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I guess psychiatrists helped me by being the only four doctors who actually thought I was ill in my early years of ME. They couldn't treat me but they believed and supported me, and the last one helped me change from my utterly crap GP to a good one, and I'll always be grateful for that. Is it...

True, but what cheers me is that NICE had already decided to do the right thing, and they're one of the bodies that will actually drive this. Javid's intervention is really important, but it's the clinicians, researchers, and funding bodies who'll need to deliver. He's given the sled a good...

Think I'll wait for the preliminary study on co-morbid batshit rage among young people who have to put up this sort of codswallop AND deal with ME. Will be much more entertaining, and might even come with diagrams.

I thought that was the only explanation. Yup. Same thing with doctors; when I was first assessed for a disability allowance 20-odd years ago, I got a fantastic retired GP. Really clued-up, really warm and funny. He clearly knew my own GP from when he was in practice, so I asked when I next had...

They probably just haven't realised that someone invented the vibrator really quite a long time ago.

But surely lots of people have what could be labelled "proprioceptive dysfunction", yet they don't have ME? I'm relatively still compared to others in the family, but all the same my toes twitch constantly because my brain keeps wanting to know where my feet are, I have to fidget a lot because...

I think it might be too unspecific, tbh. It must be common in the very young, the very old, and folk who're unwell with all sorts of conditions. Oh, and carrot-topped pink people like me.

It's really frightening that over a million people have had it for a year or longer. Typically, self-limiting post viral syndromes resolve before the year mark. That sounds like a familiar story too. People who can't afford to rest; who can't rest adequately because they have young children or...

The site says you have to login or make a payment, so unfortunately it's not free to read.

I guess it depends whether they're speaking in their professional capacity or not. We can all witter on about anything we like as private individuals, but when we're on the clock, the rules change.

Extra-terrestrial teacher: "And of course that lot died out because their ecosystem was collapsing, but half their researchers carried on sh*tposting about made-up mental health disorders."

From me: Hello from Kitty in the middle of England. I have had ME since 1976, so it has been a long journey, but I am very excited about the new study into the genetics of ME. Medical researchers are working directly with patients, and hope to receive DNA from 20,000 British ME sufferers to...

I hope they're not going to put the unbalanced ones in the rocking bed, because that is NOT going to go well...

As @lunarainbows says, yes there are. Talk to a pharmacist, they're really helpful. Some people can mix a drowsy with a non-drowsy antihistamine, for instance, as their actions are slightly different; I was also cleared to take fexofenadine and loratadine on the same day but 12 hours apart. It...

One of the problems I have with the medical definition is the term vague. If "vague" means illness caused by lots of different symptoms then it might just about pass, but a lot of ME symptoms are specific: certain muscles groups that never stop hurting, migraine, nausea, swollen neck glands...

Oh, thank you. I'd never heard of it before.

I'm afraid I've never heard of a journal club. Could you possibly give a bit of detail about what they are, in case people in different areas just have different names for the same thing?

Local ME patients know it's to be avoided like the plague, and some GPs do too. My previous doctor, now sadly long retired, warned me two decades ago that the clinic (in its previous incarnation) mainly offered exercise classes, and someone recently moved to the area mentioned in a WhatsApp...

I've only filled in the form once, so I couldn't remember. But I do use it indoors, always in big buildings and sometimes at home, so I guess I said that. Ooh, get you—posh! :laugh: I've had the updated rates for PIP and ESA in the last few weeks, and ours are still in the brown 'uns. You've...

I've never had an assessment for ESA at all since my first claim in 2014, and I've never been given a fixed award length. Maybe someone has to look at it periodically, but they've never contacted me about it. So it is technically feasible, but I don't know how the decision is made. It's...