Spotted a link to this study in a tweet by @Tom Kindlon
It is a qualitative study from Norway with interviews of seven adolescents with ME.
The names of the authors are unfamiliar to me and I didn't get that much from the abstract, so wasn't sure which forum to put this in but decided to go...
This thread has been split in order to create an In Memory thread for Merryn.
To leave tributes to Merryn please go to:
https://www.s4me.info/threads/in-memory-of-merryn-croft.3302/
This thread remains here to discuss media coverage
:cry:
Bed-bound and in unimaginable pain, watching my...
Front news on The Norwegian Broadcasting Corporation (NRK)
30 år gammel vaksineforsøk ender med massesøksmål mot staten
google translation: 30 year old vaccine trial ends with mass action against the state
It is about 150 participants of a trial back in the 1980's on vaccine against...
Chronic Fatigue Syndrome Linked to Low T3 Syndrome
Some people with the condition known as chronic fatigue syndrome (CFS) have low circulating levels of the thyroid hormone triiodothyronine (T3) and normal levels of thyroid-stimulating hormone (TSH), new research shows. The results suggest...
Moderator note: for ease of access,, the livestream recording link and links to threads for individual talks are here:
(Times for the start of each talk in the lifestream recording hour:minute)
Oystein Fluge (0:37)
Wenzhong Xiao and Ron Davis OMF studies excluding metabolic trap (Xiao 1:11...
Another Wednesday and another ScienceWednesday-post from OMF.
This time they are looking at the "omes" in biomedical research and gives an introduction to Genome, Transcriptome, Proteome, Metabolome and Microbiome.
Trial by Error: My time in Canberra
I’m in Sydney now, but last week I had a busy few days in Canberra. My hosts were the wonderful duo of Libby Steeper and Eleanor Flowers. They treated me like royalty and shepherded me around town to the various appointments they and others had organized.
Spotted from @Tom Kindlon on Twitter
Circulating extracellular vesicles as potential biomarkers in CFS/ME: an exploratory pilot study
A growing body of evidence suggests that extracellular vesicles (EVs) play a role in cell-to-cell communication, and are involved in both physiological and...
First time I read his story - when he presented his patient organisation Recovery Norge - he had recovered from his tinnitus, but later - in the interview in the Journal of the Norwegian Medical Association - he said he had gotten better.
Same with some of the recovery stories shared through...
From the interview with Vogt in the Journal for the Norwegian Medical Association (google translation) from January this year. It is written by Elisabeth Swensen, a municipality GP who has downright bullied ME-patients on twitter.
"Listen to those who have been fresh" was the headline of a...
Yeah.. we have some excellent researchers in Norway, but don't think the situation here is swell because of that. There are a lot of people who believe Vogt is making a lot of sense. "Listen to those who recovered, not those who are still sick".
Edit to add: The journal for the Norwegian...
He has founded a "patient organisation" - "Recovery Norge" together with LP coach Live Landmark for patients who have made themselves better by their own efforts. As a medical doctor and part of a patient organisation people actually listen to him. In fact, the national center of excellence in...
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