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  1. Webdog

    BBC News: MP Carol Monaghan leads campaign for new ME treatment

    Cached by Google. http://webcache.googleusercontent.com/search?q=cache:wn8_RCuHFukJ:www.locumplacementgroup.co.uk/mp-carol-monaghan-leads-campaign-for-new-me-treatment/+&cd=1&hl=en&ct=clnk&gl=us
  2. Webdog

    Tuberculosis Vaccine as a cure for diabetes, multiple sclerosis

    http://fortune.com/2018/06/21/tuberculosis-vaccine-reverse-juvenile-diabetes-study-shows/
  3. Webdog

    Dysautonomia International Conference 2018 (Nashville, TN)

    The doctor's "motivational interviewing" failed to elicit patient "change talk". Change talk has been shown to be predictive of behavior change. (I only burst out laughing once while typing that. :laugh:)
  4. Webdog

    20/21 June 2018 | Next CFSAC meeting (webinar)

    Recordings for all the CFSAC meetings/webinars are here: https://www.hhs.gov/ash/advisory-committees/cfsac/meetings/index.html Not sure how long it will take for the latest meeting to be available.
  5. Webdog

    20/21 June 2018 | Next CFSAC meeting (webinar)

    The public comment session had some very emotional moments. Hopefully some of it made an impact.
  6. Webdog

    20/21 June 2018 | Next CFSAC meeting (webinar)

    I too was shocked, after going through the installation procedure, to have to call in separately from the slideshow. My computer balked during the slideshow software install, because their security certificate expired last year. Had to manually accept the expired certificate. Once installed...
  7. Webdog

    Healthwise to "retire the GET/CBT topics" from medical content

    I think the eBrief mentions type 2 diabetes, heart disease, cancer, and COPD but implies that changing patient behavior improves patient satisfaction, clinical outcomes and healthcare costs for chronic conditions in general. I see no differentiation between chronic illness that is linked to...
  8. Webdog

    20/21 June 2018 | Next CFSAC meeting (webinar)

    ICD code recommendations 2 and 3 were voted on and approved. The federal agencies will have to respond. (My healthcare provider doesn't currently allow a G93.3 diagnosis, only R53.82.)
  9. Webdog

    20/21 June 2018 | Next CFSAC meeting (webinar)

    Lucinda Bateman talking now. Her Medical Education Workgroup committee recommends establishing an ME/CFS "Project ECHO" to deliver medical education to doctors anywhere through a tele-mentoring program. Cost would be $100k-$200k annually. Sounds like this will be voted on later today. Edit...
  10. Webdog

    David Tuller: Trial By Error: An Open Letter to The Lancet, Two Years On

    I was wondering the same thing. I found this: https://archive.ahrq.gov/research/findings/evidence-based-reports/er219-abstract.html
  11. Webdog

    Video: The PACE trial: a short explanation, Graham McPhee

    After watching Graham's YouTube video (and several sessions of CBT), I was persuaded to change my rating from a thumbs-down to a thumbs-up. :thumbup:
  12. Webdog

    Healthwise to "retire the GET/CBT topics" from medical content

    Sorry if the link to the eBrief PDF got lost in all that text. The direct link is here: https://pages.questexweb.com/rs/294-MQF-056/images/8386.pdf?aliId=5084751842 and the landing page to sign up for the eBrief is here...
  13. Webdog

    Healthwise to "retire the GET/CBT topics" from medical content

    Healthwise has a new "eBrief" out, called "Behavior Change: Improving Outcomes by Guiding People to Success". I'm just going to type up a bit about it here because I don't feel like creating a new thread. https://pages.questexweb.com/rs/294-MQF-056/images/8386.pdf?aliId=5084751842 This...
  14. Webdog

    Michael Sharpe skewered by @JohntheJack on Twitter

    Just enough involvement to take any credit. Little enough involvement to deny any responsibility.
  15. Webdog

    20/21 June 2018 | Next CFSAC meeting (webinar)

    Will the new CDC Information for Healthcare Providers be ready before the CFSAC meeting? In London at Invest in ME, Dr. Unger said the new content would available in June 2018. https://www.cdc.gov/me-cfs/healthcare-providers/index.html
  16. Webdog

    UpToDate ME/CFS information

    Got a quick note from UpToDate regarding their CFS page. I had asked them to 1) change the name of the disease to ME/CFS, and 2) remove the recommendations for GET/CBT. I felt these were the most glaring issues. @NelliePledge
  17. Webdog

    UpToDate ME/CFS information

    I'm sure it is. The more letters the better. I'm a quantity over quality kind of advocate (I just send lots of letters and don't spend a lot of time getting them perfect). :wtf:
  18. Webdog

    UpToDate ME/CFS information

    Haha, you know me too well. ;) I have previously (unsuccessfully) complained to UpToDate about their CFS content. I fired off another message to them this morning. If anyone else wants to do similar: UpToDate's Editorial Policy: https://www.uptodate.com/home/editorial-policy End User Support...
  19. Webdog

    13th Invest in ME Research International ME Conference - 1st June 2018

    It's interesting to add Kristian Sommerfelt's study of twitches/myclonal jerks to David S. Bell's writings on ME/CFS in children. Sommerfelt: Twitches in shoulders or hands Bell: Abdominal pain (more common than adults) Facial flushing "Persistence of reduced activity" or "activity...
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