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In other words, when checking fruit in a greengrocer, like bananas, tomatoes, clementines, pears, strawberries, it is important to check for black spots on them because it might turn out that it is a black spot fruit.

If there is a concern that making protocol available might cause harm (?) then maybe that is even more of a reason to make it available.

Good point, but it's still not 'the SMC portraying...' quite. Of course it would always be legitimate to slip in to the SMC Wikipedia page the point from George Monbiot that it was set up by an group run by a man who now works for Victor Orban.

@Dania Ala, As the patient members have pointed out, we need a protocol. Also, your attempt to reassure on the basis that it conforms to BOS guidelines seems naive and is likely to raise a smile with many members. Everyone is trying to be constructive and positive in the sense of encouraging...

I agree. My main thought is that you are unlikely actually catch these people saying any of this on SMC posts. And the SMC itself offers no opinions of its own.

Clearly a 'trip' of the spellchecker.

As one would hope psychologists would be particularly aware of.

I am not sure that the antibody reactivity can really be called an autoantibody. They seem to have identified it using peptides and antibodies to peptides are very hard to interpret in terms of real-life in vivo antibody reactivity. If the peptides also look like lots of micro-organisms maybe...

It's a mixed bag. Caroline is very good at what she does but I am not sure that she has any particular experience with trials. The COMET initiative is a Delphi approach, which tends to be the worst way to do things. Eminence based medicine. The MS study would be relevant if we had six drugs to...

The real problem is that nobody has any clear idea what drugs to test, except naltrexone. Applications for funding for naltrexone trials have been turned down. I am a bit sceptical about broad brush overviews of 'core outcome measures' when each type of trial needs outcome measures tailored to...

They are part of the government research working party initiative. Monica Bolton has been organising these - she is interested in naltrexone.

Dania, I am a professor of medicine who has spent a lifetime in medical research. I am a member here because I am interested in improving research quality for ME/CFS. Your study cannot do what you want it to do. You cannot increase the understanding of the science community about people's...

I thought the published findings on antibodies to flagellar proteins was intriguing. This might end up another blind alley but it is the sort of thing that I think is worth working through. It has a focus that a lot of microbiome projects don't.

That is what we call growing up. Or life. ME/CFS plays havoc with growing up. I would ask @Dania Ala to give us details of why this enquiry is being made. Most enquiries of this sort seem to be part of psychology courses and research methodology in psychology tends to be very poor and heavily...

Yes, that sounds familiar. But the abstract suggests that the authors genuinely do not distinguish fatigue from sleepiness.

The abstract suggests a confusion between fatigue and sleepiness. My understanding of ME/CFS is that sleepiness is not the problem. I have experienced fatigue after Covid. I also experience sleepiness from time to time - often early afternoons. The two things seem to be quite unrelated...

For me it downloads as a Word document. I can save that to my desktop and attach it to a message using the paper clip sign. As below.

I don't think the SMC has ever portrayed ME/CFS as psychological. The first thing is that SMC just gets other people to give opinions. The second is that BPS people never give the opinion that ME/CFS is psychological - always that it is multifactorial. I think suggesting that people claim...

Can you explain what identity construction means?

Thanks @tuppence Apparently I am not allowed to start a conversation with your address? I am interested in the legal cases. Can you set up a conversation?