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Thank you

@Emsho @Amw66 do either of you know what AfME are doing in Scotland/mentoring scheme etc?

I have heard Julia Newton (Newcastle) and Jo Cambridge with Fane Mensah give presentations in recent years. Chris Ponting was in the audience last year. Karl Morten says he has been for the last 3 years. Dr Bansal has also presented. I think these days some of the researchers go to the...

Looking forward to hearing Ron Tomkins speak at Invest in ME research conference in a couple of weeks

This one has already been given a thread.

@Trish, there is also a fifth. Doukrou M, Hiremath S, Ferin K, Jones S, Begent J, Segal T. G612(P)  Characterisation of population, review of service provision, and outcomes for young people with chronic fatigue syndrome in a tertiary care inpatient setting...

Hopefully their data showing that c 90% of people have stopped or reduced work, they will produce information on work and ME that is better than their SeeME toolkit.

The tender for the Young people Focus Group has been extended to 10 June file:///C:/Users/140617/Downloads/NGC%20tender%20document%20for%20MECFS_young%20people_second%20call.pdf

Even Professor Dorothy Bishop, who has previously supported BPS approach to ME was very lukewarm in her response to SMILE in the SMC briefing. http://www.sciencemediacentre.org/expert-reaction-to-controversial-treatment-for-cfsme/ SEPTEMBER 20, 2017 expert reaction to controversial treatment...

So it is a study by 2 psychologists, one of whom is from Bath. Would we expect a useful conclusion?

Many of the posters at these events echo the "we need more biomedical research" message

Other good people to interview. Dr Nina Muirhead and Dr Nigel Speight. Countrygirl from PR has extensive info on youngsters being threatened in South West and has herself been ignored at A and E for serious heart problems because of her ME diagnosis. @Gary Burgess who has done the ME show...

The top item on the flyers handed out at the Millions Missing events, under "WE DEMAND THE FOLLOWING (is) Parity of resesearch funding: The government must urgently invest in biomedical research after years of neglecting people with ME. Funding of research must reflect the severity of ME and...

Yup, the PhD student is in place. Carol M referred to visiting him and urged us to push our MPs for more targetted funding for biomedical research into ME.

Slightly off putting that Sadie has the initials SW! Seriously though a great interview and transcription. Thank you both.

Liking your comment on the end of this @Graham

The 250 K figure has been around for ages, certainly since my daughter became ill in 2010. Still, if it is c 0.4%, then a current population of 66.04 million, only gives 264,360. Maybe we could say at least 250k or stress that record-keeping is abysmal...

So what is Low Frustration Tolerance: Doctor's view: "Frustration tolerance is the ability to withstand obstacles and stressful situations. Decreased frustration tolerance is a common behavior problem of people who have brain injuries. Low frustration tolerance can be a direct result of brain...

Excellent article @chicaguapa

Well done @JohnTheJack, you are a star :emoji_boom::sun: