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Sci hub link not working - goes to a different study?

Hi @Natalie yes i have seen that and thought how wonderful it was, gorgeous drawing.

Cant wait to watch it. @Natalie these videos are amazing. Just to let you know that the severe ME one helped me recently in a discussion with my carer & to give to neighbours who were making too much sound. I'm sure you know they are helping people but just wanted to let you know they making a...

What a *$!!*@$! I'm pretty sure we could - lol maybe should - put together a list of idiotic, patronising and downright insulting/abusive things that Drs have said to us. Didn't we start a thread like that at some point i cant remember. Perhaps its the 'irritating things' thread.

i take occasional diphenhydramine & doxylamine succinate (both anti histamines) I find the latter almost miraculous & even the former will make me stay asleep at least 5-6hrs once i drop off. I took one on sat night as i'd been massively stressed hardly slept all wk & had something important to...

a great & hard won achievement well done & huge thanks

Exactly. They have spent the best part of 40yrs erroneously shaming PwME for supposedly wanting to 'adopt the sick role' for some kind of 'secondary gain'. I have seen that phrase or some version of it repeated scores of times in various articles, papers etc that the BPS proponents have...

All that quote says is that she wants to leave behind is the label of ME & the crap that goes with it. If they had asked the patient 'if you had MS would you feel the same?' Id be willing to bet she would say no.

very disappointing that even Maureen Hanson doesnt know that palpitations, tinnitus, chest pain, persistent cough, are not uncommon in ME :banghead: I know i have had them all since the original virus/infection that set mine off. Tinnitis & palpitations seem very common from my experience of...

Thinking of you all hoping the bits that unhelpful can be improved, gosh there's a lot going on at the moment!

I agree. I'd be flat out astonished if they werent.

Ok thanks @Trish huge thanks to all the committee & to everyone working on it, i am soooo glad to be part of a group that producing what i know will be a sensible, scientifically sound response. I always feel really proud to be an S4 member, but somehow that is esecially true atm. :)

Is there a time line for this more detailed than 'as soon as possible'? I know there is a deadline for submitting responses to NICE, but i have a really big unavoidable & non postpone-able thing i have to do regarding my own life circumstances this wk, so i wont be able to read any of it in...

My concerns in a nutshell. I do hope people are not being too triumphalistic on social media... it aint published yet.

Ahhh, i read that article 3 times never noticed her even being included never mind saying that sorry @Esther12 :oops: I am clearly too muzzy headed to even read sensibly i will crawl back under the bed :rolleyes::D

What AfME quotes? Do you mean the ones from Miller? My bolding.

This i must have missed that, do you recall where can i find it? sorry if it's obvious i not well today struggling to keep up. In general i feel still very problematic & in danger of being re-written - see on the other thread @Tom Kindlon share of Bart's comment on the draft for the previous...

My sentiments entirely Mij, I'm not anti-vax by any stretch of the imagination, but anyone who just takes their word for it is a bit naive iyam. It will need to be seriously scrutinised. I hope that need for scrutiny & interrogation of the rsearch will not be lost in the relief and urgent...

Yes. I have a very pessimistic view I'm afraid, & will just be relieved if despite everyone's hard work it's not essentially the same as before (only worse because once it's reviewed & re-endorsed it will be harder to argue against). Cant tell you how thrilled i'll be to be wrong :) However i...

totally, totally with you on that.