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    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    My impression is that in this domain of research, the ethics committees, at least in the Bristol neck of the woods, appear to give approval for whatever the researchers ask to do--no matter what the proper approach would ordinarily be.
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    Twice the amount. My half-time salary/benefits are $73,000, more or less--$47,000 salary, the rest benefits. Full-time would basically be double. Benefits are often calculated about about 40% of at the salary.
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    David Tuller - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

    yes, I've seen the health anxiety study. Before that, Daniels did a study with sample of one that found that, in that patient, modified CBT that included treatment for health anxiety produced desired effects. From this sample, she decided that the combination of CBT plus that extra help for...
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    24 April Tuller - Trial By Error: Andrew Lloyd’s Past Endorsement of PACE

    Yes be careful. I don't want to be the cause of PEM in anyone!!
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    Trial By Error: Professor Michael Sharpe’s Gaffe on Australian Radio

    @Alvin Good for you! I hadn't noticed that, or as I said maybe I did and it triggered the association. Brain fog setting in after weeks Down Under?? I would have credited you!
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    Trial By Error: Professor Michael Sharpe’s Gaffe on Australian Radio

    @Alvin had you mentioned the Kinsley Gaffe? I hadn't seen that, or I don't remember at any rate. I've always loved that definition!
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    Michael Sharpe skewered by @JohntheJack on Twitter

    I have to agree with Esther12 about the meaning of that particular quote from Sharpe. Read in context, it seems to be as if the word "undeserving" should have been in quote marks, as if that's how the system views them--not he himself. There are plenty of things to say about Sharpe's beliefs and...
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    Central sensitisation theory - discussion thread

    @anniekim I don't think that chapter from the book that was in The Guardian indicates that White has made that claim. It quotes the others but White just blabs on about the problem with separating psychological and biological--he's not actually quoted endorsing the CSS idea. The author herself...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    It was a ludicrous excuse when Tom K. pointed it out to them in comments to the protocol. It's even more ludicrous now that we know definitively that the dropped it after the Dutch decided it wasn't "objective" after all because it didn't match the bogus subjective measures. It is hard to...
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    David Tuller Interview - A Peace of the Action Program - Radio Adelaide (Apr 15, 2018)

    It wasn't a basement but it was a small dining room/living room space in a flat in an "intentional community" in Adelaide. Very low-key but professional.
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    @Trish--thanks for the explanation. I hadn't realized that about U.K. charities. I've contacted a few of last year's donors but haven't made that a priority. It's possible there might be another "matching" grant near the end. If I can exceed the goal like last year, that's also helpful. Berkeley...
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    Thanks for all the support! Last year was on a platform called Crowdrise, and I got asked about PayPal. I'm pretty sure that wasn't available. I agree that Berkeley's platform should include that possibility. In terms of e-mailing, I've e-mailed some people from last year's campaign. I don't see...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Let's also remember this quote from Professor Sharpe in his 2011 interview with Norman Swan on the ABC network in Australia not long after The Lancet published the first results: “We have a number needed to treat; I think it's about seven to get a clinically important treatment benefit with CBT...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    The PACE protocol agreed to abide by the Declaration of Helsinki. The Declaration is very clear about what is required to obtain INFORMED consent-and it was clear in 2005, when PACE started consenting patients. Researchers must declare "any possible conflicts of interests." That is a much more...
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    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    The other thing about BMC Neurology is that the journal added an editorial note to the published protocol noting that investigators are supposed to stick to their protocols and that readers should contact the investigators if there is any deviation from the protocol. I cited this attached...
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    Hi, @Allele, thanks for checking. I posted on Facebook asking that people donate only in their own names or anonymously. The names made me chuckle also when I saw them but it's really best if people don't do that on the crowdfunding page. There haven't been others since then, but maybe it's best...
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    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Any hashtag should go for the larger message and not include my name, I think.
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    David Tuller: Trial By Error: My Berkeley-Backed Crowdfunding Campaign

    I am laying low on commenting on things related to the tweet in question to avoid appearing to inflame anything.
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    I sent a note to the crowdfunding manager, and he agreed PayPal would be useful, but they're not set up to do that yet. This is a fairly new experiment for the university, and most of the projects in this round are pretty local--I don't think they really expect much money to come in from...
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    Trial By Error: A Terrific Piece about ME/CFS on Australian TV | 4 April 2018 | David Tuller

    Thanks, everyone, for your concern. I'm very touched by it. Since that piece ran, I've gotten some anxious messages about my health. So, yes, it was an emotional moment, but I wanted to reassure everyone that I'm fine. The interview must have lasted an hour or so, and I cried for like 45 seconds...
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