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    Medically Unexplained Symptoms and PEM (Paediatric Emergency Medicine) presentations - Dr Armstrong - 11 Jun 2020

    "what's really important and something that occasion gets lost in mus is that the symptoms the patient's experiencing are absolutely 100% real to them they are frequently distressing an anxiety inducing both to them their family and indeed the clinical team who treats them" he seems to be...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I recently saw that in 1988 Melvin Ramsay sent a questionnaire to staff involved in in the 1955 outbreak. Apparently approximately 75% reported that they were still suffering effects, many of them severely. Still, I suppose this report did not have the benefit of the peer review which M and B...
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    UK: Priority Setting Partnership: Medically Not Yet Explained Symptoms - 10 top priorities published July 2022

    What is meant by "funds the infrastructure", as that is apparently what the NIHR does with the JLI. That looks as though it is only a proportion of total running costs. Is it clear whether there is other additional funding and, if so, its source?
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Has research ever been conducted to ascertain whether it is, in fact, possible to teach old dogs new tricks?
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    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    Where a parent to behave in a way which caused continual harm to a child's health, whatever he motive, they would be at risk of reference to social services. Only doctors have that right apparently. Whatever happened to professional regulation?
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    Who was it that said being in support groups leads to poor outcome?

    No. I may be daft, but I'm not that daft. It will come to me. I'm sure SW referred to the book I'm thinking of in his 1997 tome.
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    Who was it that said being in support groups leads to poor outcome?

    It's a Mary Sullivan. I thought she had written a book, but I cannot find a reference and may have dreamt that.
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    Who was it that said being in support groups leads to poor outcome?

    My wife made a serious tactical mistake today. She asked if I wanted to look at some papers before she threw them out. It was an old ME file-newer things are long gone. It looks like I was diagnosed, and joined the ME Association in 1985. There is a variety of old information sheets and...
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    Research underway related to Long Covid

    It seems reasonable to assess psychosocial conditions arising from the illness. It is only when it is suggested that psychosocial factors are the cause of the perpetuation of symptoms that we should worry. Or have I been misunderstanding something?
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    Simplytreatment -U.K.

    Do they provide a free bag to go with the shopping list? I think we should be told.
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    Post-viral fatigue and COVID-19: lessons from past epidemics, 2020, Islam, Cotler and Jason

    It's a shame they didn't consider the lessons to be learned from the study of the Asian Flu epidemic. What we were always assured was the best quality science because it was a prospective and not retrospective study. The one where Fauci supported Strauss over his applying the findings to CFS...
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    United Kingdom: ME/CFS in The Times (including Sean O'Neill)

    One is forced to wonder whether Helen Nicholls has considered the corollary of her argument. Everyone should be required to undertake GET because it works for her. Allegedly.
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    The Times: Infectious diseases expert warns of spike in ME cases

    I don't know whether I should contribute to the answers to the question on anxiety in case it is not strictly on topic, but here goes. The Wessely /Powell paper from 1989 is of interest because they appeared to conclude that something like a quarter of the trial subjects, I forget the exact...
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    United Kingdom: ME/CFS in The Times (including Sean O'Neill)

    He was Secretary of State from 2012 to 2018. I am amenable to the argument, should anyone care to make it, that, as such, he was in no position to influence government policy, but many things could have been differently in those years. He was happy to take on the junior doctors - less happy to...
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    United Kingdom: ME/CFS in The Times (including Sean O'Neill)

    EDIT in response to Andy Yes...but what fundamentals have changed since the time he was in office. For these purposes press interest is not deemed fundamental.
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I just feel sympathy for someone who, after 14 weeks or so, regards that as a long haul. There is still much to experience.
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    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    "He said it was good to push James into relapses." Presumably that statement is not supported by any experiment conducted on James and relies wholly on inferences drawn from other evidence. Surely there has never been any evidence from trials to support such a conclusion. It must be doubtful...
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    Coronavirus - worldwide spread and control

    Preparations may be in hand for a change of strategy. Someone I know, who is no more vulnerable today than two months ago, has just received a letter notifying of the vulnerable status and told to remain indoors for three months and, if sharing accommodation, to isolate from the other person. An...
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    How badly have UK proponents of Medically Unexplained Symptoms misled the medical community?

    We need to look at the evolution of this idea and its relationship to ME and its use as a way of bypassing concerns. Does anyone know, off the top of their head, the first use of the term and by whom it was used? I feel that it was used by the mid 1990's, and feel that Sharpe was an early user...
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