Sweden - RME news

Kalliope

Kalliope

Senior Member (Voting Rights)
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ME-conferences in Sweden Oct 17th and 18th 2018

RME, the Swedish patient organisation, invites once again to two conferences about ME this autumn. Some of the programme is in English, and some in Swedish.

(I have translated the Swedish parts for this post)

First conference is in Stockholm Oct 17th
Step by step - Topical research and possible treatments

  • Opening Henrik Fransson from RME, Ella Bohlin - politician
  • Neuroinflammatoric explanatory models for ME/CFS Prof. Jonas Bergquist
  • Immune-metabolism and ME/CFS Prof. Anders Rosén
  • Analysis of the Rituximab study and other immunological findings Researchers from Bergen university
  • Post Exertional Malaise dr. Katarina Lien
  • Advances in ME/CFS research in USA dr. Zaher Nahle
  • Clinic and research at the ME-center Bragée-clinic dr. Björn Bragée

Second conference is in Göteborg Oct 18th
Step by step - Topical research and possible treatments
  • Opening Klas Gillberg from RME
  • Neuroinflammatoric explanatory models for ME/CFS Prof. Jonas Bergquist
  • Immune-metabolism and ME/CFS Prof. Anders Rosén
  • Analysis of the Rituximab study and other immunological findings Researchers from Bergen university
  • Post Exertional Malaise dr. Katarina Lien
  • Advances in ME/CFS Research in USA dr. Zaher Nahle
  • Possibilities for activity and participation in people with ME/CFS Ergonomist Ewa Wadhagen
 
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Kalliope said:
RME, the Swedish patient organisation, invites once again to two conferences about ME this autumn. Some of the programme is in English, and some in Swedish.
Click to expand...

The programme of both conferences includes two lectures in English. I emailed RME to ask if they will be livestreamed or videotaped. I got this answer today:

"Dear Elisabeth,

I'm so happy that you have observed the information about our conferences. Yes, the conference will be live-streamed and also recorded for later access on our web-site www.rme.nu. Information about the link to the live-stream can be found on our web-site before the conference. [my bold]

Best wishes,

Kerstin Heiling

Chair of RME"

I wrote them that I learned about their conferences here on S4ME. Does anyone know if they are active here? Shall we invite them?

Edit: bolding
 
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Lisa108 said:
The programme of both conferences includes two lectures in English. I emailed RME to ask if they will be livestreamed or videotaped. I got this answer today:

"Dear Elisabeth,

I'm so happy that you have observed the information about our conferences. Yes, the conference will be live-streamed and also recorded for later access on our web-site www.rme.nu. Information about the link to the live-stream can be found on our web-site before the conference.

Best wishes,

Kerstin Heiling

Chair of RME"

I wrote them that I learned about their conferences here on S4ME. Does anyone know if they are active here? Shall we invite them?
Click to expand...
Oh, that's great that they will be streaming! Thanks for checking it out, @Lisa108 Am so excited to the prospect of being able to attend the conferences from home :woot:

There are a few Swedes here, but I don't know if the organisation as such is present at the forum. Sounds like a good idea to send an invite :-)
 
Today is the roundtable meeting in Stockholm.
Google Translate said:
RME's annual conference on ME/CFS starts today at beautiful Rosendal's castle, with 25 doctors and researchers, especially from our Nordic countries, meeting for a round table meeting.

They will share experiences and talk about their work with ME/CFS. On the agenda are topics such as autoimmunity, mitochondria, post-external malaise (PEM), neuroinflammation, clinical studies, biobank for research and how far research on ME/CFS has come.

RME's annual conference on ME/CFS is now being organized for the 11th consecutive year and in the coming days there will be lectures for healthcare professionals and others in Stockholm and Gothenburg.
Click to expand...

 
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"Highlighting what criteria are being used. Canadian criteria ICC and SEID demand PEM (Post-Exertional Malaise) which the Oxford criteria don't do and therefore capture much more [people] and therefore give completely different results. Dr Katarina Lien, Oslo University Hospital #svmecf #stegförsteg2018"
 
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