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  1. Jonathan Edwards

    Cochrane ME/CFS GET review temporarily withdrawn

    Who is Tracy King and what is it she is worried about - her job?
  2. Jonathan Edwards

    Cochrane ME/CFS GET review temporarily withdrawn

    I am fairly sure this is the first one from the April. The individual data one was sent out to review in the July and has not been seen since.
  3. Jonathan Edwards

    Cochrane ME/CFS GET review temporarily withdrawn

    Where's @dave30th? I was with him a few hours ago at Houses of Parliament - having watched the swans in St James's Park for a bit..
  4. Jonathan Edwards

    Cochrane ME/CFS GET review temporarily withdrawn

    Someone authoritative has said not but I cannot give an official statement. It is pretty unlikely to get published if this is withdrawn since it also has the PACE authors on it as authors.
  5. Jonathan Edwards

    Cochrane ME/CFS GET review temporarily withdrawn

    I have a feeling it is a bit like 'You are just going out side and may be some time.' They have had a year already to address the feedback from the update review that got trashed. They are now having their previous version withdrawn. I don;t think this is likely to reappear.
  6. Jonathan Edwards

    WHO Endorses Traditional Chinese Medicine. Expect Deaths To Rise

    Well, @Esther12 at least it looks as if the Larun review has gone down! Unless I have misread this - on another thread.
  7. Jonathan Edwards

    WHO Endorses Traditional Chinese Medicine. Expect Deaths To Rise

    Well I'm mad, and proud of it, and so might you be too, but maybe we are perspicacious with it?
  8. Jonathan Edwards

    WHO Endorses Traditional Chinese Medicine. Expect Deaths To Rise

    It's crazy. Why doesn't Nature do a piece saying how scandalous this is? Nobody cares any more about reality. Everything is gloss.
  9. Jonathan Edwards

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I am bound by a promise of confidentiality but I can assure you that this is not the case. 'They' are trying to get this right. It is a seriously difficult thing to achieve within the rules because of all sorts of Catch22s, but the people trying to set the committee up are not trying to...
  10. Jonathan Edwards

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I think the important thing is to establish whether treatments work or not - or whether we have reliable evidence of that. If CBT and GET are not cost effective it is just because of not being effective. Adequate care might be more expensive. It would probably involve doctors much more, who...
  11. Jonathan Edwards

    Withdrawal from publication of 'Traditional Chinese medicinal herbs for the treatment of idiopathic chronic fatigue and chronic fatigue syndrome'

    Something is going on beneath the surface. It is not entirely clear what. It seems peculiar that Chinese herbs should get the first chop, so to say. Although it may not actually be the first chop. More transparent would certainly help.
  12. Jonathan Edwards

    Blog: The PACE trial - a complaint.

    I think it is probably fair to say the 2007 review was influenced by the PACE trial. By then PACE was under way and the results had been reliably arranged. The NICE committee was very likely informed that these results were going according to plan, even if recruitment was annoyingly slow. And...
  13. Jonathan Edwards

    Re-Hydration

    Much the commonest reason for dehydration is water loss through sweating in heat or during exertion. Sweat contains a reasonable amount of sodium. Salty water is disgusting for some reason so I expect salty crisps were thought to be a good alternative - probably fair enough. Where I think the...
  14. Jonathan Edwards

    Re-Hydration

    Right, but sometimes I worry that irony gets lost when people are asking for genuine advice.
  15. Jonathan Edwards

    Re-Hydration

    Except that the article points out that this is bonkers. Dehydration is shortage of water so any water will help.
  16. Jonathan Edwards

    Re-Hydration

    I don't think any sugar is needed for rehydration. The WHO advice is for children with diarrhoea who presumably benefit from sugar because they cannot eat anything solid. Rehydration just needs water. If there has been salt loss from sweating or potassium loss from diarrhoea then there may be...
  17. Jonathan Edwards

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    I strongly suspect the project was a waste of time - asking students questions in a 'qualitative study'. One of the commenters makes the point that ethics committees have to protect people who feel obliged to help - like students and junior staff, from repeated intrusive requests to be part of...
  18. Jonathan Edwards

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    Yes, indeed. It could get to a new place and stay there. Or it could maybe flip flop between states. You see that with paroxysmal atrial tachycardia. But PWME are not in one of two states. They go up and down in various steps and often fairly gradually as I understand it. And there does not seem...
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