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I think the study was more about how well our cells utilise different energy substrates, and whether they retain their energy dysfunction even after being cultured and manipulated in vitro (they do) than about the difference between muscles cell samples that are taken before and after exercise...

Lots of us can't, though, our muscles will just stop working. I use a wheelie because my legs give way when they run out of oomph!

My periods were a nightmare from the day they started to the day they stopped, as an unexpected but very welcome 45th birthday gift. Life used to come to a halt completely for the first two days of the cycle, as I'd faint from the pain if I tried to stand up. The build-up beforehand with a...

It wouldn't surprise me if there were some hormonal connection, even if it's not straightforward or universal. Another N=1, of course, but my ME symptoms were always twice as bad in the week before my period, and my overall function been significantly better since menopause.

An aside, but it applies to arts funding too. Started appearing about 12 years ago.

I don't think we'll be able to categorise those who recover after six to eight months as permanently recovered for at least another year or so. For some people, it may be a reflection of the fact that they've become very skilled at pacing as well as getting better control of their symptoms. But...

They could have made a good start on this months ago, by updating the symptom tracker in a dynamic way. Allowing people to create and add symptoms; then aggregating those that added up to the same thing described in different ways, as new categories for the main list. They might have hung onto...

Yep! I meant time spent with regular support from a clinician, though, either to assist with gradual recovery (for those lucky enough to do so), or to adjust to a new long-term reality. If we could get this kind of input at the beginning of the journey, just think how many mistakes we could cut...

No, but my next test isn't due until around 2nd November. I'm on the monthly schedule now; my last was on 5 October. Hopefully, had you tested positive on 12 October, they'd have let you know a bit quicker than 12 days! :eek:

And teaching pacing and adjustment is a major task – despite what the deconditioning proponents believe, human beings are really not good at resting. Even when a long-term patient has learned skills that help them retain as much function as possible and worked on finding things they enjoy, they...

I wonder what might be the best approach to this? Some of our best-known researchers are pretty busy with the grants and research programmes that they have got, though I'm sure there are scientists among them who could find some time to devote to this. Would there be any value in recruiting...

"Should there be improvement in regard to what is offered to post-viral patients affected by Covid-19 will the people who have been left disabled by other types of viral infection before 2020 be included?" I do keep wondering quite what these clinics are supposed to offer, once they've...

"Lead researcher Ramanan Laxminarayan, a senior research scholar in PEI, said that the paper is the first large study to capture the extraordinary extent to which SARS-CoV-2 hinges on “superspreading,” in which a small percentage of the infected population passes the virus on to more people. The...

Sounds like good news!

Done. (I also signed the petition that 38 Degrees highlighted next, about the £20 per week UC uplift being given also to people on legacy benefits, another one that I hadn't seen.)

Exactly. I suspect most of the doctors talking about rehab are actually talking about making stuff up as they go along, in the hope of stumbling on something that (a) doesn't make patients complain too loudly, or (b) makes them go away altogether, so they can be ticked off as 'recovered'.

It is odd that it assumes everyone is employed – it doesn't even allow the possibility that people are retired, let alone struggling along on benefits. I just ticked 'neither agree nor disagree'.

Indeed – and do you have to make your donation first?

Oh, one of those setups... :laugh: I remember one at work years ago, where we had to put up with an incorrect phone number being sent out for ages because no-one could fathom how to change it on our antiquated system.

Just of curiosity, is the unaffiliated CO-CURE website the same one to which a link is supplied in the email list, www.co-cure.org? I wonder why they decided not to supply a direct link to the NODAK archive instead of this rather naff website? It probably doesn't really matter, as I suspect...