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  1. Sly Saint

    The Brain Charity - website content on ME/CFS

    Wirral MP highlights findings in The Brain Charity’s report on diagnosis of neurological conditions https://www.birkenhead.news/wirral-mp-highlights-findings-in-the-brain-charitys-report-on-diagnosis-of-neurological-conditions/ eta: report here It’s all in your head report: The Brain...
  2. Sly Saint

    The Brain Charity - website content on ME/CFS

    The page linked to above has gone. There is this page (not sure if it was there before), seems OK. https://www.thebraincharity.org.uk/condition/chronic-fatigue-syndrome/
  3. Sly Saint

    INIM 2023 Conference on May 19 2023 (Institute for Neuro-Immune Medicine NOVA SOUTHEASTERN UNIVERSITY Florida)

    Their Youtube channel Institute for Neuro-Immune Medicine @NSU_INIM1.55K subscribers 69 videos Description The Institute for Neuro-Immune Medicine (INIM) is a premier research and treatment center for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Gulf War illness (GWI), and...
  4. Sly Saint

    Gupta amygdala training program for ME/CFS, FM and Long Covid - news and discussion

    Gupta crowdfunding for research full details here https://guptaprogram.com/es/crowdfunding/ posting for info only not a recommendation to donate.
  5. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Debbie Abrahams Labour, Oldham East and Saddleworth To ask the Secretary of State for Health and Social Care, when his Department plans to release a delivery plan for Myalgic Encephalomyelitis, Chronic Fatigue Syndrome; and if he will make a statement. Tweet Share Hansard source(Citation: HC...
  6. Sly Saint

    UK: Old info on Nursing Times

    This came up on a search the link goes to a 2009 article Using a DVD to help people with chronic fatigue syndrome learn the technique of pacing which is actually a published paper from 2009. It goes through the usual 'boom and bust''. it is pre publication of PACE and actually seems to...
  7. Sly Saint

    Links between Serotonin Levels and Stress: Cortisol, Candida A./Mycetes, Omega 3/6 Ratio and Dysbiosis.., Role in (CFS) and Depression

    Links between Serotonin Levels and Stress: Cortisol, Candida A./Mycetes, Omega 3/6 Ratio and Dysbiosis (Skatole/Indoxyl Sulfate) Role in Chronic Fatigue Syndrome (CFS) and Depression Orlandoni et al Abstract Intestinal microbiota attracts daily attention of a growing number of study which...
  8. Sly Saint

    USA: Leonard Jason podcast on his 48 year career at DePaul University

    Leonard Jason Podcast for the DePaul Psychology Department
  9. Sly Saint

    The Chrysalis Effect

    ASA Ruling on The Chrysalis Effect Ltd Upheld 06 September 2023 full report here https://www.asa.org.uk/rulings/the-chrysalis-effect-ltd-g22-1164009-the-chrysalis-effect-ltd.html
  10. Sly Saint

    UK Government ME/CFS Delivery Plan consultation

    who wrote this? it needs scrapping and writing again. if this leaflet is an example then god help us.
  11. Sly Saint

    UK Government ME/CFS Delivery Plan consultation

    some of these photos are dreadful
  12. Sly Saint

    UK Government ME/CFS Delivery Plan consultation

    from the first page of the pdf linked to at https://www.gov.uk/government/consu...rove-the-lives-of-people-with-mecfs-easy-read Not a good start; not how 'We' say it...
  13. Sly Saint

    Migraine treatments

    merged New drug thought to cut migraine attacks by half could be available within months (msn.com) eta:another article with more info 'Life-changing' tablet that tackles common illness could be available in UK by Christmas (msn.com)
  14. Sly Saint

    Cochrane Review: Cognitive behaviour therapy for chronic fatigue syndrome in adults, 2008, Price et al

    The new NICE guidelines specifically say that CBT should not be offered to pwME/cfs as a 'cure' or 'treatment' for ME but as a coping mechanism for living with a chronic condition. Therefore any of the CBT for CFS (or ME/CFS) based on the deconditioning/psychosomatic model should now be invalid...
  15. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    “We can’t tell you what proportion recover, we can only tell you what proportion clinically significantly improve” http://www.cbtwatch.com/we-cant-tell-you-what-proportion-recover-we-can-only-tell-you-what-proportion-clinically-significantly-improve/ eta: Jeremy Vine BBC Radio 2 'medical...
  16. Sly Saint

    Cochrane review: Interventions for fatigue in people with kidney failure requiring dialysis

    yes; why I posted it. also note the use of 'may improve' in the full paper becomes a definitive 'improve' in the short version. How many other Cochrane reviews do this I wonder? also didn't stop the group who did the exercise for cfs review.
  17. Sly Saint

    Cochrane review: Interventions for fatigue in people with kidney failure requiring dialysis

    Are interventions for fatigue effective among people with kidney failure requiring dialysis? What is the issue? Fatigue is a frequent and debilitating symptom that can limit life participation in people receiving dialysis. Fatigue is linked to impaired quality of life, cardiovascular disease...
  18. Sly Saint

    NGS (Next Gen Sequencing) Answers Ambitious Questions

    The cost of sequencing continues to decrease. Now is the right time to start using next-generation sequencing to answer your scientific questions and further your research goals https://www.genengnews.com/sponsored/ngs-answers-ambitious-questions/
  19. Sly Saint

    CASE STUDY: Out of the ordinary

    http://www.itij.com/latest/long-read/case-study-out-ordinary
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