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Excellent news. Keep us posted. :thumbup:

Just to clarify, this is a brand new product which only contains L. Sakei and not the other strain. This isn't the sausage product. I wouldn't recommend the sausage product for sinus issues. But do your own research first.

So far I've noticed a considerable improvement in my sinus congestion, and can sleep at night without sinus rinses for the first time in a decade. However, a number of products have been beneficial short term (zinc comes to mind), only to stop working after a couple weeks. I need something long...

I hope the antibiotics work out for you. But if they don't, I wanted to mention there's a new sinus probiotic available, called Nasobiotex L. Sakei Probiotic Powder. It might be worth asking your ENT doctor about...

This thread reminded me of an article I read recently, where Elizabeth Unger MD, PhD, chief of the chronic viral diseases branch of the CDC was talking about ME/CFS. At the end of the quotes below she speaks of "sickness behavior"...

I noticed Amazon has a new product, "Pure L. Sakei Probiotic Powder 10 Billion+ CFU/gm" by Apothex Nasobiotex. Has anyone tried it? I've just placed an order, and will be trying it out to see if it helps my chronic sinusitis better than daily sinus rinses and nasal sprays (which do help...

I can't help but be reminded of The Synergy Trial at Stanford. The Synergy Trial "evaluated the safety and efficacy of methylphenidate (generic Ritalin), combined with a mitochondrial support nutrient formula over 12 weeks". "The difference between the two groups did not achieve statistical...

http://www.bbc.co.uk/editorialguidelines/guidelines/accountability Section 19: Accountability Principles 19.1.1 The BBC is accountable to its audiences. Their continuing trust in the BBC is a crucial part of our relationship with them. We will act in good faith by dealing fairly and openly...

I found it interesting that Moreau said he thinks ME/CFS will be broken down into subgroups in just 2-3 years.

My vision fluctuates frustratingly from day to day, even hour to hour. Only resting with my eyes closed seems to help a bit. All my eye tests (including pressure) are normal. Here are some related links, including Phoenix Rising threads, that might be helpful (not recommendations). Jason et...

I always mention I have ME/CFS, and based on their response, either keep them or find another. They don't have to be knowledgable, but if they aren't at least open to the idea that ME/CFS is an actual medical condition and willing to learn, there really is no point.

Ask for neurocognitive testing. Ask to rule out similar disorders such as Multiple Sclerosis, Myasthenia Gravis, Lupus, Behcet's Disease, Ehlers-Danlos syndrome, sleep apnea, narcolepsy, etc.

Great point. I wish the revised CDC website described the disability and functional impairment better. Then perhaps the media would pick this up as well. :cool:

While I agree that Watts is mild (after all, he can hold down a full time job), I just wanted to say not to attach too much importance to labels. Personally, I was diagnosed with SEID criteria, because that is what my primary care doctor was familiar with. It doesn't mean I'm less sick than...

Not treated.

Great question. When I went to Open Medicine Institute, and mentioned paralysis, they immediately thought Myasthenia Gravis. It took over a year to get approval from my HMO for MG testing (including calcium channel), which came back negative. I did a trial of Mestinon, but it didn't help...

Possibly of related interest, Acute Flaccid Myelitis (sometimes called Acute Flaccid Paralysis) generally affects children, but can also affect adults. The cause remains unknown, but enteroviruses, adenoviruses and West Nile virus are suspects. My viral onset (age 15) was similar to these...

After diagnosis, MitoQ was one of the first things I tried. 9 months with no discernible benefit, as I posted on PR. My wife loves the MitoQ skin cream product, however. :rolleyes:

Was hoping to find another article to show to my doctor. I think I'll pass on this one.

Not to hijack the thread, but due to my personal circumstances, I don't have a choice. It's Kaiser Permanente or no medical insurance. From my perspective, I feel fortunate to have Kaiser.