1. Guest, the 'News in Brief' for the week beginning 3rd August 2020 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

frontiers in Neurology: The UK ME/CFS Biobank: a disease-specific biobank for advancing clinical research into ME/CFS (Lacerda et al - 2018)

Discussion in 'BioMedical ME/CFS Research' started by Kalliope, Nov 14, 2018.

  1. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    3,191
    Likes Received:
    32,265
    Location:
    Norway
    The UK ME/CFS Biobank: a disease-specific biobank for advancing clinical research into myalgic encephalomyelitis/ chronic fatigue syndrome

    This narrative paper describes how people with ME/CFS, together with a multidisciplinary team of researchers, have established the UK ME/CFS Biobank (UKMEB), a unique research infrastructure specifically designed to expedite biomedical research into ME/CFS. We describe the journey that led to its conceptualization and operation, and how the resource has served as a model disease-specific biobank, aggregating human biospecimens alongside comprehensive health information on participants. The UKMEB currently has data and samples from 600 donors including people with ME/CFS and a comparison group with multiple sclerosis and healthy controls. A longitudinal sub-cohort has been established of participants having follow-up assessments at multiple time-points.
     

Share This Page