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  1. Kalliope

    The ME Association's continued support of the Sussex ME Society

    Charles Shepherd has given this statement as a comment to MEA's Facebook post. I am surprised he doesn't seem to understand why posts like this are upsetting. Comment from Dr Charles Shepherd: As we have stated on MEA Facebook on numerous occasions we normally publish information from...
  2. Kalliope

    Lightning Process - discussion thread

    A thread about the article has been made, so deleted my post and moved it there. Very frustrating if this BS-method is allowed to emerge again in UK. I thought UK had managed to leave it more or less behind. Anyway, for discussions about the article...
  3. Kalliope

    The ME Association's continued support of the Sussex ME Society

    This is not acceptable. This is not just harmless stuff for patients! ETA:
  4. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    #MEAction: Sign Norway's petition: Demand Resignation of Advisory Board Promoting Biopsychosocial Model The petition is addressed to the Norwegian Ministry of Health and Care Services and below is an English translation – for our international supporters. Everyone is encouraged to sign the...
  5. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    More background information for this petition in the recent THE ME GLOBAL CHRONICLE p. 83-85 It is written by the initiator to the petition, Nina E. Steinkopf. https://let-me.be/download.php?view.47 The petition has 3296 signatures by now.
  6. Kalliope

    Best news article that gives background info on Unrest, Brea, #MEAction and MillionsMissing?

    I would be very grateful for suggestions for the most useful articles from big international newspapers (or similar sources) in giving background info on Unrest, Brea and the expanding global MillionsMissing events May 12th. Any you would recommend? I really like this article from The...
  7. Kalliope

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    From =68.ARAVI-YKyRZn8wP85uf8PPZQilHqsC6VvZxuzdk0zuDQEudkrRY12y-6aqb6Hzn0fWkAWbrgDdlaaoEvQrLgjnNDX93mKxq6lQGKFWhz9mPWVMHrzaCfLKREmCIr4Aquw_oALTaAma03XOEkLsFygl3WRHO2VXJjvMH5OYPcreCp_WGLKKzIj7h10cO3jlsRZxZfgtd3w10LOB99AoKIZMBwNMSMYI43dyQcu_Bj&__tn__=EC-R']OMF's Facebook page Symposium update: We...
  8. Kalliope

    Netflix "Afflicted" - ME included

    Maya Dusenbery in Pacific Standard: An open letter accuses Netflix' "Afflicted" of abandoning ethics and science It's hard to imagine that Afflicted would have turned out the way it did if chronically ill people had been involved at all levels of the production and editing process. Instead, a...
  9. Kalliope

    Concerns about Cochrane

    Haven't heard this yet, but will have a listen later. The theme is interesting, perhaps particularly as one of the authors of this Cochrane review, Signe Flottorp, is known for a biopsychosocial approach to ME. She is a colleague of Larun & co who wrote the Cochrane reviews about ME and GET...
  10. Kalliope

    Concerns about Cochrane

    Council For Evidence-Based Psychiatry (CEP) declares its support for Professor Peter Gøtzsche Prof Peter C. Gøtzsche is known throughout the medical world as a tireless advocate for research excellence, a fearless critic of scientific misconduct, and a powerful opponent of the corruption of...
  11. Kalliope

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    I'm excited to hear if there will be more news about CycloME and RituxME. We've been waiting loooong now for updates.
  12. Kalliope

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    You were right, @Sasha I had forgotten to add it when I started the thread. That's also very plausible. :confused: Good thing you spotted it!
  13. Kalliope

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    Well, twice is better than none. :laugh:
  14. Kalliope

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    I was sure I had added it. Added it once again and now it comes up double. You still can't see it?
  15. Kalliope

    News from Scandinavia

    I'm sorry. I used this page https://www.dinordbok.no/norsk-engelsk/?q=kompetansesenter But there might be a difference between "kompetansesenter" and "kompetansetjeneste"? Thanks for the correction. :thumbsup:
  16. Kalliope

    Concerns about Cochrane

    Yes, I think that's safe to say!
  17. Kalliope

    Concerns about Cochrane

    I'm confused about the proceedings, but Swedish Läkartidningen and Danish Dagens Medicin both write that he will continue. Here is a google translation of the article in Dagens Medicin: Peter Gøtzsche continues as head of the Nordic Cochrane Center
  18. Kalliope

    Netflix "Afflicted" - ME included

    Opinion piece in the Guardian based on Rehmeyer's article: Frances Ryan - Sorry, Netflix: we don't need another freak show When groups are stereotyped on TV, it does not just reflect the prejudices of the time but can be key in perpetuating them. Distorted depictions can be particularly...
  19. Kalliope

    Netflix "Afflicted" - ME included

    This was excellent! For those who can't access it, here is how it starts off: Ableism kills. I’ve watched my fellow patients with myalgic encephalomyelitis, also known as chronic fatigue syndrome, suffer and even die from the ignominy of a suspect disease. Patients often can’t get effective...
  20. Kalliope

    Upcoming book: CLASSIC PACING - For a better life with ME

    I couldn't see that mentioned specifically in the table of contents,
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