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  1. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Fox10 Phoenix "Today is day 93": People report experiencing COVID-19 symptoms that last for months Dr. Mady Hornig, an immunologist and professor of epidemiology at Columbia University who is currently researching the long-term effects of a viral infection like COVID-19, has been confronted...
  2. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    BMJ - Paul Garner: Covid-19 at 14 weeks - phantom speed cameras, unknown limits, and harsh penalties What is worse is that there is increasing evidence that some doctors are dismissing this illness. People write, “I am desperate! My doctor says I have anxiety, but I know this stuff is real”...
  3. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    Abstract: BACKGROUND:Cochrane recently amended its exercise review for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in response to an official complaint. OBJECTIVE:To determine if the amended review has addressed the concerns raised about the previous review and if exercise is...
  4. Kalliope

    DecodeME - UK ME/CFS DNA study underway

    Wonderful that it's available for all to see! Yes, it was excellent :thumbup:
  5. Kalliope

    DecodeME - UK ME/CFS DNA study underway

    (Article with interview of Muirhead is paywalled)
  6. Kalliope

    Open Book: On Reclaming Brokenness and Refusing the Violence of "Recovery Narratives" by A.H. Reaume

    Spotted this on twitter today and warmly recommend it! It took me a while to realize that the way I saw myself and the way I was treated was directly caused by the harmful cultural stories we tell about injury and disability and health and accommodation and value. Those wrong maps are the...
  7. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    A Norwegian news site for research has written an article about the music therapy study. The journalist is Ingrid Spilde who has written several good articles about ME research before (including the PACE trial). It seems she's actually read the study and sees through the spin. Wyller is...
  8. Kalliope

    Sweden - RME news

    I was wondering the same, but now I see he's going to attend via video
  9. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Here's a presentation of Simone Ragavooloo, the Research Integrity Coordinator from BMJ: With formal academic qualifications in biological sciences and extensive experience across both the production and editorial branches of Science, Technology, Engineering and Mathematics (STEM) publishing...
  10. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Trial By Error: BMJ Responds to Appeals About Norway's CBT-Music Therapy Study This morning, I received a message from BMJ’s “research integrity coordinator.” Hm. That seems like an important position at BMJ, given what appears to be a major lack of research integrity in some of the papers I...
  11. Kalliope

    Sweden - RME news

    Merged thread ME conference on PEM 14-15th Oct 2020 The Swedish patient organisation RME is organising an ME conference about PEM. 14th October in Stockholm 15th October in Malmö Lecturers Prof. Kristian Sommerfelt - University in Bergen, Norway Prof. Betsy Keller - Ithaca College, USA Dr...
  12. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Wyller has written a reply to an opinion piece by Sigmund Olafsen (shared in the News from Scandinavia thread here). Once again he defends the research supporting CBT as treatment for ME and even Lightning Process. Claim # 1 - on lack of results - is easily refuted by a quick search in PubMed...
  13. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    OMF has translated the interview into English Covid-19 and ME News Flash from Uppsala
  14. Kalliope

    News from Scandinavia

    Nina E. Steinkopf has taken a further look into rulings in the National Insurance Court in Norway regarding benefits for patients with ME. It's heart breaking to read these rulings. about how ill the patients are and about everything they've tried, yet the court believes more treatment, as CBT...
  15. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Uppsala University with article about prof. Jonas Bergquist who is going to investigate samples from Covid-19 patients and believes this may provide important information for research into ME. He also talks a bit about how the pandemic has affected ME patients - Today, in ME patients, we are...
  16. Kalliope

    News from Scandinavia

    The Norwegian ME Association has a guest blog from father to a son who suffers from ME. He tells how he regrets following prof Wyller's advice on trying Lightning Process as treatment. The father is a therapist himself with additional education in cognitive theory and thought LP was the same as...
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