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indeed, that drivel about "mirroring" her mothers backache made me feel sick, poor, poor girl. I hope lessons will be learned, and perhaps they will, by the main Drs involved, but the wider profession will likely just um & ah & go on doing the same thing. I'm so very sorry to hear this, its...

lol :eek::rofl: They will make yet another category of illness.... MUCPs... Patients suffering from Medically Unexplained Care Plans

lol i know its not funny really but that really made me laugh, its like a Monty Python sketch

Fantastic clear presentation @Brian Hughes thank you

All i know about it is from someone i know who is a special needs teacher, & is also autistic themselves. From what i heard from them, ABA sounds really abusive to me. Its a lot of yrs since i spoke with them about it but i was appalled at the time. I think i remember its popular in the states &...

if they can do that i think it would be useful. The only thing that worries me is these 2 statements... (my bolding) It worries me that what will come out of it is something akin to 'this study shows definitively that people who are less active get more fatigue and have more fatigability'...

it must be really tricky! I only asked because i looking to give a good overview vid to a nurse i'm going to be working with (for something else). I will prob give the new short one & the PEM one & maybe something from the Dialogues project. But this one is so good including everything, but I...

Hi @Adam pwme this is such a brilliant video, but i wondered if you had any plans to update it now the NICE GL has been redone? No pressure, just a query :)

wow, how lovely, i hope you dont take that for granted! :)

that was my exact same thought. Same with the tax office. Particularly if you have a problem which is not covered in the options.... Apparently you can only have one of 6 problems, no others exist. but as you say Peter, it just disconnects you at the end whichever option you pick anyway. Same...

I haven't read the article, but what i have experienced is that anything, anything that i do to try & improve sleep, is radically counter productive. I do a meditation for sleep, that works only as a fabulous afternoon relaxation exercise, it doesnt put me to sleep but its lovely. If however...

yes me too the other pretty silly thing about it is that there is no 'back' button. Not good for people with cognitive difficulties, i made mistakes but cannot correct them as no way to go back

how does one know if one's records are flagged?

I'm pretty sure that to the PwME that have the misfortune to meet these people in a professional capacity, they will feel very much like their enemies

lol what a joke, they all would trigger worsening & a concert would be beyond my wildest dreams ! an inspirational speaker :sick: pukesville oh, wait....... listening to David Tuller @dave30th gives me considerable uplift ;) but i dont suppose thats what they mean :D:D:D

since when is there any evidence that personality disorders are more common in FM or CFS? I have seen them try to say anxiety/depresion but not personality disorders, have i missed something. In fact i never came across a person with ME who had a PD, although i'm sure there will be some just as...

absolutely, i would LOVE to try & see what happened if i was able to really pace properly & see if it helped, to try all kinds of things but as it is its just an attempt to survive & get through as best i can. Life circumstances over which i have no control, simply wont allow it.

@Three Chord Monty was your post supposed to show something on reddit?

lol understatement :eek: :D