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Structured Abstract Objectives. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can have profound effects on function and quality of life. This report updates a 2014 Agency for Healthcare Research Quality (AHRQ)-funded review in order to synthesize the evidence on evaluation and...

Psychology Today: COVID-19, Chronic Fatigue Syndrome, or Both? Long-COVID syndrome and its impact on how we perceive and research CFS. I'm still quite brain-fogged but I couldn't find anything pointing to any BPS agenda in the article, it seems to just simply state the possibility of the...

So I wanted to include this because we don't seem to have a lot of ME/CFS specific quackery going on in Hungary but we do have c-peptide, which seems to be a very local wonder drug, the number of people who swear by it is astonishing. It is not specifically for ME/CFS but they claim it cures all...

Do you think you have Chronic Fatigue Syndrome? Here's what you need to do There's an entire podcast with a South African doctor about ME/CFS, which I unfortunately can't listen to right now due to PEM. But it looks good. "Pippa Hudson talks to Cape Town medical doctor Elizabeth Murray, who...

OK, so my plan right now, as a layman: - Get my cytokines tested to see what is going on. I'll do this privately because I'm frustrated by how slowly my diagnosis (by excluding everything) is happening with my doctor (6+ months now). Currently they only test for INF γ and IL-4. The bigger test...

@Ravn I've also found this Montoya study on treating people with higher IgG antibody titers against EBV and HHV-6 with the antiviral valgancyclovir. Quote: "Biological endpoints included monocyte and neutrophil counts and cytokine levels. (...) In the VGCV arm, monocyte counts decreased (P <...

Oh wow, good! Maybe they received a lot of complaints.

Ask an Exercise Physiologist: Hacks for burnout and struggling with fatigue The question: I suffer from Chronic Fatigue Syndrome (coming up to 12 years). I was wondering if there are any hacks for preventing burn-out and CFS? Whenever I’m overwhelmed and stressed, my exercise routine is the...

U.S. News: In Long COVID, Advocates Battling Chronic Fatigue Syndrome See Allies, Hope Another good quality article that goes into detail about the subject, particularly the fact that biomedical research into ME/CFS is seriously underfunded. "Members of Congress have also taken note. At the...

Deep phenotyping of myalgic encephalomyelitis/chronic fatigue syndrome in Japanese population https://www.nature.com/articles/s41598-020-77105-y

I'm asking because for me they seem to be consistently slightly elevated, in the 8.5-9.5 range. Not that I have a million test results but the few I have are consistent and this is the only value that is off. I have very very mild Hashimoto's thyroiditis and I asked the endocrinologist at the...

"They know almost nothing about it here, although it has ruined life for many of us" - a misunderstood disease, chronic fatigue syndrome This is an article with ME, both literally and figuratively. :) This is the one with the journalist that I messaged a few weeks ago about correcting what that...

(I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do something like that pretty interesting Norwegian survey with 6000 pwME participating that showed there was a peak in onsets in 2009, probably due to H1N1...

I've found another decent article. This particular page is a very popular health website for the general public and from what I've seen, even their previous (few) articles on ME/CFS are pretty good, they don't push the BPS approach at all, on the contrary. They very obviously base many of their...

She also wrote an article in The Washington Post about how ME/CFS affected her ability to participate in social/religious activities and how it was kind of a blessing to her when all these things had to be carried out online due to the pandemic. For years, my chronic illness kept me isolated...

ME battle ‘must not be repeated with long Covid’, says chair of Cambridge support group Great article in the Cambridge Independent where Dr Mark Harper, chair of the local ME support group shares his thoughts on several different topics, including long covid, GET, CBT and the current revision...

Some COVID-19 long-haulers are developing a 'devastating' syndrome Very good and quite detailed article, featuring Alain Moreau and Lucinda Bateman and also quoting Anthony Fauci (what he said at that meeting of the American Academy of Neurology recently). "Worryingly, Moreau said a lot of the...

"Had Michael Sharpe handcuffed himself to the front entrance of the NICE offices in protest at the draft recommendations?" :rofl:

Sure! I had already shared it before but it was a long time ago. :) ME/CFS and the covid vaccines: https://www.facebook.com/groups/226441995768222 I haven't really checked it lately, after being vaccinated myself but I think if you click on "Announcements" you can also find some links to some...

Medical News Today: Long COVID and children: The unseen casualties of COVID-19 https://www.medicalnewstoday.com/articles/long-covid-and-children-the-unseen-casualties-of-covid-19 Quite a long article, focusing a bit more on personal experiences (coming from the moms who mostly get blown off by...