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Hi @Binkie4 I'll have a label (stuck on, not Paddington -style) saying Debbie and S4ME. Sorry not to have replied earlier. I also use a walker. Should be able to recognise Graham, even without the hat.

Thanks for the refs @JaimeS. I did most off the first intro course, but haven't made time for the second one, which concentrates more on T cells. Maybe when PACE is "off the table/in the bin" we can concentrate more on science and less on demonstrating the lack of science in "psycho research"...

So is this the type of paper that we'll see if crawley gets anywhere with MEGA!!!! subgroups/phenotypes.....

My understanding is that IgM represents a current active infection and that the IgG are the final "class-switched" antibody indicating immunity. However in ME, with the immune dysregulation it could be that people with ME are actually making a lot of slightly dodgy (technical term) IgM which...

I think that AfME are trying to find this out, but until GET and Directed CBT are DROPPED (preferably from a great height) from the NICE guidelines and the clinics, the only benefit is probably meeting other people with ME and maybe help with disability claims etc.

How does this stuff get published?

One problem is that there are so few effective "specialists" in the UK. I understand that Dr Bansal will be retiring next year, at least from NHS

Do also note that if you are unable to tweet tonight 8pm, that Cochrane would still like your views via a survey: https://www.surveymonkey.co.uk/r/9SHVQ8W?utm_content=bufferc6b91&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer Do not be put off by the Oct closing date. It is...

The pages of the Cochrane report which have the comments from Tom Kindlon and Robert Courtney and poss others are 113-133. NB These are the report P nos, I think I started printing at 117. There will be salient points in these as well.

The main results from Cochrane 2017 state that 5 of the 8 RCT studies they used for the review, used the Oxford Criteria to diagnose CFS.( Their term for ME not mine). This is on P2 of their report. The results from the US IOM report, Feb 2015, stated that the Oxford criteria should be retired...

Hi @Paul Watton Thanks for posting your tweets here. So far I.e only learnt to retweet and will happily do that tomorrow if you post here. I shd get email alerts. Apologies for useless techness!

Hi @Binkie4 I am going to Crowboro, as I think @Graham is too. I think it will be great to meet up with others as well as seeing the film.

This isn't dated, but refers to the 2016 FOI ruling, so must be later than that. Sorry,now read p2! Uni of Bristol responded on 9 June 2017 re period from JUly 2015 to Jan 2017 http://www.tymestrust.org/pdfs/noharassmentbristol.pdf