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A Q-and-A with Leonard Jason, on Case Definition A Brief Update: Berkeley’s crowdfunding period closed on April 30th–Monday night. I ended the campaign with $87,580. After Berkeley’s 7.5% in fees, the funds will cover my salary/benefit from July 1, 2018 to June 30, 2019, and some travel costs...

This was stunning!! Nederlands Dans Theater (NDT) on Facebook: Anil van der Zee is a former professional (ballet) dancer, who suffers from Myalgic Encephalomyelitis (ME). ME is a debilitating neuroimmune disease affecting 17 million children and adults worldwide. NDT supports Anil’s mission to...

ah yes, good point @Solstice and @Alvin ! ETA: Even better!

The crowdfunding has ended at 82,580$ 110% of the goal on 75,000$ 948 donors :balloons::balloons::party::balloons::balloons:

Yes, we need to keep an eye on them. They recently held a lecture on a seminar on MUPS about ME. The senior doctor from the national center of expertise on CFS/ME also held a lecture, she is known for a biopsychosocial approach to ME, is very enthusiastic about the SMILE-trial and her center...

The "Patient Organisation" Recovery Norge - basically a Facebookpage promoting Lightning Process, led on by MD Henrik Vogt and LP-coach Live Landmark - is trying to make Lightning Process seem as serious and scientifically valid as possible. Today they've posted twice about the magnificent...

Members of Science For ME have spoken: #Justice4ME got most votes as hashtag/slogan to use on social media when donating to research, patient organisations, Tuller etc, for instance during a debate on ME. Fell free to use it. Let's see if it catches on and increase visibility for our cause.

NAFKAM (Norway's National Research Center in Complementary and Alternative Medicine), The Norwegian Directorate of Health and the Consumer Ombudsman state in an update of today about Lightning Process (LP) that it is to be considered as alternative treatment. This is great news, as the laws...

Trial By Error: Goodbye, Australia; and Two Updates After I posted yesterday’s blog about Professor Lloyd’s perplexing memory lapse relative to PACE, Tom Kindlon and I exchanged a few messages. He told me that he had written a letter to the Journal of Internal Medicine after Professor Lloyd’s...

Lenny: When Doctors Dismiss Women's pain by Maya Dusenbery Many conditions that disproportionately affect women — including endometriosis, fibromyalgia, vulvodynia, interstitial cystitis, and chronic fatigue syndrome — are still very poorly understood, yet receive minuscule amounts of research...

New Science Wednesday Post from OMF

I am so relieved and happy!! Thank you big donor, whoever you are!

I wonder if they believe nobody talked about ME until they heard about it for the very first time?

Professor emeritus Ivar Sønbø Kristiansen from the Department of Health Management and Health Economics has written a blogpost in a medical newspaper where he draw parallels between gender dystrophy and ME as fashion illnesses. I post this mostly for its oddity - but feel genuinely sorry for...

It is popular in Norway as well :(

In this documentary Olli Polo was very general. Together with excellent descriptions from patients and carers this documentary turned out very well. I wish it had English subtitles as well. The psychiatrist who believes ME is something you can get by learning about it looked like a fool. He is...

Am watching the documentary now. Anton's mum says: To conquer this disease seems to be as difficult as learning how to fly.

Article (in Swedish): Yle: Mystiska trötthetssyndromet ME/CFS knäckte Anton, 28, efter en vanlig influensa - psykiater tror att sjukdomen sprids via sociala medier google translation: Mystical fatigue syndrome ME/CFS cracked Anton, 28, after a regular flu - psychiatrist believes the disease is...