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Sorry. I find the whole "Oh, now that it's happened to me, now I get it" BS. Sure, if some have now learned the error of their ways now they've been through it that's something. If nothing else it should hold up a mirror to.how self absorbed and self centered you've been. I have no idea...

You always make sense to me :hug:. This isn't something that should be done on the spot for people like us or those struggling with "fatigue" whatever that is. No. I think this is something that a person should be able to go away and think about. Given as much time as possible to fill in...

I just had a look. Yet another questionnaire that is about fatigue yet doesn't actually try to dig any deeper into what the patient might mean by "tired". From the start when I got ill people started pushing the words "tired" or " fatigued" into my mouth. As someone who had experience with...

Just passed the three day mark after my vaccination. Still can't say I've noticed much at all. The only thing is a slightly tender area that I found by accident because I was checking the vaccination site. The arm looks completely normal except for a teeny, tiny, less than 5mm bruise. I...

Absolutely. Sometimes it even comes from a place where they are trying to be helpful & supportive but have no idea of how ignorant they are when it comes to ME. They literally don't know that they don't know. I have been in the situation of having paid good money to see a specialist about...

I wonder if we are approaching this from the wrong direction. I've heard a fair amount of debate about what kids are taught in schools about tolerance & acceptance of people who are different. Kids who have two mums or two dads, or just one parent etc. I wonder if we should also be teaching...

There was no noticeable odour at all. Admittedly, it was a nice sunny spring-like day so the door was open and there was lots of fresh air. I definitely didn't have a blocked nose or anything because I spoke to someone earlier just as I left my home and even though I stayed a good 6 foot from...

As an Irish friend of mine once put it "Spellfecker is not your friend" Edit - it's no friend of mine anyway!

I wonder if another approach might encourage more people to contribute. - I've had a few battles and it's just been so long - I wouldn't know where ti start or what to include/edit out. - People might forget bits that might be of interest to others. - It could be an awful lot to wade through...

My local surgery has a sister practise the next village over. The sister practise has been turned into a vaccInation centre. My first thought was where is everyone? Have a lot of people not shown up? They had it's just the people running it were very organised & efficient. Marshalls in the...

I can see that's true from the medical perspective. This is true from the patient's point of view. The early stages when everything in your life has been thrown up in the air can last avery long time. People can be desperately struggling on for months or years. How they manage their...

I had the Astra Zeneca jab about this time yesterday. I went to my GP surgery's vaccine clinic & I have to say they were extremely efficient. Virtually no queuing by which I mean my waiting time to be handed paperwork to fill in and then to be called in was only about 5 minutes total. They...

Typically I have to be awkward. I found the reverse happened when my T4 dose was off. I got into a bit of a mess and my TSH rocketed. Unfortunately, for some of the symptoms were masked by another problem. I felt breathless (without really panting hard if I recall), extremely dizzy, weak and...

Another great blog post. It reminds me of an English lady I met about 15 years ago. She was living in Africa in the 80s and started experiencing weird symptoms. Eventually she saw a young African doctor who had finished training in London a couple of years before. He told her he thought she...

I have a pretty good idea of the suggestion I'd be making by way of reply.....

Hmmmm......well, as CFS affects more women than men and the list quoted are fairly common ailments affecting women only...... We could just as easily say that having ovaries and a uterus predisposes you to both CFS (& RA & a whole range of other immune related illness) plus gynae related...

Right......I wonder why that could be? Not being able to fall asleep &, when you do, waking up frequently because of the pain, waking early etc. does tend to make people very tired. Not just tired of being in pain tired but tired, tired. Honestly, will this BS never end?

There's an intersection now? How very dualistic. :rolleyes:

Not that I know of. :( I've never met someone who has both but have met someone who was diagnosed with ME and a few years later was diagnosed with MS. It was decided the the initial diagnosis was probably wrong as she responded well to whatever treatment she got for MS.

Really it's just another attempt at reworking of the original message from Wessely et al that ME CFS patients who are members of a support group are more likely to become chronically ill. The fact he was saying this 2 or 3 decades ago when there was dial up compuserve at best, many people...