Wirral MP highlights findings in The Brain Charity’s report on diagnosis of neurological conditions
https://www.birkenhead.news/wirral-mp-highlights-findings-in-the-brain-charitys-report-on-diagnosis-of-neurological-conditions/
eta:
report here
It’s all in your head report: The Brain...
The page linked to above has gone.
There is this page (not sure if it was there before), seems OK.
https://www.thebraincharity.org.uk/condition/chronic-fatigue-syndrome/
Their Youtube channel
Institute for Neuro-Immune Medicine
@NSU_INIM1.55K subscribers 69 videos
Description The Institute for Neuro-Immune Medicine (INIM) is a premier research and treatment center for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Gulf War illness (GWI), and...
Debbie Abrahams Labour, Oldham East and Saddleworth
To ask the Secretary of State for Health and Social Care, when his Department plans to release a delivery plan for Myalgic Encephalomyelitis, Chronic Fatigue Syndrome; and if he will make a statement.
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Hansard source(Citation: HC...
This came up on a search
the link goes to a 2009 article
Using a DVD to help people with chronic fatigue syndrome learn the technique of pacing
which is actually a published paper from 2009.
It goes through the usual 'boom and bust''.
it is pre publication of PACE and actually seems to...
Links between Serotonin Levels and Stress: Cortisol, Candida A./Mycetes, Omega 3/6 Ratio and Dysbiosis (Skatole/Indoxyl Sulfate) Role in Chronic Fatigue Syndrome (CFS) and Depression
Orlandoni et al
Abstract
Intestinal microbiota attracts daily attention of a growing number of study which...
ASA Ruling on The Chrysalis Effect Ltd
Upheld
06 September 2023
full report here
https://www.asa.org.uk/rulings/the-chrysalis-effect-ltd-g22-1164009-the-chrysalis-effect-ltd.html
from the first page of the pdf linked to at https://www.gov.uk/government/consu...rove-the-lives-of-people-with-mecfs-easy-read
Not a good start; not how 'We' say it...
merged
New drug thought to cut migraine attacks by half could be available within months (msn.com)
eta:another article with more info
'Life-changing' tablet that tackles common illness could be available in UK by Christmas (msn.com)
The new NICE guidelines specifically say that CBT should not be offered to pwME/cfs as a 'cure' or 'treatment' for ME but as a coping mechanism for living with a chronic condition.
Therefore any of the CBT for CFS (or ME/CFS) based on the deconditioning/psychosomatic model should now be invalid...
“We can’t tell you what proportion recover, we can only tell you what proportion clinically significantly improve”
http://www.cbtwatch.com/we-cant-tell-you-what-proportion-recover-we-can-only-tell-you-what-proportion-clinically-significantly-improve/
eta: Jeremy Vine BBC Radio 2 'medical...
yes; why I posted it.
also note the use of 'may improve' in the full paper becomes a definitive 'improve' in the short version. How many other Cochrane reviews do this I wonder?
also
didn't stop the group who did the exercise for cfs review.
Are interventions for fatigue effective among people with kidney failure requiring dialysis?
What is the issue?
Fatigue is a frequent and debilitating symptom that can limit life participation in people receiving dialysis. Fatigue is linked to impaired quality of life, cardiovascular disease...
The cost of sequencing continues to decrease. Now is the right time to start using next-generation sequencing to answer your scientific questions and further your research goals
https://www.genengnews.com/sponsored/ngs-answers-ambitious-questions/
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