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  1. Woolie

    Development of an inpatient rehabilitation pathway for motor functional neurological disorders: Initial reflections, 2022, Polich, Perez, Baslet et al

    I just had a look. The article consists of a description of a plan for treating people diagnosed with motor FND as part of a two-week in-patient rehabilitation programme. Its hard to make much of it because it doesn't go into detail about what treatments were actually offered and whether they...
  2. Woolie

    Graded exercise therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane review, 2020, Vink & Vink-Niese

    I had a peek. He says he has an "interest in schizoid PD", which ironically would seem to be to be one of the most theoretically shaky constructs in the whole psychological pantheon. You should read the things he says about people he believes to have that disorder (aka his client base)! Makes...
  3. Woolie

    FII and Perplexing Presentations: What is the Evidence Base for and against Current Guidelines, and What..., 2022, Gullon-Scott and Long

    Like @Jonathan Edwards, I winced at the sheer length of this list. It seems to me to undermine the case this person is trying to make rather than support it. ADHD, autism and dyslexia is a triad that co-occurs with reasonable frequency because all three are probably connected in some way (but...
  4. Woolie

    Bansal (eye) pupil reaction test

    Smells a bit off to me, this. Pupillometry is used a lot in cognitive psychology because pupils are markers of all sorts of things. People's pupils will repond to changes in the nature of some repeating stimulus, even if its auditory (e.g, beep, beep, beep, boop, beep), they'll respond to...
  5. Woolie

    Should Burnout Be Conceptualized as a Mental Disorder?, 2022, Nadon et al

    I've been thinking about this in the context of my own work life. It seems to me that "burnout" is used to mean something really different from physical exhaustion. So you might have a physically demanding job, and you're handling it okay until you catch some mild infection - or maybe you have a...
  6. Woolie

    Do Nothing: How To Break Away From Overworking, Overdoing, and Underliving

    My experience of living in the US - some decades ago) really brought this home to me. I was struck by the incredibly strong pressure people felt to be a success, the way a person's value was assessed in terms of how far up the ladder they had climbed. Not everyone - some groups rejected that...
  7. Woolie

    Combined triple treatment of fibrin amyloid microclots and platelet pathology in individuals with Long COVID/ PACS..., 2021, Pretorius et al

    Yes, I see your point. I'm not in constant fatigue either, only during what I call "flares" (sometimes they follow overexertion, sometimes they happen for no apparent reason at all). So yes, you're right, it couldn't be the platelets without some very heavy theory-massaging.
  8. Woolie

    Combined triple treatment of fibrin amyloid microclots and platelet pathology in individuals with Long COVID/ PACS..., 2021, Pretorius et al

    All the points made above are well taken. But just the same, the ideas piqued my interest. I have consistently high platelet counts, which I was told (and have since read) are a marker of ongoing inflammation. I am tested for SAA every couple of years, and sometimes it is just above the safe...
  9. Woolie

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Na, lived experience is good, as long as its "correct". e.g. Paul Garner, Recovery Norge. All lived experiences are equal, but some are more equal than others.
  10. Woolie

    Functional neurological disorder: Engaging patients in treatment, 2021, O'Neal, Dworetzky and Baslet

    Do they realise what they are admitting? "We literally don't know what the *%$# is wrong with about a third of the patients that come to us. Haven't got a damned clue. We just can't work it out, so we end up having to give them a placebo diagnosis". A placebo diagnosis, I just made it up but I...
  11. Woolie

    Intimate Partner Violence and the Risk of Developing Fibromyalgia and Chronic Fatigue Syndrome, 2019, Chandan et al.

    Ha, we were just talking on another thread about how easy it is to find these sorts of retrospective associations, by capitalising on retrospective reporting biases, third variable effects or through just plain overfishing. @hibiscuswahine is going for third variable effects. Could be. I'm...
  12. Woolie

    The Times: My Mother, Munchausen’s and Me by Helen Naylor review — the tyrant in the sick bed

    I'm glad you say verifiable history, @hibiscuswahine. My guess is that if there really is such a thing as factitious disorder, then people with it would almost certainly be inclined to exaggerate their childhood hardships! I worry about some of the claims that are made about the causal role of...
  13. Woolie

    Limbic Perfusion Is Reduced in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2021, Xia Li et al

    Hi @hibiscuswahine! Just saw you're a kiwi (sounds dumb of me not to realise, but the hibiscus part in your name made me think of much warmer parts of the Pacific...). I don't know a lot about neuropsychological testing in MECFS, have been meaning to review the literature - I think you just...
  14. Woolie

    Limbic Perfusion Is Reduced in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2021, Xia Li et al

    Welcome to the forum @hibiscuswahine! (I know you're not exactly new, but this is our first meeting!). Yes, in part. A working memory task will engage the ACC (the dorsal ACC, or midcingulate cortex). But ironically, dysfunction within this region does not always lead to a marked performance...
  15. Woolie

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Oh no... from a link on that page.... https://www.kcl.ac.uk/news/kings-collaborates-on-worlds-largest-study-on-long-covid-in-children-and-young-people
  16. Woolie

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    I had a random browse through some of the names in the rogues gallery. Even that isn't honest. There are loads of people on this list who have had nothing to do with CFS or any kind of BPS bullshit (for example, some do research on racial inequalities in healthcare and other actually worthwhile...
  17. Woolie

    Unexpected symptoms after concussion: Potential links to functional neurological and somatic symptom disorders, 2021, Picon, Perez et al

    Like @Mithriel, its feels like a broken record to comment (but thanks for posting @Andy, its good to know about this work). Er, cause/effect?? Are you wanting to make clams about faking/exaggerating or about psychosomatic factors? If the latter, a good first move would be to exclude people...
  18. Woolie

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    :rofl::rofl::rofl::rofl::rofl::rofl:!!!! (bolding mine) If that's how they see it, why the hell spend this sort of time and effort defending the very idea of this stupid tea party? Why can't they just grow up and get a real job?
  19. Woolie

    Objective assessment of diverse types of MS related fatigue and fatiguability

    Interesting find, @MSEsperanza. Re the Stoll paper: I was reading along, thinking it was a pretty good way of assessing cognitive fatigability. Then hope turned to disappointment when I got to the bit where they interpret a null result (lack of a significant correlation) as positive evidence...
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