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    Dr Byron Hyde - Canada

    He's supposed to be having a book about ME published soon. And I had no idea he practiced psychotherapy. Did he have training as a therapist? I mean, are GPs in Canada allowed to provide psychotherapy?
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    Trial By Error: My Letter to Professor Chew-Graham about the Cost of MUS

    Ah, that's interesting. I'll amend my post I guess.
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    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    Hi, I just saw this--yes, I'm interested. I don't remember getting a Facebook message about this but certainly I miss things.
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    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    The idea that I was "instrumental" in persuading Cochrane to do anything is ridiculous. I had a meeting with David Tovey in which I pressed the case. Period.
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    “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019)

    He also tweeted about my original Trial by Error series that it was an "ad hominem attack," if I remember correctly.
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    Monitoring treatment harm in [ME/CFS]: A freedom-of-information study of National Health Service specialist, 2019, McPhee et al

    This is true of course. But a well-written account of, say, 20 or however many clinic patients interviewed or questioned in a systematic way would be a contribution to the literature. Even if if were randomized, they would find a way to criticize it. Qualitative research can't be used to make...
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    Monitoring treatment harm in [ME/CFS]: A freedom-of-information study of National Health Service specialist, 2019, McPhee et al

    I think a qualitative study of people's accounts on this would definitely make a good paper.
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    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    This might or might not be true. But I see no reason to take their word for it that the change was based on the qualitative findings, especially given a history of not telling the truth about the conduct of the trial. They didn't need to analyze the data to know which way trends were heading and...
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    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    About the school attendance records--this was listed in both the protocols for the feasibility trial as well as the full trial protocol. They didn't report it in the feasibility trial report. They presumably already knew they didn't have the "capacity" to gather those data by the time they wrote...
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    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    wow! what kind of an insane person would devote that kind of energy on such a piece of garbage??
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    Current Research Provides Insight into the Biological Basis and Diagnostic Potential for ME/CFS. Sweetman et al. (2019)

    The journal publisher has previously been accused of publishing so-called "predatory" journals. https://en.wikipedia.org/wiki/MDPI#Controversial_articles
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    Trial By Error: Some Thoughts on MUS and Bermingham; My Letter to Professor Payne

    Hi I'm confused how this would work. You got CBT from this private organization rather than NHS? But NHS covers the cost?
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    Trial By Error: Some Thoughts on MUS and Bermingham; My Letter to Professor Payne

    I can understand that. They have different goals. It's good for me to try to do a mix of both.
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    Trial By Error: Some Thoughts on MUS and Bermingham; My Letter to Professor Payne

    Thanks. I'm sure there are other instances out there as well. I'm sure most don't read the study but just pick up the mistake from previous mis-citations.
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    Trial By Error: FOI Response from Bristol about LP Study; Correction in BJGP about MUS

    Roughly, the calculated cost (and I'm not endorsing Bemingham et al's figures) was about 3 billion pounds in the year examined. The total NHS budget that year was around 100 billion. The cost of services for those of working age was about 30 billion. So the misstatement makes it seem like the...
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    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    It's been a while but did anyone notice if "later next year" actually happened? It's a bummer that the document isn't OCRed, makes going through it harder than it should. The issue does not seem to have come up in the rest of the minutes that I could see. Lucibee also mentioned that in her...
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    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    Hey Richard--can you tell me where in the trial meeting notes this is? I'm trying to write a post about the actometer issue. I see some of the references in the trial meeting notes but didn't see that point being made. The main issue raised as I saw was that the failure to demonstrate any...
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Right. and yet she still let herself get used by the SMC to promote that piece of crap And when I pointed out to her the methodological problems, she misread them and, for a second time, gave the study a clean bill of health. Her actions on this matter have been disgraceful.
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    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    yes, as did I. And I wrote him back thanking him for letting me know. I don't see a reason not to prompt these folks when things seem slow. They don't have a good track record of following up. I'm glad Professor Jones decided, in the end, to take the issue seriously and not continue to downplay...
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