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  1. M

    A role for a leaky gut and the intestinal microbiota in the pathophysiology of ME/CFS Vipond 2019 PhD thesis

    No, I can email him. Thanks
  2. M

    A role for a leaky gut and the intestinal microbiota in the pathophysiology of ME/CFS Vipond 2019 PhD thesis

    Hi @Andy, do you have an email for Quadram/Simon C?
  3. M

    UK House of Lords/ House of Commons - relevant people and questions

    Call centre work typically involves long shifts...interesting that it only seemed to be the pain that was stopping them from working. No insult to people suffering pain. I would have thought that the cognitive processing in ME would also cause severe problems.
  4. M

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Interesting post from Cochrane: "Cochrane’s support of trial transparency Cochrane has supported the AllTrials initiative since it started in 2013. AllTrials calls for all past and present clinical trials to be registered and their full methods and summary results reported. In 2017, Cochrane...
  5. M

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    7 March 2018 Our Nuffield Professor of Child Health, Professor Terence Stephenson, was recognised in the New Year Honours list for his services to healthcare and children's health. (2018) Terence is Nuffield Professor of Child Health at the UCL GOS Institute of Child Health and Honorary...
  6. M

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    Terence Stephenson is speakng at EBM live next week @Caroline Struthers Mon at 13.30. Reducing Questionable Research Practices and Bias Terence Stephenson We are all familiar with straightforward fraud. The Lancet paper by Andrew Wakefield alleging evidence of a link between measles, mumps and...
  7. M

    Esther Crawley

    She recommended the Lightning Process to an old school friend whose son was diagnosed with CFS!
  8. M

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    Not enough "capacity to check"! What about all those PhD students watching people carrying shopping bags. Did it not occur to them to ensure they had enough people to look into this when they put forward their proposal? Sounds like the level of preparation re PACE, when someone used the excuse...
  9. M

    Current Research Provides Insight into the Biological Basis and Diagnostic Potential for ME/CFS. Sweetman et al. (2019)

    Here is the link to the whole special edition. https://www.mdpi.com/journal/diagnostics/special_issues/ME_CFS Includes a paper by McGregor et al, the CureME team, Lenny Jason et al and Frank Twisk re ICC.
  10. M

    Thread for all minutes of the UK CFS/ME Research Collaborative [CMRC] Executive Board Meetings

    It is very concerning to see that Anna Gregorowski was at the meeting. She heads up the UCLH team and the feedback re her approach from parents and youngsters is not good. This is the team that includes Dr Terry Segal. Dr Terry Segal Tel: 020 3447 5876 Fax: N/A Email: terry.segal@nhs.net...
  11. M

    The ME Patient Foundation

    Latest Facebook post They are heading to the Evidence-based medicine conference in Oxford by the sound of things. @Caroline Struthers may want to link up with them.
  12. M

    UK House of Lords/ House of Commons - relevant people and questions

    Another non answer.
  13. M

    Physios for ME

    I think one of them is from N Ireland, I suspect Scottish physios would be welcome too.
  14. M

    The ME Patient Foundation

    They have launched https://themepatientfoundation.org/frequently-asked-questions/?fbclid=IwAR1efx28msVOsl27fBm7xF2BnUxtAh3OJKBcehR9IvucE9-uGOVqFTgXIt0
  15. M

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    The reason that CFS sits in uncomfortable territory between medicine and psychiatry is because Wesseley and his ilk have put it there. The fact that PwME are uncomfortable with psych therapies is that they are promoted as curative not supportive. I do not think that even W & Co are promoting...
  16. M

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    @Lucibee, @JohnTheJack, @Graham ... Everyone who contributes to the demise of the BPS fallacy is a star. We are on the way to a whole Galaxy.
  17. M

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    You are a star @Lucibee. Thanks for your extensive work on these minutes.
  18. M

    Glucose Metabolism Drives Histone Acetylation Landscape Transitions that Dictate Muscle Stem Cell Function, 2019, Blau et al

    A brief glance suggests that this paper has similarities with Neil McGregor's talk at the EMERGE conference. I have just read thro' Cort's summary from HR produced on 15 June 2019. It mentions histone acetylation alongside the problems of glycolysis etc.
  19. M

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    Yes, it is hugely insulting to me as a person with low back pain! Actually the video is worse than I thought as it brings in deconditioning and also says that finding a baseline will allow you do all the usual activities of daily livingeven on a bad day. On bad days I cannot...
  20. M

    Who is Simon Wessely?

    Trish, I love your orchestra fail. How could we get it to SW?
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