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One thinkg I never mentioned: I've already been evaluated and scoped by an ENT doc. He told me surgery was not an option and there was nothing he could do for me. My primary are doctor simply prescribed Flonase, which I found essentially worthless. I've been looking for sinusitis solutions on...

I've tried it several ways, and these work best for me: Like in the video, letting it sit in water then swabbing inside my nostrils Letting it sit in water, then squirting it deep towards my nasopharynx with an earwashing syringe bulb Applying the powder directly by swabbing it inside my...

Apologies if this meanders a bit, but my thoughts have been very scattered for a couple months now. I've been using this product for about a month, and I feel like I'm still learning. I really haven't had the energy to properly track my progress. But I'll note some things I think I've learned...

Here is the direct link to the broadcast schedule. http://www.pbs.org/independentlens/tv-schedule/ Click on the "Local Listings" button to find your local broadcast.

https://ce.mayo.edu/psychiatry-and-psychology/content/psychiatry-medical-settings-2018 Psychiatry in Medical Settings 2018 Sarasota, FL US January 25, 2018 to January 27, 2018 The Psychiatry in Medical Settings course returns for its seventh year. The course will provide up to date reviews of...

Part of my frustration with the CDC is that while they delay, major healthcare providers such as the Mayo Clinic and Kaiser Permanente (11 million members!) continue to recommend GET and CBT for ME/CFS as if nothing has changed. ETA: A couple current Kaiser Permanente links. Caution: reading...

I disagree with the story that the psych explanation for symptoms started in the mid 1980s. From personal experience, I can say this narrative was already well established in 1979.

One interesting finding in other reports is that smoking rates are very different in ME, MS, and Depression. In a UK biobank study on cognitive and sleep symptoms in ME/CFS and MS, the following percentage are reported as current smokers: ME/CFS: 10.5% Multiple Sclerosis: 27.7% Healthy...

I note that Benoit Chassaing from Georgia State University will be speaking. His research has shown that emulsifiers in processed food leads to Crohn's Disease and colitis in mice. He's an expert on the gut and chronic inflammatory disease. One can only hope Chassaing will ask Crawley some...

According to his Twitter feed, Michael Van Huffel has been doing IVIG infusions, as well as antibiotics.

I have no inside knowledge, but based on his California residency and the statement "Michael is taking part in an academic study which aims to provide some answers. And he still has hope.", I concluded he is likely a patient at Stanford (or possibly OMI) and in a clinical study at Stanford...

The Wayback Machine doesn't mention summer 2017, only end of 2017. Thanks for the link, @Andy. That should settle it, and yet... A PR forum post by medfeb states "So far, the update is just the page for the general public. The healthcare providers version to follow this summer."...

Thanks for the info. If I recall correctly, the CDC update material was scheduled to be available summer 2017, then delayed to end of 2017. Now it’s early 2018? Why the continued delays?

BBC covers the realities of living with ME. http://www.bbc.com/news/stories-42404500

The debate has already been elevated from a patients vs. Crawley debate to a scientists vs. Crawley one. This is where the discussion needs to be. I'd rather give a small donation to David Tuller than sign a petition. Disclaimer: I have no children and don't live in the UK.

As a side note, when I filled out the CCC criteria evaluation form at Stanford (for a study), the "Pain" section was all lumped together. Body pain, joint pain, headaches, etc was all one checkbox. Since I experience headaches, I checked the box. But I have no pain apart from pressure headaches...

While very informative, it was emotionally difficult for me personally to revisit these symptoms. Thank you @Kalliope for posting.

I agree with you. Still, the page gives the impression that after nearly a year of "working" on this, the CDC just threw up some links to external sites and didn't even bother to proofread the page. Minimal effort expended. On the plus side, they aren't bad links.

IL-12 therapy is also used in non-Hodgkin T-cell Lymphoma, which my sibling died of in her mid 20s. https://www.researchgate.net/publication/11754605_The_Role_for_Interleukin-12_Therapy_of_Cutaneous_T_Cell_Lymphoma Also, IL-12 has been implicated in insulin-dependent Type 1 diabetes mellitus...

My ME/CFS diagnosis was delayed for years because the disease criteria my HMO used required pain, which I don't have (just episodic headaches). The IOM criteria don't require pain, and that's when I finally got diagnosed (2015).