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Sometimes if people have competing theories and different directions it makes sense to keep them separate. Trying to force groups together can cause conflict. If there are two different bets at Stanford that seems like a good idea. However it is a shame they don't share samples and other equipment

I've no idea what is in his mind. But the thing that seems really important is the way the review mechanism is set up and who is pulled onto the committee. This is what needs to be analysed/commented on and influenced. Then there is the evidence that gets looked at. My feeling is that there is...

I think we may register as a charity in which case we could probably register as a stakeholder. Do organizations need an 'official status' Do you know if there is any definition of a group?

I think that is why Baker's comments of the formation of the committee are particularly important. Sounds like he knows the guidelines are bad and they will remain bad if the committee is the same as before. Given their previous chair's 'training videos' pushing GET and her husband then I...

Also a lot of the rules apply to drug trials only so trials of other interventions such as CBT are not as heavily regulated.

There were minutes from the MRC published somewhere (I think as an appendix in a welfare report) where Sile Lane and MRC representatives signed up to saying that FoI and parliamentary questions were harassment. I assume she will give the same message to the select committee that if they ask...

Universities may be trying to run like companies but they are very different (at least from US companies). One big think is around lines of management which are clear in companies with people being judged by profit. Its common for senior managers in companies to get sacked/move on when they...

I don't think people with ME have a very loud voice in that is it hard to be heard in the media. Although there have been a limited number of good stories over the last few years, If, however, as Crawley asserts that people with ME don't have a voice the answer is not to speak for them without...

https://app.box.com/s/fjgmknca41hp5twmtzuwt2g9do1dksb0

I took it as a lack of imagination with a need to do a trial to further her career and that she couldn't think of anything better. But motives are always hard. Perhaps she was taken in by patents interest and anecdotes of success. But the process of asking the ethical questions and the design of...

Its an interesting situation because does Bristol University have the right to label it as such given the DPA and FoI. The "it is my understanding" part perhaps suggests that they lawyers are not fully aware and hence it may become hard to argue it is done under attorney client privileged?

The lawyers duty is to Bristol University and not to EC. Surely they have a duty to do the right thing for Bristol and not necessarily for EC. Hence if she is not telling the lawyers the full story then they have a duty to make sure they ask so that they protect the Universities legal position...

I think Valarie has been helping David. You can mix FoI and Subject access requests. https://ico.org.uk/for-organisations/guide-to-freedom-of-information/refusing-a-request/

I wondered if she knew exactly what she was saying and it reflects her unhappiness at the situation. Why else say no we didn't send a cease and desist letter but tried to apply pressure through back channels. She is the director of legal services at Bristol so I doubt she is naive.

British universities are getting a very bad reputation for their failure to deal with complaints and for governance in general. There have been a number of issues around universities failing to deal with sexual harassment allegations against staff. The latest issue to hit university governance...

I assume that the Berkeley don't seem to have told David means that the quiet word didn't work. It is a very british establishment thing to do. But it does say that Bristol University is backing Crawely at a senior level and I suspect it also means they are doing so without any level of...

That's trying to look at the relationship between variables. I was wondering if anyone had taken the question answers as a vector and looked for clusters between different patients. Depending on the distance metric used that can show interesting things. But also worth removing noise like...

Derya Unutmaz suggests it was a good event and a transcript will be posted at https://www.nih.gov/mecfs/events

Has anyone done a cluster analysis on the different answers?

Especially for a child.