updates) I did some search on PROSPERO (International Prospective Register of Systematic Reviews) https://en.wikipedia.org/wiki/PROSPERO There seem to be quite a...