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  1. Kalliope

    David Tuller tours Down Under!

    This should be good :)
  2. Kalliope

    "It's like being a slave to your own body in a way": a qualitative study of adolescents with CFS

    Googled a bit.. The main author is an ergonomist who has worked closely with prof Wyller and promotes GET/CBT as treatments.
  3. Kalliope

    "It's like being a slave to your own body in a way": a qualitative study of adolescents with CFS

    Spotted a link to this study in a tweet by @Tom Kindlon It is a qualitative study from Norway with interviews of seven adolescents with ME. The names of the authors are unfamiliar to me and I didn't get that much from the abstract, so wasn't sure which forum to put this in but decided to go...
  4. Kalliope

    Merryn Crofts - media and inquest

    Medscape-journalist Miriam Tucker replies:
  5. Kalliope

    Merryn Crofts - media and inquest

    News story shared by LADbible - with over 2 million followers on twitter
  6. Kalliope

    Merryn Crofts - media and inquest

    MD Henrik Vogt has his own explanation, as usual.
  7. Kalliope

    Merryn Crofts - media and inquest

    This thread has been split in order to create an In Memory thread for Merryn. To leave tributes to Merryn please go to: https://www.s4me.info/threads/in-memory-of-merryn-croft.3302/ This thread remains here to discuss media coverage :cry: Bed-bound and in unimaginable pain, watching my...
  8. Kalliope

    News from Scandinavia

    Front news on The Norwegian Broadcasting Corporation (NRK) 30 år gammel vaksineforsøk ender med massesøksmål mot staten google translation: 30 year old vaccine trial ends with mass action against the state It is about 150 participants of a trial back in the 1980's on vaccine against...
  9. Kalliope

    Medscape: CFS linked to low T3 syndrome (by Miriam Tucker)

    Chronic Fatigue Syndrome Linked to Low T3 Syndrome Some people with the condition known as chronic fatigue syndrome (CFS) have low circulating levels of the thyroid hormone triiodothyronine (T3) and normal levels of thyroid-stimulating hormone (TSH), new research shows. The results suggest...
  10. Kalliope

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    Moderator note: for ease of access,, the livestream recording link and links to threads for individual talks are here: (Times for the start of each talk in the lifestream recording hour:minute) Oystein Fluge (0:37) Wenzhong Xiao and Ron Davis OMF studies excluding metabolic trap (Xiao 1:11...
  11. Kalliope

    #OMFScienceWednesday - collection of the posts

    Another Wednesday and another ScienceWednesday-post from OMF. This time they are looking at the "omes" in biomedical research and gives an introduction to Genome, Transcriptome, Proteome, Metabolome and Microbiome.
  12. Kalliope

    David Tuller's new crowdfunding campaign (April 1, 2018)

    I've been saving up for this. It is an investment as the last year proves. Looking forward to follow Tuller for another year!
  13. Kalliope

    David Tuller - Trial By Error: My Time in Canberra

    Trial by Error: My time in Canberra I’m in Sydney now, but last week I had a busy few days in Canberra. My hosts were the wonderful duo of Libby Steeper and Eleanor Flowers. They treated me like royalty and shepherded me around town to the various appointments they and others had organized.
  14. Kalliope

    Circulating extracellular vesicles as potential biomarkers in CFS (2018) Castro-Marrero et al

    Spotted from @Tom Kindlon on Twitter Circulating extracellular vesicles as potential biomarkers in CFS/ME: an exploratory pilot study A growing body of evidence suggests that extracellular vesicles (EVs) play a role in cell-to-cell communication, and are involved in both physiological and...
  15. Kalliope

    Henrik Vogt: IOM review panel biased by patient influence

    First time I read his story - when he presented his patient organisation Recovery Norge - he had recovered from his tinnitus, but later - in the interview in the Journal of the Norwegian Medical Association - he said he had gotten better. Same with some of the recovery stories shared through...
  16. Kalliope

    Henrik Vogt: IOM review panel biased by patient influence

    Yes, he has tinnitus. It got better after he worked with himself and no longer focused too much on it. Voila - a one-size-fits-all-cure was born.
  17. Kalliope

    Henrik Vogt: IOM review panel biased by patient influence

    He is also behind "gems" like this tweet. My stomach turns just by seeing his name.
  18. Kalliope

    Henrik Vogt: IOM review panel biased by patient influence

    From the interview with Vogt in the Journal for the Norwegian Medical Association (google translation) from January this year. It is written by Elisabeth Swensen, a municipality GP who has downright bullied ME-patients on twitter. "Listen to those who have been fresh" was the headline of a...
  19. Kalliope

    Henrik Vogt: IOM review panel biased by patient influence

    Yeah.. we have some excellent researchers in Norway, but don't think the situation here is swell because of that. There are a lot of people who believe Vogt is making a lot of sense. "Listen to those who recovered, not those who are still sick". Edit to add: The journal for the Norwegian...
  20. Kalliope

    Henrik Vogt: IOM review panel biased by patient influence

    He has founded a "patient organisation" - "Recovery Norge" together with LP coach Live Landmark for patients who have made themselves better by their own efforts. As a medical doctor and part of a patient organisation people actually listen to him. In fact, the national center of excellence in...
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