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Definitely all right! I really struggle with lots of images and competing colours, especially when I'm trying to get important information from the text rather than just scrolling through the way you do on a social media feed. It looks very clean and simple – great work. I know how much work...

Thank you for that, I'll try and remember it next time I get my bizarrely-cold-lower legs thing. I had heard of hypoglycaemia causing the sensation of cold before, but I've got a goldfish memory. I know my blood sugar control is a bit erratic, though, so it's plausible. Somehow knowing the...

I think I've aways had "not very well" chills going right back into childhood. They usually meant accumulated tiredness (e.g., at the end of a silly busy week), going down with a bug, or premenstrual syndrome. I get them with PEM too, of course, which I assume is the same phenomenon. But there...

I wasn't allowed to take HRT because of a family history of breast cancer after using hormonal contraceptives, but going through a pretty hideous natural menopause made no difference to my ME pain levels. It was roughly the same before, during, and after. My menstrual cycle didn't make a...

I also wonder about the simple approach of routinely asking patients to come to an annual review prepared with a list of the five things that are most challenging about living with their illness, and five things they've found helpful in managing it. This gets away from the groupthink and...

Inexperienced ME patients also often mistake PEM for infections, and may believe they're unusually susceptible when they're not. My friends and I grumbled for years about getting every bug going, but most of the "viruses" were the nasty immune flare caused by overdoing things, being in the...

Sadness is associated with any downturn in health, surely? (Though perhaps you're asking why something so blindingly obvious would be noted in a study!) Falls due to ME aren't limited to people who're elderly or visually impaired. If a moderately-affected person's leg muscles suddenly become...

:rofl: :rofl: That made me spit out my orange juice!

Do you have any way of creating JPG or PNG images, that might only contain text? I don't know whether this would get around the algorithm or not, but it being in a photo format that is uploaded in the same way as a photo might work. Here's a (completely rubbish) example of the sort of thing I...

Never understood what was wrong with "wandering womb" meself. It precisely reflects of their level of understanding, and serves as a useful signal to any woman hearing it to set off the fire alarm and escape amid the confusion.

There aren't only photos, though. There are all kinds of assets at stock repositories, including cartoons. They're not necessarily expensive – typically, you buy a number of credits, which will allow you to use individually-priced assets (simple images are often 1 credit each). The last bundle...

A lot depends on whether the system recognises that the negative effects of doing something can be so severe as to mean that you effectively can't do it. In theory at least, the UK system does: e.g., I can't walk 20 metres repeatedly, reliably, and as often as I need to without triggering PEM...

My question is, why do they use a photo at all on a general article? If you see something in the paper about a new treatment for another condition, do they use a picture of a cancer sufferer or someone with rheumatoid disease? No, they use some kind of scientific-looking diagram, a glass vial...

I've only taken topical steroids, but the experience isn't good. Beclometasone, an asthma med, reduces my function by maybe 20%; a steroid nasal spray, fluticasone, caused all of my periods of severe ME. My GP told me that it probably stops my adrenal glands from working properly, apparently a...

It sounds astronomical in the UK, but average graduate salaries are up to three times higher in the US. There are numerous reasons for this, but significant differences include no free-at-point-of-use healthcare, housing costs in major population centres being higher than in many parts of the...

This has been talked about for years, hasn't it. I remember reading (I think in the 90s?) about theories that the burning in our muscles after activity, which doesn't feel like a muscle strain or the soreness that follows unaccustomed exercise, might possibly be due to a mild reperfusion injury...

In addition to ME, members of our community have the full range of problems that can affect human beings, so it's lucky that we don't need any of them to be advertisements! I imagine fellow patients would offer nothing except compassion to someone who has lived with two exceptionally difficult...

@AR68 may be able to help with this. Quite a lot of images and text are available on this thread, which will also take you through to the Twitter thread mentioned...

Moved post In England at least, wheelchair services tend to be hospital departments. GPs are usually reluctant to refer, and even if you are lucky, the basic self propel wheelchairs provided in the first instance are frankly easier to get from a car boot sale, often for under £30. The...

Thank you all – that reads very well and the arguments are really clearly stated. Let's hope we get some answers.