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so did you get a lupus diagnosis? And you also have a CFS or ME diagnosis?

Good question.

Are you referring to the courage of parsing the paper or the courage of submitting to the peer-review process? That to me is equally a void.

Steve Lubet of Northwestern University and i wrote a response to Sharpe/Greco. It has been through two rounds of peer review and was finally accepted for publication yesterday. It should be out within 3-4 weeks.

Hi, yes--funding my job is the same as funding the project. My Berkeley job is to conduct the Trial By Error investigation, even though I publish it on the website of a Columbia colleague. I started it as a side project when I had other Berkeley responsibilities. When that funding ran out, I...

When I was in Australia, I found people (patients and the main ME doctors) making a very sharp distinction between post-viral fatigue syndrome and what they called chronic fatigue syndrome or more often "chronic fatigue" but that would be called ME in the UK. At least, it was a much sharper...

yes, this is what's supposed to happen but for a couple of people it didn't--one other person besides Wonko had the same thing happen. --Berkeley is trying to figure out where the glitch is and fix it. Of course, anyone who over-donated will get reimbursed--either by the system or by me...

Of course, I will refund any money personally if it comes to that. The $10 button was added specifically at my request. I don't have access to the back workings but I will alert the administrator. It went up automatically at midnight in California, so I assume any issues won't get taken care of...

I'll take a look. soon I can get back to some regular blogging I think. it feels like everything publicly discussed has to involve coronavirus at the moment.

yes, I was thinking about this. Like the CBT program for IBS I've been writing about. Now they can say, and this is even better given the coronavirus era. It is a bit worrisome.

i just don't really get the concept of something, much less back pain, being a "risk factor" for having biomedical beliefs. and that biomedical beliefs are I guess defined as bad. it's very perverse.

I decided not to go. I'm really disappointed not to be there, but I was concerned about getting entangled in international travel restrictions/cancellations and geographic lockdowns and not being able to get back to US. Berkeley has cancelled on-campus classes and moved them all online at least...

It's the same with HIV-related fatigue. The concept depends on the worry being excessive and/or unwarranted. Just because it is not linked to a specific pathophysiology does not give them the authority to decide that concern about it is excessive or unwarranted.

I'm supposed to fly to London on Sunday afternoon to go to the CMRC gathering on Tues/Wed. I change my mind every 15 minutes about whether I should or should not board the flight. University of California has asked us to restrict "non-essential" travel to the most hard-hit countries, a list that...

well, in that or another presentation, CFS was described as comparable to suffering from really bad jet lag--like, really bad.

I'm confused by this. What kind of gathering, and was there some thought they were exposed to coronavirus at the gathering? Who told them to isolate themselves or did they decide on their own?

Thanks, I'll take a look.

exactly. I face this constantly.

Emergency rooms are required to take everyone, so unfortunately in the US those without health insurance often use that as their primary care. Now something like this could cause even more over-crowding in emergency rooms than usual.

A question: Are people with ME particularly worried about coronavirus along with other groups who might have compromised immune systems? Are folks taking any particular precautions? Just curious.