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  1. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Trial By Error by David Tuller: Another Letter About BMJ's Music Therapy Study I am still waiting for answers from BMJ about the Norwegian study of cognitive behavior therapy plus music therapy for treatment of chronic fatigue in adolescents after mononucleosis. The study was published in BMJ...
  2. Kalliope

    Chronic fatigue syndrome may hold keys to understanding post-Covid syndrome: David Tuller and Steven Lubet July 21, 2020

    Great opinion piece! Many thanks to the authors! STAT has shared it on social media, for those who want to like and/or comment there
  3. Kalliope

    NICE Statement about graded exercise therapy in the context of COVID-19

    It's also the same journalist who wrote the BMJ article Pressure Grows on Lancet to review "flawed" PACE trial
  4. Kalliope

    Cochrane Database Syst Review - Psychosocial interventions for conversion and dissociative disorders in adults (2020) Ganslv et al.

    Trial By Error by David Tuller - No Evidence for CBT and Other "Conversion Disorder" Therapies The new review is an update of a 2005 version. Its stated objective was “to assess the beneficial and harmful effects” of the psychosocial interventions in question, several of which were forms of...
  5. Kalliope

    Anyone have trouble with blood draws?

    I just heard today of a young ME sufferer where it took ages to fill up the glasses when drawing blood. This was not the first time this had happened and I think they just had to in the end give up drawing as much as was intended. When searching on the forum, there are a few threads on this...
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Chicago Tribune: COVID-19 patients could be at risk for chronic fatigue syndrome: "Your whole life can change if you get this" Jason says that when chronic illness sets in, patients tend to question why they can’t resume their previous lifestyle. But if researchers get out ahead of this now...
  7. Kalliope

    A Life Hidden - Blog posts by Naomi Whittingham

    I am so, so sorry to hear this :broken_heart: Sending you a virtual hug :hug:
  8. Kalliope

    Pacing - what do you do/how would you describe it?

    That's such an important point. Pacing is a way to do as much as is possible.
  9. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Now shared on Facebook. The Scientist has over 2 million followers there.
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I thought at first it was the PACE trial they meant :laugh: You make a good point and perhaps it's even the opposite that's true? Wasn't it the XMRV saga that got Ian Lipkin into ME research, for instance?
  11. Kalliope

    Tell Your Representative to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!

    The "Take Action" link doesn't work. Is it just a temporary glitch, or is there another link which is better to use?
  12. Kalliope

    A Life Hidden - Blog posts by Naomi Whittingham

    Another beautifully written and though provoking article from Naomi Whittingham. She describes among other how the medical gaslighting she experienced as a young, very severe ME sufferer has consequences for her today when deciding what the right precautions are for her as society is opening...
  13. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Scientist - Could COVID-19 Trigger Chronic Disease in Some People? The disease—formerly known simply as chronic fatigue syndrome, or CFS—has long been stigmatized to the point of being ignored by many physicians and researchers, in large part due to its mysterious etiology. Doctors would...
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Seems the journalist gets the message. Hopefully the article will be swiftly corrected concerning exercise as treatment approach.
  15. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Conversation: Coronavirus: why are some people experiencing long-term fatigue? by Frances Williams, prof. of Genomic Epidemiology and Hon Consultant Rheumatologist, King's College London Chronic fatigue doesn’t lie within the remit of a single medical speciality, so it’s often overlooked on...
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