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If you're on Instagram I'd like to recommend SerIkkeSykUt (Don't Look Ill). It is by an ME patient who wants to challenge prejudice towards chronic illness. I like her friendly and humorous style. She says if she'd been given a krone (Norwegian valuta) for each time she's heard: you don't...

Another blog post from initiator Nina E. Steinkopf. She is working very hard on uncovering and documenting problematic aspects with the PBS-establishment in Norway, and she does as good a job as any investigative journalist. In this blog post she writes about how Lightning Process is pushed on...

The Minister of Labour and Social Affairs answered yesterday. She doesn't see any reason to change the rules for now, but emphasise that rest can be part of treatment for ME patients. Stortinget: Skriftlig spørsmål fra Lise Christoffersen til arbeids- og sosialministeren google translate...

It says on their website that the seminars can be viewed via a link, and that more information will come during October. Konferenserna kommer att kunna följas via länk – mera information om detta i oktober.

Politicians in Sweden are working for a ward for ME-patients in the county Västerbotten. For time being there is nothing offered to ME patients in the region. Västerbottens-Kuriren: Ny mottagning för ME-sjuka Not able to provide a google translation for this article, but here's a recap. It...

Study from Norway on 124 patients with a mixed psychiatric population of whom 39 diagnosed with PTSD. Paper is published in the journal Neuropsychiatric Disease and Treatment PTSD patients show increasing cytokine levels during treatment despite reduced psychological distress Results: Overall...

New blog post from initiator Nina E. Steinkopf. This time she has gathered a collection of the history to the BPS-approach in Norway. Quite striking when it's presented in a chronological order as here. Mens vi venter på å bli trodd google translation: While we wait to be believed The petition...

The Norwegian ME Association - Rogaland County - will host two lectures about ME by prof. Karl Johan Tronstad (scientist who has been working together with Fluge/Mella researching ME and cell metabolism) and prof. Kristian Sommerfelt (neurologist and paediatrician with over 20 years experience...

My latest letter to Archives of Disease in Childhood I sent the following e-mail today to Dr Nick Brown, the editor-in-chief of Archives of Disease in Childhood, the journal that published the Lightning Process study a year ago. I cc’d Dr Fiona Godlee, editorial director of BMJ, which publishes...

New blog post from initiator of the petition, Nina E. Steinkopf which is also an answer to psychologist Nina Andresen's letter to the editor: Hva vi blir utsatt for google translation: What we are exposed to 4 612 have signed the petition by now.

PDF of paper from Sci Hub

No tickets or programme available yet. So thought I'd wait a bit until adding the events (research conference and open seminar) to the calendar.

This is from Aug. 15th 2018 and as far as I know not shared here already. Not sure if studies on ME patients are included in the review, but thought it was of interest nevertheless. E-Health interventions for anxiety and depression in children and adolescents with long-term physical conditions...

Henrik Vogt joins the debate. It is frustrating that he still believes this is just about having different opinions..

The Norwegian ME Association, Buskerud County, participated at the Stanford ME symposium and made this greeting to patients from Ron Davis.

CNN: Indie pop sensation's disease became his muse Decades ago, ME/CFS stole his life, but music has allowed Murdoch to take back his life and shine a light on a disease that afflicts more than 17 million people worldwide. "It could be the most important thing I ever do," he said.

Finally an article about this from Norway. This from the editor of the Journal for the Norwegian Medical Association. This journal quite often provide translations in English of articles, so no google translations this time! Are Brean: Sannhet og konsensus English: Truth and consensus The...

This psychologist has written a new letter to the editor, this time claiming that the petition's criticism of the Competence service is wrong. She fails to mention that she's been a colleague to Competence service, and she refers to a newly arranged seminar for physiotherapists without...

A surveillance among pupils with ME was done by Tymes Trust in England in the 1990's, and last year in Norway (by initiative from the prime minister). Both concluded that ME was the main cause of school absence due to long term illness. Anyone know if other countries have done something similar?