Search results

  1. C

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    The short duration of post holding is a long standing feature of UK Government - The case for keeping ministers in post longer and it would be a mistake to overly invest expectation in the contribution of a single Health Secretary (for non UKers - Government hierarchy puts 'Secretary' above...
  2. C

    Bristol Neuroscience awarded £6.5 million to nurture mental health by keeping young brains on track

    It's nice to have friends: "Esther Crawley, Professor of Child Health in Bristol Medical School, will lead a team of epidemiologists, psychologists, sociologists and engineers on a pioneering project, called ‘Sleep Tracking and Treatment for Adolescent Mental health Problems (STTAMP)’. The...
  3. C

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Muckrack is a listing of journalists - bit like linked in.
  4. C

    British Medical Association: "Known unknowns, and as yet medically unexplained diseases" by Dr David Strain

    To take the UK as an example, with the total number of confirmed cases of COVID over two years amounting to one third of the population, it becomes very difficult to separate new cases of ME/CFS following COVID from new ME/CFS cases comorbid with COVID. We don't have incidence figures of...
  5. C

    Increased spontaneous fronto-central oscillatory power during eye closing in patients with multiple somatic symptoms, 2022, Xiquan et al

    I think at this stage I'd go for improbable rather than implausible. The abstract doesn't make it clear what treatment objectives the current paper envisages but I don't think it is an unreasonable proposition that: a) poor ability to consciously approximate the timing of heartbeats is evidence...
  6. C

    Why use Forget Me Not as a symbol for ME?

    Lots of dubious 'origins' of the name around. https://www.etymonline.com/word/forget-me-not "the flowering plant (Myosotis palustris), 1530s, translating Old French ne m'oubliez mye; in 15c. the flower was supposed to ensure that those wearing it should never be forgotten by their lovers...
  7. C

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    O'Neill is The Times' chief reporter: https://www.thetimes.co.uk/profile/sean-oneill?page=1 which explains the sympathetic nature of the story - unlikely that editors would allow someone 'not their own' to get away without a negative at some point. O'Neill has had involvement with ForwardME...
  8. C

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    A legal opinion can be based on anything and a Ministerial Statement could form the basis of a legal claim, but it doesn't have any especial force in Law. UK Ministers frequently make statements that contradict one another and what is said by a Minister can be unsaid by that Minister - or...
  9. C

    British Medical Association: "Known unknowns, and as yet medically unexplained diseases" by Dr David Strain

    It goes back to earlier 'certainties': Allergy and the chronic fatigue syndrome Scihub link: https://sci-hub.se/10.1016/0091-6749(88)90933-5 The allergy link has certainly been reported by patients and I think it was taken as a given for a long time within patient orgs, groups and fora that...
  10. C

    Increased spontaneous fronto-central oscillatory power during eye closing in patients with multiple somatic symptoms, 2022, Xiquan et al

    Measure of "interoceptive accuracy" developed by the same group as the paper above: Multidimensional Interoception and Autistic Traits Across life Stages: Evidence From a Novel Eye-tracking Task "Abundant studies have suggested that neurotypical individuals have an implicit awareness of...
  11. C

    Memory for forgetting in adults with persistent symptoms following concussion, 2022, Silverberg et al

    It's the faculty for remembering when you've forgotten - rather than there being just an empty space that can't be explained. In many memory loss events where there is gross physical evidence of brain impact there is no clear before and after memory, whereas memory for forgetting allows...
  12. C

    Increased spontaneous fronto-central oscillatory power during eye closing in patients with multiple somatic symptoms, 2022, Xiquan et al

    Interoception models are fairly simple, just awareness of basic functions, breathing and heart rate are the usual targets: Research on Interoceptive Awareness Training "Interoceptive awareness is the awareness of inner body sensations, involving the sensory process of receiving, accessing, and...
  13. C

    Too many medical investigations of children and adolescents can make matters worse, Dagens Medisin

    Overtesting is a recognised problem: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8685650/ In kids exposed to an overtesting culture there's a potential for childhood itself to get medicalised, we shouldn't get seduced into the idea that testing means only objective body chemistry assays -...
  14. C

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Never underestimate the unseen hurdles posed by publicly accountable bureaucracy: https://www.ncbi.nlm.nih.gov/pmc/about/nihpreprints/
  15. C

    United Kingdom: Action for ME (AfME) news

    Point 4 is problematic - at least in the way it is worded. Health is a devolved function and the current relationship between central Government and the devolved Parliaments/Assembly is not one that readily supports "the UK Government establish(ing) and lead(ing) a national strategy. At a time...
  16. C

    Coronavirus pandemic far deadlier than official count, WHO estimate suggests

    Adding this here because both topical and pertinent: Life expectancy in China is now the same as in the US The US has had a hard pandemic. The country has the highest reported death toll of any country in the world, crossing the one million mark on 4 May. That’s equivalent to wiping out the...
  17. C

    Coronavirus pandemic far deadlier than official count, WHO estimate suggests

    Article: Financial Times Coronavirus pandemic far deadlier than official count, WHO estimate suggests. "The number of people who died as a result of the coronavirus pandemic by the end of last year may be nearly three times higher than previously thought, according to estimates by the World...
  18. C

    Crashed. Could hayfever have done this?

    Choice is between drowsy and non drowsy - the former can be useful for sleep problems. Fexofenadine seems to be the NHS standby non drowsy (well non drowsy ish, I have to take it at night otherwise messes up the day): https://www.nhs.uk/medicines/fexofenadine/ note the issue with fruit juices !
  19. C

    Elevated ATG13 in serum of pwME stimulates oxidative stress response in microglial cells , 2022, Gottschalk et al

    I found this study helpful in understanding what seems to be the territory being explored by the Gottschalk paper: Altered serum levels of autophagy proteins Beclin-1 and mTOR in patients with exudative age-related macular degeneration although I'm unsure how it relates directly to...
Back
Top