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  1. Kitty

    Mike's EU Marathons

    Happy new year, Mike, and have a good one in Norway! I don't have any contacts there, but other folk might.
  2. Kitty

    Podcast BBC OU: The misdiagnosis that sent me to psychiatric hospital

    Ah, but that would need a psychologist who hasn't been drinking the Kool-Aid. Who of course would be ignored by the rest, because... Seriously, though, it's an excellent point. Though I do half-imagine someone seeing us surviving, largely psychologically intact, and asking what on earth is...
  3. Kitty

    Experience with LDN? low dose naltrexone

    As someone who knows nothing about drug trials ... would it be feasible to save research money by running two concurrent trials, e.g. LDN and low-dose Abilify? Of course there would be additional costs to design two protocols and recruit two sets of cohorts, but you wouldn't think the cost of...
  4. Kitty

    Experience with LDN? low dose naltrexone

    My reason for not trying it was that I typically take a dose of tramadol for nighttime pain at least twice a week, which works well and doesn't have any side effects. It makes a big difference to my QoL, so I decided that swopping it for something which might or might not be effective against...
  5. Kitty

    Experience with LDN? low dose naltrexone

    Could it be repackaged in a pharmaceutical shell, so that it's not obvious? I suppose that could cut across informed consent, though.
  6. Kitty

    Jarred Younger Lab: New Chronic Disease Survey using machine learning (December 2022)

    I hit the same issue. I can only describe pain using sound metaphors, e.g. one element of my chronic pain is like flowing traffic on a motorway—ongoing noise that rarely alters in pitch, but varies in intensity. Other types include a continuous middle D played very loudly on an electric...
  7. Kitty

    Rachel Clarke:Palliative Care Doctor and Writer

    She also writes for the Graun, and has a piece today in fact. I've never read anything written by her about postviral illness; her usual contributions are opinion pieces about the NHS and government health policies (she rarely takes prisoners)...
  8. Kitty

    Butterfly symbol for ME/CFS

    We probably need a noise-cancelling-headphones-and-sleep-mask combo, don't we!
  9. Kitty

    UK: Health and Brexit: six years on, 2023, McCarey et al

    True, but there are also the options of making care a more attractive option by offering workers formal training and career progression, and establishing an NHS-like pay framework that recognises their skills; and by making it feasible for family members to choose to provide care themselves if...
  10. Kitty

    Article on people claiming PIP, figures, top 50 conditions

    Children under 16 are, as are people born before a particular date in the 1940s (my former neighbour is still on it, as he'd reached retirement age when PIP was introduced). There may still be some (ETA: working-age] adults who haven't yet been "invited" to claim PIP, but presumably not many?
  11. Kitty

    Fold-up chair for kitchen

    PS: before buying a bar stool, it's worth making sure it's the right height. I'm quite tall for a woman at 5' 9", but I still can't get onto a full height pub stool because it requires you to be able to put one foot on the rung behind you, and push yourself up onto the seat with one leg. I...
  12. Kitty

    Fold-up chair for kitchen

    My friend has some very like these in her kitchen, which are sturdy and comfortable enough to work on in the kitchen. They old almost flat: https://www.ebay.co.uk/itm/334468941882 We had some similar to this at work, a more expensive type but stable and comfy: I found perching stools for...
  13. Kitty

    Using apple watch ECG data for heart rate variability monitoring and stress prediction: A pilot study, 2022, Velmovitsky et al

    Or maybe just give the grant straight to the patients, because they'd be a whole lot less stressed if they could afford to live somewhere that wasn't a damp, crumbling wreck and their kids had enough to eat.
  14. Kitty

    European Parliament questions

    Interesting. I suppose if they don't have a policy of setting priorities for specific named conditions, then that's probably the best outcome that could be expected. It's really positive that she's drawing attention to ME and that she's had a sympathetic hearing from the parliament, even if...
  15. Kitty

    PEM discussion thread - post-exertional malaise

    I've used the example of a sprained ankle, as it's an injury most people have probably had at some point. Even when the ankle's recovered enough to walk on, any little jolt will set it off throbbing again; and if you aggravate a sprain injury by twisting the joint again even slightly, it can...
  16. Kitty

    Long Covid in the media and social media 2022

    But there's also ... https://www.theguardian.com/society/2022/dec/25/long-covid-patients-unproven-expensive-treatments-experts-warn
  17. Kitty

    Low resting heart rate / Brachycardia

    Me too. No symptoms unless it gets into the low 40s. I wonder if the "normal" resting heart rate range might be wider than conventionally thought, as until smart watches arrived on the scene, it would never occur to most people to monitor it. It would only be measured in medical settings, which...
  18. Kitty

    Vegetable prep - seeking suggestions

    I don't like dressings, but if it were me, I might try making a small quantity up and seeing if it freezes okay—or look up recipes for dressings that definitely do. You could then buy frozen veg and cook them in the microwave, reheat the dressing separately, and then pour it over to serve? It'd...
  19. Kitty

    Mike's EU Marathons

    Fantastic, Mike! It does look absolutely glorious there.
  20. Kitty

    Covid-19 vaccines and vaccinations

    But if there's nothing else available to heterosexuals, other than avoidance of sex? Birth control probably had that kind of effectiveness or less for millennia, but I doubt it put anyone off trying to reduce the odds of conceiving if they didn't want a pregnancy. Same with Covid, especially...
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