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  1. NelliePledge

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    I think it could be argued that if funding for community groups hadn’t been squeezed so hard this “medicalised” approach wouldn’t be needed because people would already be getting support without it needing the approval of the NHS.
  2. NelliePledge

    UK House of Lords/ House of Commons - relevant people and questions

    In my area which was in phase 1 or 2 of the MUS roll out the existing hospital clinic which did PACE lite rather than full on GET closed and the service joined up with community pain service. We’ve had a couple of people on the local Facebook group in the last couple of months saying they are...
  3. NelliePledge

    Supplements and activity designed to improve circulation - an experiment.

    Limeade was my favourite. We used to have two bottles of pop delivered every week when I was a kid. I think it was called Corona. Some weird flavours. Err I have to confess I like haggis, black pudding and stuff like that and I have actually bought brains faggots this decade.
  4. NelliePledge

    Supplements and activity designed to improve circulation - an experiment.

    the appetite thing is weird isnt it i go between feeling mildly nauseous and not hungry in the morning and eating a massive meal and some grazing in the evening. i would eat earlier but I just cant face it and I reckon that my appetite is worse the worse I feel. but i have enough appetite in...
  5. NelliePledge

    UK House of Lords/ House of Commons - relevant people and questions

    in their world IAPT is it for MUS - they think it is relevant - that its Emperors new clothes is what needs to be brought home to the politicians
  6. NelliePledge

    Supplements and activity designed to improve circulation - an experiment.

    the bacon and black pudding french stick sounds very appealing @Wonko did you manage to have that? happy birthday for yesterday Since I cut back on processed food I find a lot of products are too sweet for my taste- tried gluten free bread and that was very sweet. I had some crisps at...
  7. NelliePledge

    Posture support - does it work or make things worse in the long run?

    i was a huncher even as a teenager I remember my mum poking me sharply in the back on numerous and saying stop slouching you'll get round shoulders - I already had round shoulders- its a lot easier said than done to straighten up I find
  8. NelliePledge

    Heart Rate Variability and ME/CFS

    dont all Geordies wear Tshirts in the winter
  9. NelliePledge

    New video: Children with ME

    Shared on Facebook through local MillionsMissing page.
  10. NelliePledge

    Questions for Prof Simon Carding of the Quadram Institute, June 2019

    What more does he think should be done to get researchers and clinicians involved in ME. I understand IIME funded 8 young U.K. researchers to go to the London event although not all attended due to illness. How do we get more interest.
  11. NelliePledge

    L.P. reported mentioned in parliament in May?

    This proves exactly why @dave30th work on challenging this ridiculous study is so important . Where proponents of LP are even prepared to use the fact that LP was mentioned in a PQ to try to justify it despite the PQ actually flagging issues with the study. Tthe person probably didn’t even read...
  12. NelliePledge

    Questionnaire to see what different people in the community Hope from the UK MRC

    Fund some actual biomedical research and stop wasting time on anything else.
  13. NelliePledge

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    When I read the first couple of posts I thought maybe someone should email a link to this thread to this guy. On reflection not sure it would be appreciated as genuine feedback and I realise I have added to the flippancy so apologies for that
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