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Haven't seen anything by Frances Ryan for a while – good that she's spoken out.

I re-registered with a different address, after the last newsletter failed to reach me (it wasn't caught by the spam filter). I received this one at both addresses, so all seems to be functioning well this time.

We can live in hope and die in despair! – as my mother used to say, rolling her eyes. But Katharine Cheston, whom I've not come across before, did a pretty good job of demolishing the absurdities in article on Twitter. It won't dent the Observer's tendency to smugness about being on the right...

FFS! I have literally never come across one of these patients with 'intense irrational fears' and 'kinesiphobia' in 40-odd years. I would be astonished if anyone has. ME patients are some of the most resilient people I've ever encountered, even though all – and I mean ALL – would really...

It's not helpful for your letter, but I don't think we can know this in a way that's reliable enough to be useful. It could be 100%, as viral infections can be asymptomatic; it could be that two or more factors are necessary, and viruses rarely precipitate ME alone. The latter appears less...

The only moment I've ever enjoyed was in the early 70s, when my mum was doing the Christmas pudding in her huge Swan pressure cooker that I couldn't even lift. I've no idea what went wrong, but the pudding started spurting out of the steam vent and pebble-dashing the kitchen ceiling. My mum...

I'm always impressed when people aren't scared of pressure cookers! The hissing noise my mum's made always frightened me to death, and 50-odd years later I don't seem to have grown out of it much. My sis cooks the Christmas pudding in one, and I still find myself walking past the kitchen door as...

Yes, that's true for me too – I have much more of a sense of energy, muscle power, and (occasionally) feeling of wellness right at the outset, and not all the activity I do is forced by loo trips and memory lapses. But it does disintegrate into a downward spiral of ever more disorganised...

Again a personal account, but the measurable signs of being in PEM or just being a poor state generally include: Resting heart rate Goes up from 55 to 60 in PEM. Steps I'm more active in PEM than when in good shape and pacing well. I need to visit the toilet three times more often than usual...

When recruitment for the GWAS begins here in the UK, patients will presumably have the option to register a 'I've been diagnosed with ME but I don't want to provide a sample' response, as well as those who are willing. The project is the closest thing we're going to get to a prevalence study in...

Oh, God, I wish. As soon as my bladder's full, I'm drenched in ruddy sweat! Seems to be a family trait, and nothing to do with ME...

I guess it really comes down to how much you need to use it for the bread proofing? If you haven't got other options – e.g., the old-fashioned method of putting a wide bowl on the bottom of the unheated oven, filling it with boiling water, and then putting the dough on the shelf above it and...

Yes, it's easy to see this part of the problem. And it's entirely possible that answers may depend on getting at least partially to grips with mind-bogglingly intricate signalling and immune functions in real time... :confused:

It went on a lot longer than the 70s! :laugh: I lived with outside toilets until the late 80s, and rented my first ever house with central heating in 1991. I hated it; there's just no point to a Sunday morning lie-in if your bed isn't in the only warm place in the entire building. Eventually I...

I think terminology is part of the problem. Like rehabilitation. An active process, e.g. physical therapy after an injury or surgery to help patients regain as much function as possible. It wasn't used for people who've been ill with a virus, and unless they've been in ICU and need to learn to...

Interesting questions about shivering, but I'm not sure how much they will reveal. It seems to be a response that gets weaker as you get older, or perhaps needs more of a shock to initiate it. On birding outings I get cold to the point where I'm in significant pain, but I never shiver; I think...

Blimey, I enjoyed reading that. :rofl::rofl::rofl: Obviously it's not a laughing matter. This isn't a barbed argument between warring academics; Brian is talking about the 'experts' who colluded to build the framework underpinning taxpayer-funded medical abuse, entirely for their own benefit...

I haven't used one, but as I'm considering a pressure cooker myself, I had a look. And they look good! There are a couple of 'New, other' listed on eBay for around £80 - £85. One of them is a customer return; another an unwanted gift; a third isn't in the original packaging. Also worth...

It's described variously as an opioid and not an opioid. It's converted within the body to a substance that works on the opioid receptor*, so effectively it has a similar mode of action. *Massive oversimplification of a topic I don't really understand! :laugh:

That makes sense, thanks for the clarification. Not at all, and making a poll is a lot harder than it looks! (I know – I've tried and abandoned the effort once I'd tied myself in knots!)