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  1. Wyva

    Physical and Mental Fatigue in Subjects Recovered from COVID-19 Infection: A Case–Control Study, 2021, Elanwar et al

    Purpose: Much effort has been directed toward studying COVID-19 symptoms; however, the post–COVID-19 phase remains mysterious. The aim of this work was to conduct a clinical and neurophysiological evaluation of physical and mental fatigue in COVID-19 long-haulers and to study whether markers of...
  2. Wyva

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thank you for informing us of all this, it is very useful, @Dx Revision Watch I may be off-topic but I started digging around a bit to see what's going on with other diseases that get mentioned a lot on this forum. Here is what I found if someone's interested: 1. In ICD-10 (I'm looking at the...
  3. Wyva

    Which countries have ditched the BPS approach or removed CBT/GET from their guidelines?

    Apart from the US and the UK, of course. I'm looking for any other countries, even if they just quietly removed the CBT/GET recommendations, so that I can give more examples to my GP to show him that a shift is happening. (This is in connection with the possible ME/CFS clinic he has in mind.)
  4. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Breaking news! (?) I just came back from my GP and it turns out he cannot diagnose me with ME/CFS because GPs cannot add these kinds of diagnostic codes like that, it won't show up in the system. And because there is no one who diagnoses you with this, he is trying to refer me to that...
  5. Wyva

    News from Aotearoa/New Zealand and the Pacific Islands

    Epic e-scooter trek to support charity I wonder how he'll manage the unpredictability of the illness but maybe longer breaks will be added when necessary. I myself rarely have six good days in a row (but that's just me of course). He is raising funds for ANZMES, by the way. “It will be a test...
  6. Wyva

    Long Covid epidemiology (prevalence, incidence, recovery rates)

    Moved post Guardian article: Why are women more prone to long Covid? The explanation mostly comes from Akiko Iwasaki, and a more robust immune response, T cell activity, autoimmunity are mentioned but also that these kind of diseases are taken much less seriously due to the fact that women are...
  7. Wyva

    Covid-19 vaccination experiences

    I also had my second Astrazeneca vaccine, after three months. Me: mild/moderate, in my 30s. I had quite strong but otherwise normal side effects with the first vaccine the following day. People say that the second AZ shot has only very mild side effects but for me this wasn't the case: I didn't...
  8. Wyva

    25% M.E. Group

    They sent a letter to NICE in connection with the guidelines. The text of the Facebook post:
  9. E

    25% M.E. Group

    25% ME Group stance on exercise https://25megroup.org/25-me-group-stance-on-exercise https://25megroup.org/wp-content/uploads/2020/08/25-ME-Group-stance-on-exercise.pdf We are the 25% ME Group Charity, the only charity concerned specifically with the needs of those most severely affected by...
  10. Wyva

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Copied post They sent a letter to NICE in connection with the guidelines. The text of the Facebook post:
  11. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Nature: The four most urgent questions about long COVID Quite a long article, in short: - How many people get long COVID and who is most at risk? - What is the underlying biology of long COVID? - What is the relationship between long COVID and other post-infection syndromes? - What can be done...
  12. Wyva

    Media items about obesity

    Also EBV, but I was very athletic when it hit me. I did 1000 calorie workouts regularly without a problem, I was slim and visibly muscular (not bodybuilder level though). I still developed ME. :( (As a sidenote, naturally I started working out again almost right away, although I wasn't capable...
  13. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    All the energy was sucked out of my soul and my bones Another, originally English article has reached Hungary, this time based on this one in Time: https://time.com/6051767/long-covid-19-rare-disease-pots/ It is about post-covid syndrome and that many long haulers have POTS and ME/CFS. It is a...
  14. Wyva

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    His source is from 1977. I love this reply to him (click on the gif in the tweet): :rofl:
  15. Wyva

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Well, in connection with the right and wrong patient "activist" behaviour: AIDS activists back then poured fake blood on people, they stormed schools with pamphlets that warned teenagers of the dangers, they put a giant condom on a senator's house, etc etc etc, the list is really long. When have...
  16. Wyva

    Livestrong: 5 Tips for Maintaining a Fitness Routine With Chronic Fatigue Syndrome

    New article! And no, I think you don't want to know but in case you are in a bit more masochistic mood: 6 Ways to Cope With Chronic Fatigue Syndrome It is quite detailed but in short: - seek the correct diagnosis - address sleep problems - eat a wholesome balanced diet - drink water...
  17. Wyva

    BPS attempts at psychologizing Long Covid

    This is an older post but I just had an encounter with this man posting these videos. It was in a FB group called something like Covid research and all the rules there are about serious science, no pseudoscience etc, they even ask if you are a researcher when you join. They welcome researchers...
  18. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Is this a common occurence in the world? o_O And what is wrong with "over-investigation"? My Hashimoto is so mild that it would have never been discovered so early without the thorough exlusionary diagnostic process for ME/CFS that I'm going through. But even without that, what is so wrong about...
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