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I have no idea of how cost effective a billboard is compared to a Facebook ad or a local newspaper or TV ad.

Oat bran is the best source. It is even allowed to print health claims on the packaging

Beta glucan is pretty easily accessible in the diet don’t know other than as a money spinner what the point of taking supplements would be.

Hi can any forum members based in Austria or Switzerland help with information about ME Organisations? We have contacted WE&ME Foundation - https://www.tempi-stiftung.at/ contact@weandmecfs.org https://de.weandmecfs.org/contact Email sent 23 Sep Österreichische Gesellschaft Für ME/CFS -...

Also should have mentioned if someone would be able to volunteer to translate a message (couple of paragraphs) into German that would be great (I don’t trust my A level German from 42 years ago)

Thanks @EndME. Eta I’ve now sent a message through the English language web form.

We’ve got some German organisations on our contact list we’re working through for the Cochrane Advocacy. German Association for ME/CFS | Deutsche Gesellschaft für ME/CFS e.V. have signed. Thank you. ME/CFS Research Foundation https://mecfs-research.org/ contact@mecfs-research.org we’ve...

I’ve only skimmed, there is some interesting information, a lot could no doubt be interpreted differently by a different reviewer responses show some services that are keen to demonstrate that what they do is compliant with the new NICE guidelines, some a flavour of we were already doing that...

Sadly not a novel reaction to the sermons of this pair

Freudian slip

Agree and not just slower speed, posture/gait affected.

That’s good news. When we get new organisations signing and sharing the petition numbers get a boost. It’s also helpful for organisations that have already shared on social media to share again after a couple of weeks as people don’t get to see every post.

I wonder why they chose this medium rather than others

And that shows why pushing back on some funders may be difficult.

Agreed. Having had a parent diagnosed with Alzheimer’s at 59 I think it’s the right approach to set a limit.

19 October 2023 ME Association announces post mortem research partnership with Manchester brain bank https://meassociation.org.uk/2023/10/the-me-association-announces-new-post-mortem-research-partnership-with-manchester-brain-bank/

19 October ME Association announces post mortem partnership with Manchester Brain Bank https://meassociation.org.uk/2023/10/the-me-association-announces-new-post-mortem-research-partnership-with-manchester-brain-bank/

Funding is from government bodies in various countries so that would be a big challenge. https://www.cochrane.org/about-us/our-funders-and-partners https://www.cochrane.org/news/news-cochrane-uk

Side effects and timeframe of at least 6 months are very important aspects on any report of individual improvement. I’ve had prescription medication that helped quite a lot with sleep for months then i became aware of the significant side effects and then eventually the beneficial effect...

Don’t know but definitely a positive step, maybe ask for advice about any steps that could be taken within parliament eg the APPG approaching relevant Select Committees to highlight concerns.