Search results

I think it was just me - that something happened during google translation and copying it to the forum. The link should work now. Thanks for letting me know.

Some thoughts about NICE In fact, a robust debate about ME/CFS treatments rooted in scientific principles would be welcome, since such a debate has been largely absent in the UK. But it would require the NICE committee to include, in addition to a group of apparent GET/CBT proponents, a...

The research conference will take place Nov. 26th-27th As far as I know it was the ME Association's initiative to organise the research conference last year together with the National Competence service for CFS/ME and the Norwegian Institute of Public Health. Afterwards they decided to repeat it...

Merged thread The Norwegian ME Association withdraws tonight as co-organisers of research conference The Norwegian ME Association has been working on organising a two day research conference next week in collaboration with the National Competence service for CFS/ME and the Norwegian Institute...

Is this in any way similar to Suramin or something completely different?

Family and friends of ME patients have written an open letter to the Minister of Health urging him to help them get back their loved ones. Some of those who have signed the letter are celebrities (actor, musician). The letter gives good information and background story for the unbearable...

Already back then? And now it's even easier to find fellow participants and share notes.

Interesting feature on a topical issue. It's getting easier for patients that participates in clinical trials to connect online and share experiences and information. But what if that leads to unblinding a trial? Also discusses how difficulties in recruiting patients for clinical trials has led...

Review article which is provisionally accepted. Full text published soon. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the era of the human microbiome: persistent pathogens drive chronic symptoms by interfering with host metabolism, gene expression and immunity ME/CFS may be driven by...

Review article is provisionally accepted and full text will be published soon Neuroinflammation and cytokines in ME/CFS: A critical review of research methods We argue that the vast majority of ME/CFS neuroimaging has failed to use optimal techniques for studying brainstem, despite its...

WTF?

#MEAction: Fall advocacy round-up - a season of protest and petition An extensive summary of this autumn's advocacy work around the world. Quite impressive list! :) Includes petitions, introduction of new staff members, news from different parts of the world, protests, and updates on among...

Forum member @JaimeS and her assistant Julia has written an extensive news roundup for September and October. It contains among other news from research, conferences and talks, medical news, science advocacy news, books & media and even Science4ME's 1. anniversary. Well done! #MEAction: Sept...

The chairman of The Norwegian ME Association has written a letter-to-the-editor to a newspaper about the situation for ME patients in Norway where he urges prime minister Erna Solberg to do more for the patients. He gives some historical background and update about recent developments in...

There is now a petition in support of Peter Gøtzsche: Letter to Danish Minister of Health against dismissal of Peter Gotzsche Initiators are: David Hammerstein former member of the Cochrane Governing Board and former Member of the European Parliament Tom Jefferson MD MRCGP FFPHM, Senior...

On this #OMFScienceWednesday we are happy to introduce a wonderful addition to our team, Michael Sikroa. Michael presented at the recent Community Symposium on the Molecular Basis of ME/CFS at Stanford University Full text at OMFs website

The UK ME/CFS Biobank: a disease-specific biobank for advancing clinical research into myalgic encephalomyelitis/ chronic fatigue syndrome This narrative paper describes how people with ME/CFS, together with a multidisciplinary team of researchers, have established the UK ME/CFS Biobank...

Huh, this might be an inaccurate statement from me .. I can't find a quote or source relating to the survey which clearly states that ME is the main cause of school absence in Norway due to long term illness. The survey says 270 pupils with ME are absent from school for over three months...

OMF: A Message from Ron Davis OMF announces that two new Stanford engineering researchers have been added to their team who will expand their red blood cell deformability projects. You can read a further introduction of the two new team members, Eric Shaqfed, PhD and Juan Santiago, PhD by...

The Norwegian ME Association has today had a meeting with state secretary Anne Grethe Erlandsen from the Ministry of Health and Care Services. This is what they say in their Facebook post: The Norwegian ME Association has today visited state secretary Anne Grethe Erlandsen from the Ministry of...