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  1. rvallee

    The NIH should create an Office of Infection-Associated Chronic Illness Research - proposed by the American Association of Scientists, 2024.

    Merged thread Revolutionizing Research And Treatments For Infection-Associated Chronic Diseases https://fas.org/publication/revolutionizing-research-chronic-diseases/ By: Ryan Prior The National Institutes of Health should create an Office of Infection-Associated Chronic Illness Research...
  2. rvallee

    Etiological Factors and Symptom Triggers in Functional Motor Symptoms and Functional Seizures: A Pilot Investigation 2024 Millman et al

    Tiny study finds ill people report common symptoms and consequences of illness, experts baffled, invoke magical fallacies Part 395643. Their entire ideological construct is that it's biopsychosocial, that they're still doing "pilot" studies to find evidence, any evidence, for biopsychosocial...
  3. rvallee

    News from Australia

    https://www.telegraph.co.uk/news/2024/03/15/doctors-no-such-thing-as-long-covid/ They know this is how it will be reported. They obviously are questioning that it exists, we've seen this play out for decades. In fact they're explicitly saying to do nothing about it, since nothing is what's...
  4. rvallee

    Global, regional, and national burden of disorders affecting the nervous system, 1990–2021: a systematic analysis for the Global Burden..., 2024

    Given everything we know about how ineffective neurological medicine, and how Freud still rules everything they don't understand, this is horrifying. It's also likely to be an undercount, since it obviously doesn't count most neurological issues found in chronic illnesses, like dysautonomia and...
  5. rvallee

    Global, regional, and national burden of disorders affecting the nervous system, 1990–2021: a systematic analysis for the Global Burden..., 2024

    Global, regional, and national burden of disorders affecting the nervous system, 1990–2021: a systematic analysis for the Global Burden of Disease Study 2021 https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(24)00038-3/fulltext Findings Globally, the 37 conditions affecting the...
  6. rvallee

    UK, Guardian, Alarming’ rise in Americans with long Covid symptoms

    Impressive that it's published on the same day as some media, including the Guardian, publish the latest bit about "scrapping" the term Long Covid, which obviously they can't do something about since it's used by the patient community, so it's not as if medicine could use it any less. It's...
  7. rvallee

    Physical Activity, Long-COVID, and Inactivity: A Detrimental Endless Loop, 2024, Lippi et al.

    Sometimes you just have to despair at how incompetent these people are. And childish, this cartoon is completely unprofessional and dumber than a bag of rocks.
  8. rvallee

    Physical Activity, Long-COVID, and Inactivity: A Detrimental Endless Loop, 2024, Lippi et al.

    Just incredible. If you actually listen to long haulers, they overwhelmingly report that it's physical activity that made them deteriorate. It's genuinely hard to be this wrong. Most people will never be half as wrong about anything in their entire life. All these bad clinicians are showing is...
  9. rvallee

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Well this is all very disturbing. For sure Nath betrayed us. He made a choice equivalent to putting a coal executive in charge of a climate policy initiative. The example of an extreme misogynist in a women's initiative also works. Walitt's beliefs are pure bigotry, putting him in this position...
  10. rvallee

    Review Effect of exercise for depression: systematic review and network meta-analysis of randomised controlled trials, 2024, Noetel et al

    Oooh, it has to be that study that only had a single certainty rating that isn't very low, and that one is still low... It is! Would you look at that, like a mirror of the ME studies, all of which are either highly biased, or biased, and vastly overhype pre-determined opinions that have no...
  11. rvallee

    Preprint Changing patterns of multimorbidity among patients with ambiguous diagnoses: case of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2024, Bragée

    It's not a traditional view, it's The lack of coding in health records actually reflects the fact that it's not the traditional view, in fact this most commonly reported inflection point is widely disputed, hence the invention of the generic "chronic fatigue syndrome", detached from any...
  12. rvallee

    Trial Report Resting state EEG rhythms are abnormal in post covid-19 patients with brain fog without cognitive and affective disorders, 2024,

    Same old crap about functional somatic bla bla bla. This is like trying to find the source of a sound, testing for electrical buzzing, and concluding that the electrical circuit is fine means that it's ghosts. Has to be. It's the latest fashionable theory, after all. It's incredible how smart...
  13. rvallee

    Physical fitness in children with Marfan and Loeys-Dietz syndrome: associations between cardiovascular parameters... 2024 Warnink-Kavelaars et al

    They absolutely don't. This is what's truly wild about this brain-dead ideology, there is nothing that ever suggests any of this, it's simply their opinion, which they don't reason into and is blatantly post hoc fallacy. Their reasoning about finding the perfect balance of words and activities...
  14. rvallee

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Fantastic letter. I hope it gets published. Can a letter be published as coming from the forum itself? Without names?
  15. rvallee

    We ignored AIDS. Let’s not repeat the mistake on long COVID

    We ignored AIDS. Let’s not repeat the mistake on long COVID https://www.nj.com/opinion/2024/03/we-ignored-aids-lets-not-repeat-the-mistake-on-long-covid-editorial.html Written by the editorial board of the Star-Ledger. In the earliest days of the AIDS crisis, America ignored the problem, even...
  16. rvallee

    From Somatoform Disorders to Functional Somatic Disorders and beyond: 25th International Anniversary Symposium Functional Disorders, 16th May 2024

    From Humpty to Dumpty. That's the range these people play with. There is as much significant variation than in homeopathic concoctions. It's actually one of the wildest things that they all seem to pretend like their dozens of identical definitions of the same thing are somehow different in any...
  17. rvallee

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Fantastic article! Ironic that on the left side, one of the recommended articles is literally one of the opinion pieces going against the NICE guidelines. I'm sure it would have been too awkward to name it on their own pages, but the Guardian has played a significant role in pushing this...
  18. rvallee

    Making a 'Charter for Ethical ME/CFS Research'

    I'd say that it isn't even necessary to name psychosomatic or psychological research directly. All that's needed is stringent requirements and it takes care of itself naturally. Biopsychosocial research cannot withstand rigorous methodology, the only way they can pretend to is to lie and cheat...
  19. rvallee

    Making a 'Charter for Ethical ME/CFS Research'

    Goes without saying that such an organization would not sign the charter. One way to resolve this could be requiring the endorsement of X charter-signing organizations, rather than just one. Depends on how many there are in total. Not too onerous, but enough to make it sure that it isn't some...
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