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Seems like others are fed up of mice & rats models (a new and still young but promising twitter account):

Trial By Error: My Latest Letter to Bristol http://www.virology.ws/2019/04/09/trial-by-error-my-latest-letter-to-bristol/

Jackson laboratory's blog on the summit: BHC: Second Annual Meeting for ME/CFS Clinician Coalition https://jaxmecfs.com/2019/04/09/bhc-second-annual-meeting-for-me-cfs-clinician-coalition/

This left me perplexed. Is it complete quackery or a promising diagnostic method? https://www.tandfonline.com/doi/abs/10.1080/15622975.2019.1599143?journalCode=iwbp20

Changes: reference to the Cochrane review and the PACE trial in the treatment part new paragraph about the mechanism of change: Relies on Chalder's research, so just a big joke Another ridiculous claim (already in the former edition though): (even with their biased methodology, there is...

Not implying that people who disagree with you are not intelligent enough, naïve or that what they say is systematically misleading would be good start. Just saying.

@Graham made a video about funding in the UK.

Why are there so many case studies? Does someone know if it is something that was asked for the presentations?

I find it very confusing and not very convincing so far.

The survey was initiated at NICE demand so I guess they can't totally ignore it. https://www.s4me.info/threads/forward-me-group-minutes-–-21st-november-2018.7575/#post-134680 It's been done by an academic. So maybe, it will have more weight. Edit: crosspost with Gecko

Thread about the results here.

As a reminder, this is the survey that was launched to be presented to NICE in the context of the ME/CFS guidelines review. See this thread: https://www.s4me.info/threads/forward-me-group-cbt-get-survey-tell-nice-your-experiences.7611/

The new @dave30th 's article http://www.virology.ws/2019/04/02/trial-by-error-this-years-us-clinician-summit/

https://www.frontiersin.org/articles/10.3389/fimmu.2019.00796/abstract Full, open access, text here, https://www.frontiersin.org/articles/10.3389/fimmu.2019.00796/full ETA: Link to full text.

The 6 month results are not impressive.

https://paedmhassoc.files.wordpress.com/2018/11/mus-guide-with-leaflet-nov-2018.pdf p. 13 Is the patient still alive? Because it has been demonstrated that living is an important factor in perpetuating MUS. This is such a nonsense. And these people are classifying us as being irrational??

Simon Wessely had stated something similar in a comment under @Jrehmeyer article in statnews (edit, in 2016): https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/comment-page-6/#comments (page 2 of comments) It was really puzzling that he didn't realise how such a statement...

Thread about the ME Australia’s response to the draft report from the NHMRC here.

That speaks volume. Kids saying "doing too much doesn't help" is translated in "beliefs about activity contribute to the exacerbation of their CFS symptoms". NO, this is not a proof that the belief is driving the symptoms. None of the things they quote proves there's a causality between a...