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http://www.telegraph.co.uk/news/2018/02/05/meditation-does-not-make-better-person-study-finds/ Yet more evidence of methodological flaws & bias in psych research? what?! never! :whistle::rolleyes:

I'm no great fan of NLP but @Nancy Blake 's interesting response to the wikipedia article about NLP is here. http://www.positivehealth.com/article/nlp/nlp-cult-or-cure-neither-actually Given that she reports rather similar issues with wiki editing as we do for the ME/CFS pages I think at least...

Oh my God. This is so bad. The CFS edition of the programme will be on prime time ITN... "and now in a special report, we reveal what is being done to help millions with a much misunderstood disease, regain their health & lives, in the face of terrorist-like opposition & abuse of those...

Oh my, i love this! have you read some of her other articles? just excellent & so great to hear psychotherapists engaging in this way. Such a good intro to the mind boggling nonsense of the BPS hypothesis

Haha @Liv aka Mrs Sowester :D

Thats interesting, the one in question was very deep - deeper than a standard sprung mattress

I use a very firm pocket sprung with 2 thick feather & down mattress toppers - so the support is very firm but no pressure point issues. I cant get on with memory foam because i find it too hot plus it takes effort to turn over -to get yourself out of the dip created by your body when you sink...

oh, duh, i was being dense:rolleyes: - when it said "You can email contact at this domain" on the site i interpreted that to simply mean that emailing them at their domain was possible, not that the last 4 words were the email address. Now i understand LOL :D Apologies for thread tangenting.

Thanks @Cheesus So i in the 'to' box on my email I just put atthedomainname.org i dont have a to put anything before the at symbol then? Sorry to derail the thread, but i think it'd be good to keep saying thank you - you never know when they might want to give some more away in the future :)

Very, VERY good. Cogent, professional submission. Huge thanks to all who put this together. Lets hope the NIH/CDC listen & act accordingly. To my mind this is critical if they are not to waste further money, time & more yrs of our lives on research which studies a bunch of people who're 'tired'...

thanks Joh & @Binkie4 ETA The pineapple fund website says you can "email contact at this domain" but gives no actual address ??? i dont know what that means am i being dense?

What wonderful wonderful news :) how does one go about saying thank you to them? does anyone know? I'm not on twitter or reddit.

thank you so much for that laugh @Jonathan Edwards & @Valentijn . I was just feeling so demoralised & infuriated, feeling that this tide of bullshit will never end, i needed that giggle so much :laugh: Dont forget, that PACE was "a great great trial"

Indeed.

You can read more about how this will unfold here. - they wont be reassessing anyone just trawling through the paperwork to see if anyone should have got points where they were denied on that one specific descriptor...

My brain is mush so i wont comment on the details of whats being said here but will say that i've agreed with all the comments so far. The CFQ is a joke. It's a pity its consequences are far from funny. Well done everyone for all your comments & submission, much appreciated :thumbup:

I cant bring myself to click the 'like' button to either of the first 2 posts on this thread, but I am glad there is a thread on this. I didn't know Richard Horton did that.

Oh God :( :facepalm: :( :banghead: I thought Norway was one of the 'good' ones, after their government apologised. So demoralising.

Yes sorry @Inara i realise i should have said "not that there is merely/only an abnormal amount or severity of pain/fatigue.... etc" will edit that.