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Thank you @Robert 1973.

Fortunately, I look exactly like my profile pic. ;) I have a blue "END ME/CFS" wristband (from OMF). I could wear this to make it easier to find me. I'll also message @Andy a pic. In London last year , I printed the logo from the "other" forum (before S4ME existed), and attached it to my...

A review of vitamins and dietary supplements by patients with Multiple Sclerosis found that the only "vitamin" with sufficient evidence to support supplementation was Vitamin D. Use of Vitamins and Dietary Supplements by Patients With Multiple Sclerosis: A Review...

Thanks Nellie, I had missed it. @Andy, I'll also be there with my wife.

Another article about the same Nature research paper. https://scienceblog.com/501190/new-research-finds-key-players-in-ms-progression/

Good points. For many years, I was told by doctors that inability to function, loss of concentration, sleep and memory issues were all just symptoms of depression. Of course, fatigue was dismissed as a symptom of depression too. It didn't matter when I would tell doctors that my mood didn't...

It's slightly different in the US. The term "Graded Exercise Therapy" is largely abandoned, exercise is almost never touted as a cure, and "false illness beliefs" is rarely mentioned. But increased exercise is still regularly promoted. Here's how the CDC weasel words it: Again, that idea that...

I've long thought, with no evidence, that there are more ME patients misdiagnosed with depression, than there are ME patients diagnosed with ME. At least in the United States. When only 10% of ME patients are diagnosed (CDC), it doesn't take much of a leap to think there might be more than 10%...

In the "Multiple Sclerosis in America 2017" survey, 53% reported depression. Another recent article states "more than half of people with MS will experience depression at some point in the illness." Also, research has shown that "people living with MS who reported higher levels of stigma also...

Uh oh. Time for another blood draw at Stanford? They took 13 vials last time. :laugh: Fantastic news! I am very excited. :)

https://multiplesclerosisnewstoday.com/2018/05/24/slower-rate-of-brain-stimulation-may-be-best-for-ms-other-patients-study-suggests/

"So far, in the nanoneedle, every patient shows a clear signal, and none of the healthy controls do." (at 5:50 mark).

I doubt Feinstein would care about S.RES.508, except the Democratic Party refused to back her for re-election and right now she is probably looking for all the votes she can get for next month's election. I could say more, but this is not a political board and so I bite my tongue. Still, glad...

Does your tablet have voice command features? So you can speak commands rather than using your arms all the time.

With some basic training, doctors should be able to fairly easily distinguish SEID from depression. What's missing so far is the training.

It's really a religious argument. There are the true believers, and then there is everyone else. A schism is not the way forward.

Patients at this time can't reliably determine the correct definition(s) of this disease(s). More funded biomedical research is the only way to untangle a mess that took decades to create. In short, we need more biomedical research funding, better clinical care, and government recognition that...

If you were in California, you’d make a complaint to the Medical Board of California. They do take complaints seriously and regularly discipline physicians. Most of their twitter feed is about actions taken against doctors.

Other relevant citations: NY State Dept of Health: "ME is not a psychiatric disorder and it is not caused by a lack of exercise." National Academy of Medicine: ME/CFS "is a medical — not a psychiatric or psychological — illness."

I think it's important to keep repeating this. 2015 CDC Multisite Assessment: "ME/CFS patients show significant impairment, particularly in vitality and physical functioning subscale scores, but with preservation of mental health and emotional role functioning."...