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  1. Kalliope

    David Tuller: Trial By Error: How to Avoid Ethical Review

    How to avoid ethical review I have written many posts about BMJ Open’s 2011 school absence study, which reported that school absence records could be useful in identifying children with chronic fatigue syndrome. However, for reasons not yet adequately explained, the investigators exempted the...
  2. Kalliope

    The New York Times: Peer Review: The Worst Way to Judge Research, Except for All the Others

    Aaron E. Carroll: Peer Review: The Worst Way to Judge Research, Except for All the Others One way to detect problems with research earlier would be to let researchers post manuscripts online before submission, for public judgment before formal peer review. This is already common in some...
  3. Kalliope

    News from Scandinavia

    This is from September, but just discovered it. The Danish doctor Stig Gerdes who stood up for severe ME patient Karina Hansen who had been sectioned by Per Fink, has now reported the director of the Danish Health Authority for neglecting the health of young women. The complaints are sent to...
  4. Kalliope

    Autoimmunity Reviews: Dampness and mold hypersensitivity syndrome and vaccination as risk factors for CFS (Tamara Tuuminen et al - 2018)

    Not sure what this is. Couldn't find the article on Sci-Hub, but thought it was interesting with a CFS-study from Finland. One of the authors is Olli Polo, who has been involved with ME for a while. Dampness and mold hypersensitivity syndrome and vaccination as riske factors for chronic fatigue...
  5. Kalliope

    Solve ME/CFS Initiative and #MEAction lead 10 organizations in request for ME/CFS legislation

    Ten organisations ask congress to create legislation for ME/CFS On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our champions in the House of Representatives – Representatives Eshoo (CA18), Lofgren (CA19), McGovern (MA02)...
  6. Kalliope

    A Swedish reporter is interested in reporting on the PACE Trial

    Josefin Lennen Merckx Medicinreporter SVT Nyheter Rapport & Aktuellt phone +46708847056 connection 47308 josefin.lennen-merckx@svt.se
  7. Kalliope

    A Swedish reporter is interested in reporting on the PACE Trial

    This was posted also in the News From Scandinavia thread, but I think it's a good idea to have single thread for these news. So I'll share my reply from the Scandinavia thread here as well: Oh, this is VERY exciting. The Paolo Macchiarini-scandal surfaced only thanks to a documentary sent on...
  8. Kalliope

    News from Scandinavia

    Oh, this is VERY exciting. The Paolo Macchiarini-scandal surfaced only thanks to a documentary sent on national television in Sweden. Those who had alerted of the scandal before the documentary were very badly treated. Macchiarini published in the Lancet and was protected by the establishment...
  9. Kalliope

    David Tuller: Trial By Error: An Australian Exchange with Professor Sharpe

    An Australian Exchange with Professor Sharpe Below is an exchange between members of the Australian ME/CFS community and Professor Michael Sharpe. The open letter from patients and advocates was prompted by a tweet this week from Professor Sharpe that many considered offensive. He has since...
  10. Kalliope

    Biomedicine & Pharmacotherapy: CFS: Suggestions for a nutritional treatment in the therapeutic approach - Geir Bjørklund et al - 2018

    Chronic fatigue syndrome (CFS): Suggestions for a nutritional treatment in the therapeutic approach Abstract Chronic fatigue syndrome (CFS) is known as a multi-systemic and complex illness, which induces fatigue and long-term disability in educational, occupational, social, or personal...
  11. Kalliope

    Concerns about Cochrane

    the BMJ Opinion Peter C Gøtzsche: Cochrane - no longer a Collaboration In my view, the Board and the CEO should resign. They should resign from their posts and call for independent elections to be held and respect the requests from 31 centre directors and many others for an independent...
  12. Kalliope

    Bateman Horne Center - November Education Meeting: Setting the Standard of Excellence

    This is a video from an event yesterday from Bateman Horne Center; November Education Meeting: Setting the Standard of Excellence First dr. Bateman talks about the history and development of their center. Then she introduces two brand new doctors at the center, Neilly Buckaloew MD and Brayden...
  13. Kalliope

    David Tuller: Trial By Error: Yet Another Letter About the Lightning Process Study

    Yet another letter about the Lightning Process study This morning I sent the following letter to Fiona Godlee, editor-in-chief of The BMJ and editorial director of BMJ. I cc-d Carol Monaghan MP, Darren Jones MP, and Nicky Morgan MP.
  14. Kalliope

    Medscape: Ignoring Patient Input Tied to Diagnostic Error

    Medscape: Ignoring Patient Input Tied to Diagnostic Error Patients' views are not often included in records of diagnostic errors, but new data released on November 5 suggest that patient and family narratives may contain key information that should formally be included in the system.
  15. Kalliope

    Concerns about Cochrane

    Peter Gøtzsche has been suspended from Rigshospitalet (Denmark's main hospital) Rigshospitalet: Status of the situation at the Nordic Cochrane Centre ETA: It was via Rigshospitalet he worked as chief for the Nordic Cochrane Centre.
  16. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    New blog post from initiator Nina E. Steinkopf where she summarises the reasons behind this petition and previous blogposts. Underskriftskampanje for å stanse feilbehandling av ME-pasienter har fått stor oppslutning google translation: Petition to stop malpractice of ME patients has received...
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