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Unfortunately, that's exactly what they did:

In my own case, I experience PEM as being a state roughly akin to a severe flu (if one could experience flu denuded of fever and rhinorrhoea) which occurs almost solely in response to physical effort or exertion. Mental effort alone, by contrast, can trigger off a state of exhaustion - often...

That's a brilliant piece of work. Detailed, thorough, forensic, very impressive. Very pleased to see such a comprehensive dissection of the language in the draft (e.g. fixed vs. flexible increases), the wording of which might have allowed for GET-lite and psychotherapies to continue under the...

I don't think that was ever considered true in Britain. I've gone back to a very early medical text, the famous System of Medicine (1911), edited by Sir Clifford Allbutt, and the increased female prevalence was known back then: Other relevant quotes from SoM: I don't doubt it! I once saw a...

I'm not suggesting that patients with MS have never been misdiagnosed as psychiatric (in fact, I specifically made the point that some of the very early signs, depending on the presentation, might well be mistaken for CD). Other symptoms of MS (depression, fatigue, emotional lability) might also...

Don't wish to take the thread off-topic, but there's a claim in Solve M.E.'s letter: I do not know where this myth started, but I've seen it repeated by a number of pwME for many years. It is simply untrue. What we now easily recognise as the characteristic demyelinating lesions of multiple...

Interesting. They're right to bemoan the lack of patient inclusivity and the "misguided" treatment that some of them have received, but: It's even more unwise to disregard what is already known about a condition that commonly presents post-virally and has an extraordinarily high level of...

Unfortunately, Paul Garner accepted a somewhat psychosomatic framing of his illness in an earlier account back in June: The model his physiotherapist was describing sounds more akin to PTSD than ME. And a few of those with self-limiting PVFS also have a tendency to attribute their recovery...

On the 12th of November, NIHR announced a £20m research call, closing on the 9th of December: https://www.nihr.ac.uk/news/new-20m-call-for-research-into-physical-and-mental-effects-of-long-covid/26163 They also announced on the 10th of December that they were funding projects totalling £5.5m...

Is it common for non-British treatment centres to seek to involve themselves in NICE reviews? Looking at the CG53 table of comments and the stakeholder consultation comments from the 2017 10-year guideline update proposal - I see British charities and support groups, the Royal Colleges...

I don't wish to dwell too much on such a ludicrous aura-seeing, tarot-card reading huckster as Philip Kilvington Parker, but I recently came across his PhD thesis from September 2019, and thought others here might find it interesting. It's based around a close variant of the LP he called "The...

From the same author (emphases mine): Extraordinary that she can be awarded a PhD for her work on a condition of which she evinces no fundamental understanding whatsoever.

The GP quoted in this article, Tomlinson, is also quoted here as saying "[t]here is no one for whom the problem of chronic pain is not a symptom of complex trauma." Such views would be laughable if they were not so deeply damaging.

One often overlooked reason is medical education: rare is the medical student who has never been taught "not to reinforce psychosomatic presentations", or something similar. If you have been taught to believe that sympathy with or even genuine acknowledgement of a patient's suffering may result...

I wasn't arguing for an entirely separate ME service, @Jonathan Edwards, but against the uniform approach of the PPS/MUS clinics in particular. I'd be entirely happy for ME patients to be seen in general clinics - I was originally diagnosed in a general clinic by an endocrinologist. Also, with...

She's mistaken; the development and peak popularity of psychosomatic medicine obviously predates this. I have in front of me a British medical text ca. 1950 that attributes some level of psychosomatic causation to peptic ulcer, "spastic and mucous colitis", chronic constipation and diarrhoea...

At the risk of taking this thread off-topic, I've been thinking about what may occur after the new guidelines are released, assuming of course that the committee doesn't buckle under the inevitable fusillade from the psychosomaticians. Most CCGs will surely expect their currently commissioned...

The section on the level of care needed to support those with severe and very severe impairment, and in particular the nature and extent of sensory sensitivites, is very welcome, having been ignored by CG53. The guidelines make frequent reference to health care professionals "who have training...

I'm a little late to noticing this new BACME position paper, but a few brief comments: BACME should be challenged to explain what they understand to be "the biological aspects of ME/CFS" - I'd expect a vague statement about abnormal stress responses or similar such handwaving. They do not...

I've had a diagnosis of NDPH from a number of years ago, as I developed a new-onset headache with the infection that led to my developing ME, and the headaches were serious enough for me to request a neurology referral. After an MRI to exclude secondary headache and after trying a number of...