Search results

I literally can't face reading the above right now, but will do. Thanks for putting all this together. Do they acknowledge that children can get severe ME?

Sounded pretty good to me, in the few minutes that she had to explain her situation.

I understand that a child is currently under threat of being hospitalised for intensive inpatient treatment. The family are terrified and do not want publicity. EC is still an active threat.

Thanks Amw66. I assume that as they state that the average age was 13, with a peak prevalence of 15, there must have been significant numbers of 11 and under, ie primary. Good luck with your work on educational provision

@Amw66 or anyone else. Did the Dowsett and Colby research cover school age 4-18, or just secondary. I ask because EC seems to emphasise that she was the main person showing CFS in Primary schools. Does anyone have a link to the D and C paper, I only seem to be able to access parts of it. Thanks

Excellent letter @Graham, please add my name.

Loving those balloons. Big thanks to all who have worked so hard to get us here.

Yes. JtheJ or someone else has it. Hopefully TEDx Bristol will not be prepared to make it available.

It seems pretty good to me. I have just whizzed thro the slides and will listen in a few days. Most striking problems for me were: Prognosis slide. "most people improve slowly over time" and The prognosis for young people and children is more optimistic ?most/many recover within 2 years. The...

Fortunately our daughter was 16. She needed a tutor for Maths AS level. For the geography A level it was a mix of her attending a handful of lessons, copies of another students' notes, getting revision guides/assembling previous Q & As online, plus some Slideshare info on selected topics and us...

I think it was the APPG (All Party Parliamentary Group) that was disbanded, because very few MPs were interested in attending and little progress was made. (I may have remembered this wrongly)

http://www.investinme.org/IIMER-Newslet-1711-03.shtml Above is full statement from IiME

98 comments now! Who wants to be 100?

It is one of the numerous conditions he mentions. He's also involved in teaching/supervising other therapists. @Barry don't worry I'm not proposing anything militant I just think he may be interested in hearing some of the science-based information eg bullet points from IOM. It's got to be...

Oh no, not central sensitisation again! Trudie C managed to get that in just before the end of the Q&A, following the morning session at the fatigue conference. This was after a few speakers including Julia Newton. Some of the questions and responses were reasonable, but I suspect the conference...

Very interesting..... I am not that far from one of his places of work, maybe I can get relevant info to him!

Great selection of comments on DT's latest virology blog. http://www.virology.ws/2017/11/20/trial-by-error-my-brief-encounter-with-professor-crawley/

Hi @strategist I thought you were being serious for a moment. I was going to ask why you were still on here.

Overall I thought it was a great presentation from Prof N. I read transcript, haven't seen slides. There is a particularly offensive comment in the Q & A about how personality affects self-reports on fatigue, pain and depression. Comments on how those with a high neuroticism and low...

AFAIK he is in UK , on the coast with friends for the w/e having a break, and said he would not report till Monday. No idea of subsequent plans.