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Yes, where is the discussion of the very real possibility that the RCTs are actually not that well done, are highly misleading, and these treatments don't actually work that well, if at all, regardless of how well they are 'administered'? The whole field of mental health is now such a hot mess...

This is important.

I don't think that the epidemiological data on ME/CFS is sufficiently robust at this stage to be drawing definitive conclusions, beyond maybe a gender bias toward females.

I made a post a while back on the News from the Netherlands thread that was not the most complementary to Wüst. So of course he then produces what may be one of the most important studies, and accompanying research programs, in the game. Exactly the sort of thing I have been arguing for years...

Excellent video. Thanks to Eliza and Dan. :thumbsup: Sadly, what Eliza said about the state of medical attitudes to ME/CFS in Australia is all too true. It really is seriously messed up here. But that is what happens when you have people like Lloyd, Hickie, Glasziou, and Swan holding the...

“I’ve gone back to work for the NHS because it was the better option.” Which, given the rapidly declining state of the NHS, is a damning indictment indeed.

Now do the same study for patients subject to the controversial claims of those professors. Compare and contrast.

It is not clear at all to me if 'recovered' patients are actually fully recovered in the conventional sense, or if the degree of underlying pathology has reduced to a level that is no longer a practical issue to them, and they – quite understandably – want to put as much distance between them...

Savages. :mad:

The Chalder fatigue scale will measure the primary outcome of fatigue. What could possibly go wrong? And with the generous post-hoc revised definition of harms.

Low or very low certainty/quality of evidence. One could almost be excused for thinking there is a pattern here.

I have better or worse days, in both how I feel, and how much I can get done. But I have not had a single day since I got sick forty years ago this October that was not seriously limited and made much more difficult by ME/CFS. There have been no 'good health' days. It has been a horror show...

+1

May have already been asked, but will all this be available on YouTube, etc, later?

Did they offer an English translation? Or are we relying on machine translation?

ME/CFS is a diagnosis that leads to problems with significant fatigue and other problems that cannot be objectively measured. That is just not true. We can measure stuff like physical capacity (particularly PEM related, including stamina, e.g. CPET), employment and welfare levels, etc. If they...

while 408 (17%) patients developed new-onset hypertension, Seems the most relevant bit. That COVID could exacerbate existing conditions, particularly cardiovascular, is not a surprise. That is can induce them in patients who did not previously have them is more interesting.

When SEID was first suggested patients were largely against it. So it never caught on. (I was one of those for it, but that view did not win the day. I think it too late now to be changing the name again until we have a much clearer handle on the basic nature of the disease.)

Nice work, Ren. :thumbup:

ME/CFS is the least worst compromise we have for now. While ME has its problems, CFS on its own is completely unacceptable for me. It has way too much baggage and ambiguity, and is seriously misleading.