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    Michael Sharpe skewered by @JohntheJack on Twitter

    Let's also remember this quote from Professor Sharpe in his 2011 interview with Norman Swan on the ABC network in Australia not long after The Lancet published the first results: “We have a number needed to treat; I think it's about seven to get a clinically important treatment benefit with CBT...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    The PACE protocol agreed to abide by the Declaration of Helsinki. The Declaration is very clear about what is required to obtain INFORMED consent-and it was clear in 2005, when PACE started consenting patients. Researchers must declare "any possible conflicts of interests." That is a much more...
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    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    The other thing about BMC Neurology is that the journal added an editorial note to the published protocol noting that investigators are supposed to stick to their protocols and that readers should contact the investigators if there is any deviation from the protocol. I cited this attached...
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    Hi, @Allele, thanks for checking. I posted on Facebook asking that people donate only in their own names or anonymously. The names made me chuckle also when I saw them but it's really best if people don't do that on the crowdfunding page. There haven't been others since then, but maybe it's best...
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    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Any hashtag should go for the larger message and not include my name, I think.
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    David Tuller: Trial By Error: My Berkeley-Backed Crowdfunding Campaign

    I am laying low on commenting on things related to the tweet in question to avoid appearing to inflame anything.
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    I sent a note to the crowdfunding manager, and he agreed PayPal would be useful, but they're not set up to do that yet. This is a fairly new experiment for the university, and most of the projects in this round are pretty local--I don't think they really expect much money to come in from...
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    Trial By Error: A Terrific Piece about ME/CFS on Australian TV | 4 April 2018 | David Tuller

    Thanks, everyone, for your concern. I'm very touched by it. Since that piece ran, I've gotten some anxious messages about my health. So, yes, it was an emotional moment, but I wanted to reassure everyone that I'm fine. The interview must have lasted an hour or so, and I cried for like 45 seconds...
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    David Tuller - Trial By Error: A Post About Andrew Lloyd

    @Bill Thanks for your comments. No harm done, and I accept that we can disagree about whether those particular phrases were an unwarranted personal attack. Thanks for raising the issue. As I said, I think about any criticism. In this case, were I to do it again, I would likely have made a...
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    David Tuller - Trial By Error: A Post About Andrew Lloyd

    He cites the theory of "central sensitization," as do his recent papers. He acknowledges that this concept is a hypothesis. The purported mechanism through which GET is presumed to work is that it "desensitizes" people to exertion by gradually increasing it.
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    David Tuller - Trial By Error: A Post About Andrew Lloyd

    Ok, can we calm down here? On a positive note, I'm now on a flight from Melbourne to Adelaide--who knew Qantas has free wifi? What a cool surprise! Anyway, I'm used to criticism so it's not a big deal for me, and I've been called much worse than "asshole." I listen when people criticize me and...
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    David Tuller - Trial By Error: A Post About Andrew Lloyd

    Bill, I understand your point, but here's some context--In approaching him initially, I wrote that I was likely to be critical and offered him a chance to respond to any criticism. He wrote back that he was unfussed by any criticism and therefore didn't respond to it unless it was criticism of...
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    David Tuller - Trial By Error: A Post About Andrew Lloyd

    well, we all have our perspectives. You're right that I could probably have made my point in a softer way, but I really think "character assassination" is a bit strong in this case. In any event, it's hard to spend a few hours listening to people uniformly telling me they've been harmed by what...
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    David Tuller - Trial By Error: A Post About Andrew Lloyd

    Hi, Bill--I'm sorry to hear that you're embarrassed by me. I guess one could describe what I wrote an ad hominem attack, but it seems pretty mild to me, at least from my American perspective. I would say that someone who routinely calls himself the "leading light" of anything should be prepared...
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    David Tuller tours Down Under!

    Yes, I was very encouraged to see that even at U. of Tasmania there is interest in advancing biomedical research. The neuroscientist had trained at Oxford and knew my buddy Michael Sharpe but was 100% on the non-BPS side of the issue. He said he had definitely sensed a change in attitude toward...
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    I'll ask Berkeley if Pay-Pal is an option. I didn't realize credit cards were an issue. It's been my policy not to take money directly from anyone. That doesn't feel right somehow.
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    Thanks, @Binkie4, I feel privileged to be able to work on this project.
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    Thanks for all the support, folks! I think it's in the nature of these things for donations to wax and wane. I specifically asked for the default lowest donation to be changed from $25 to $10, like I did last year, because I know many people want to give but are living on very little and $10 is...
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    In terms of last year's overage of almost $12,000, yes, that helped me determine the ask. But the main reason is that $72,000, give or take, is really what I need to cover the 50% costs. When I started off asking for $60,000 last year, I knew I was under what I needed by a few thousand dollars...
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    David Tuller - Trial By Error: My Time in Canberra

    Hey Esther12--that specific commentary did not come up but we did talk about his citing of PACE in his work and his attitude toward PACE and related studies. I will report on this later on.
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