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    MEAction: INVITE YOUR DOCTOR TO LEARN ABOUT ME – MEDICAL EDUCATION EVENT IN LONDON, 1st April 2020

    One would hope that the organisers would have foreseen the difficulties surrounding a screening of "Unrest" and have devised a form of wording to minimise those problems. What could that form of wording be?
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    I thought CS and the MEA proposed changing the name around 2002, give or take a year or two. However one tries to make sense of that remark of Holgate's, one can't. There could have been a mistake in transcription, but that would still not account for a belief that CFS preceded ME.
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    Trial By Error: New Biopsychosocial Study of Fatigue in HIV Patients

    Do you think they realise the possibility for category errors in declaring everything to be biopsychosocial? Probably even injuries sustained from a blow with "a heavy, blunt instrument" must be considered interpretable as biopsychosocial.
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    Unfortunately we know what his "predictors of poor prognosis" are, or at any rate, were.
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    I do not remember the source but I have a recollection of reading that in the shake-up of the NHS in about 1990, there was a proposal to close the Maudsley and merge its operations with Kings. There was, as one would expect, substantial, and ultimately successful, fightback. Clearly that must...
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Perhaps the situation around 1990, when the internal markets within the NHS were being developed, needs to be viewed purely in terms of economics. Faced with an oversupply of psychiatrists the options were either to deal with a reduction in value or to expand the market.
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    Berkeley Wellness: When Medical Symptoms Are Dismissed as "All in Your Head" (David Tuller interviews Maya Dusenbery)

    Could explain a lot. Perhaps he sees chronic fatigue as something to strive for.
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    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    I was very slow to realise that the title SW gave to his lecture on CFS, which is linked above, given in 2008 was "Treatment of neurotic disorders". Hard to square that with some of his claims about not believing it to be a mental disorder, or whatever it is he claims.
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    We see amazing new quotes with everything produced. That Komaroff, Wessly interview contains this Stephen Holgate. For years the medical profession did not acknowledge chronic fatigue syndrome (CFS) as a ‘real’ condition. The situation became confused when the term myalgic encephalopathy (ME)...
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    It is strange thinking that apparently requires evidence to refute the suggestion that it is a psychiatric disease, when there was never any evidence that it was a psychiatric disease. Jenkins made the point in 1990 that hysteria required a positive diagnosis. Strange that was not considered a...
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    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    It is strange that the date given on the slide for the Wearden et al paper is 1988 rather than 1998. Odd mistake. It would be interesting to know the date of those reported comments by Komaroff, which seem unhelpful to him.
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    ME/SEID - a more accurate illness name than ME/CFS? (words only, nothing to do with diagnostic criteria)

    One is reminded of the old joke about the man (his nationality is doubtless irrelevant), who when asked for directions to a certain place answered, "well, if I wanted to get there, I wouldn't start from here".
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    Perhaps we could invite him to participate in a moderated thread to explain his views. There are quite a few quotes, fair quotes, that could do with explanation. One can understand a reluctance to join in the sort of shouting match which often develops, but he can never obtain the sort of...
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    United Kingdom: reMEmber news

    How many renditions of "if you're happy and you know it , clap your hands" and "Oh, I'm H. A. P. P. Y." could a person endure in the space of two and a half hours? EDIT it all sounds quite "Brave New World"ish. One wonders when the soma gets passed around.
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    News from Scandinavia

    That's OK. There would seem to be sufficient evidence to require him to recuse himself from hearing any case involving ME.
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    O'Dowd-Crawley early intervention study

    Does the Balancing Activity help overcome the vertigo?
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    O'Dowd-Crawley early intervention study

    My unhelpful questions are How do supposedly serious people come up with such garbage? How can a group of people purport to study a condition for so long and still know nothing about it? When will someone pull the plug?
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    Chronic Lyme Disease: a discussion of the epidemiological data

    On reflection that figure of 36% showing EM seems closer to the figure of 18%, which Newby quoted in Bitten for the early Connecticut cases, than to the post Bb discovery figure of 90%. If that figure of 36% is representative for distinct groups it does leave the way open for a lot of...
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    Chronic Lyme Disease: a discussion of the epidemiological data

    Is it not unhelpful to be doing epidemiological studies referring to Bb sensu lato, when it appears to be recognised that the B afzelii and B garinii seem to cause a different range of symptoms? Would it be fair to say that afzelii is more associated with EM and garinii with neuroboreliosis...
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